Mayo Clinic Connect
I have searched for the average wait times for a cadaveric kidney at Mayo and haven’t found resources. I’ve been to txmultilisting.com which is very helpful but would like to confirm their data through a separate resource.
@parboy Good morning and welcome to Mayo Clinic Connect. I have 3 resources to share with you.
Scientific Registry of Transplant Recipients (SRTR) https://www.srtr.org/
United Network for Organ Sharing (UNOS ) https://unos.org/
Organ Procurement and Transplantation Network (OPTN) https://optn.transplant.hrsa.gov/
You might also look at the Mayo Kidney Transplant Center for information.
Let us know if these are what you are looking for.
One of our moderators will be able to help you if this does not help you find your information.
Liked by Colleen Young, Connect Director
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Thanks for those resources. I couldn’t find the specific information I was looking for, i.e., the average number of months that people on the list for a kidney at Mayo Clinic wait. txmultilisting.com listed 21 months for type B patients. Can someone confirm that? Does the transplant community find txmultilisting’s data to be accurate? Thanks.
@parboy, You are welcome. Do you have a particular Mayo Campus in mind?
I am going to see what we can do to get you the information that you are looking for.
@keggebraaten , @NatalieR , @kequick Do you have any information that you can add?
Will you be needing a kidney transplant?
Hi Rosemary, yes I’m a kidney patient. I’m interested in the Arizona clinic. Thank you.
Liked by Rosemary, Volunteer Mentor
@parboy, Thank you for your questions about wait time for a kidney in Arizona. As you may know, wait time for deceased donor kidneys across the country is an average of 3-6 years. This, of course, depends on multiple factors including blood type and the number and severity of illness of the other patients waiting. I hope this message explains the wait list a bit – the data can be complex, but I will do my best to describe the current kidney situation at Mayo Clinic’s campus in Arizona. Since kidney transplant patients wait such a long time, many patients investigate living donor transplant. Those patients who have a donor willing to donate, but who doesn’t match them, can also benefit from kidney paired donation where they “swap” their donor with someone else on the list who has a willing but nonmatching donor.
All transplant centers in the country are required to report data on transplants and wait list patients to a government organization called the Scientific Registry of Transplant Recipients (SRTR). I would be very careful about using any website that doesn’t reference this data, as transplant centers only report to a limited number of organizations, all within the government. Unfortunately, while there is data on SRTR regarding the wait list, the detail does not include average number of months patients wait. The Organ Procurement Transplant Network (OPTN) uses the data from the SRTR and reports more detail, which I have included below. The OPTN is a public website, and you can search data on any transplant center using https://optn.transplant.hrsa.gov/data/view-data-reports/center-data/#. When I searched our kidney program in Arizona, I found the following data on blood group B patients on the list and the amount of time they waited before transplant.
For blood group B patients, as of October 29, 2017:
Total blood group B patients = 100
Those transplanted within 30 days = 6
30 to 90 days = 8
90 days to 6 months = 5
6 months to 1 year = 20
1-2 years =28
2-3 years = 11
3-5 years = 21
Another metric important to patients waiting is outcome. The SRTR gives a nice summary for each transplant center and includes information on how that transplant center ranks with the national average. You can find the Arizona kidney program summary here: https://www.srtr.org/transplant-centers/mayo-clinic-hospital-azmc/?organ=kidney&recipientType=adult&donorType=. This web page gives a nice summary of transplant rates, wait list data, and outcomes.
I hope this summary is helpful to you. I am happy to help with further questions. You can also email us at firstname.lastname@example.org. Thank you!
Liked by Rosemary, Volunteer Mentor, Colleen Young, Connect Director
Thanks Kristin for providing so much good information. I think your response answers my question pretty well.
When I got on the list locally in California, I was told the wait would be about 7-8 years. I had hoped there was similar information for the region that Mayo is in.
That said, I think the breakdown you provided for type B patients suggests a wait time of about 2 years on average. As I’m considering where I should be listed going forward, Mayo is obviously a great improvement in terms of getting to transplant over my current situation.
Liked by Natalie R, Marketing Manager
@parboy, I am happy that @keggebraaten was able to provide you with the information that you requested. I hope that things work out for you with regards to receiving your transplant. We are here if you have any questions, anytime.
Rosemary (liver/kidney – 2009)
Liked by parboy
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