Cramping around pacemaker site

Posted by dorothynoz45 @dorothynoz45, Sat, Jun 22 10:58am

I am getting very frustrated with this situation. I have had my pacemaker for over 2 years and I still have the same cramping ache at the site that I experienced after the implant. No one takes me seriously. I have been trying to rattle the cardiology office cage for a week and 1/2 now. Several weeks ago it got worse; woke me up at night and in the morning it hurt so bad that twice I couldn't stand straight. It seems to harder to stand up when I get up and start moving. I can't get past the phone nurse. She left a voice mail for me ' that it couldn't possibly be the device because I've had it so long. That it must be something else.' Dr. told me they could re position it but didn't like to for fear of infection. I am posting because after this long of time, although I've been told nothing can be done about it, I don't want this in my life anymore. Has this happened to anyone else?

Oh dear…that sounds painful and frustrating, Dorothy. If I were you, I would to Emergency. They see people with heart issues immediately. Hopefully they call a cardiologist and that you are not just treated by a resident. Maybe go early in the morning on a weekday.

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Dorothy, I agree with Robin that this is something that should not be ignored. Whether the cause is the pacemaker or not, cramping in the chest area requires attention.

I'm bringing fellow members @cmensinger @yoanne @exboater @eileena and @lmclaugh into this discussion. They all have experiences with pacemakers and may have some thoughts to add. You may also be interested in this discussion:

– Pacemaker recipients. https://connect.mayoclinic.org/discussion/pacemaker-recipients/

Dorothy, have you considered getting a second opinion from another cardiologist? If the cramping continues, I too recommend going to the ER.

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Just this week I have decided to pursue a 2nd opinion. I have an app't with my PC and I want a 2nd opinion.

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@colleenyoung

Dorothy, I agree with Robin that this is something that should not be ignored. Whether the cause is the pacemaker or not, cramping in the chest area requires attention.

I'm bringing fellow members @cmensinger @yoanne @exboater @eileena and @lmclaugh into this discussion. They all have experiences with pacemakers and may have some thoughts to add. You may also be interested in this discussion:

– Pacemaker recipients. https://connect.mayoclinic.org/discussion/pacemaker-recipients/

Dorothy, have you considered getting a second opinion from another cardiologist? If the cramping continues, I too recommend going to the ER.

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hello dorothy,
I definitely agree with the answers, you got.. I got my two chamber pacemaker 17 months ago. I had a check after 11 months. I was told everything o.k. At that moment they did not an echocardiography, otherwise they should have noticed that I was NOT o.k. I was developing a heart failure. I knew that I had a lot of A-Fib's (nothing to worry about, I was reassured).40 percent of the recipients have A-Fibs.)
These A-Fib's induced a ventricular arrhythmia. , leading to the heart failure. Like you it was very difficult to get an appointment. The nurse only found a date in MAY!!! So I had to wait 4 months. My family doctor got an earlier date. I had to wait ONLY 2 weeks. Honestly said, I was an emergency. I learned that a pacemaker can also cause problems or complications, so do not hesitate !!!
I did not have your discomfort around the site of implantation. In this context maybe an interesting tip (not for you). I am left handed, I was sedated before the implantation . The cardiologist did not discuss or explain, what he intended to do. otherwise I would have asked him to implant the device at the right site. a couple of weeks ago I had an unpleasent experience, I washed my curtains and put them back on the rails( correct american?), of course with my left hand. Afterwards I had a long period of irregular heart beats,( one hour.).
I hope you will get an answer soon.
yoanne.

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@yoanne

hello dorothy,
I definitely agree with the answers, you got.. I got my two chamber pacemaker 17 months ago. I had a check after 11 months. I was told everything o.k. At that moment they did not an echocardiography, otherwise they should have noticed that I was NOT o.k. I was developing a heart failure. I knew that I had a lot of A-Fib's (nothing to worry about, I was reassured).40 percent of the recipients have A-Fibs.)
These A-Fib's induced a ventricular arrhythmia. , leading to the heart failure. Like you it was very difficult to get an appointment. The nurse only found a date in MAY!!! So I had to wait 4 months. My family doctor got an earlier date. I had to wait ONLY 2 weeks. Honestly said, I was an emergency. I learned that a pacemaker can also cause problems or complications, so do not hesitate !!!
I did not have your discomfort around the site of implantation. In this context maybe an interesting tip (not for you). I am left handed, I was sedated before the implantation . The cardiologist did not discuss or explain, what he intended to do. otherwise I would have asked him to implant the device at the right site. a couple of weeks ago I had an unpleasent experience, I washed my curtains and put them back on the rails( correct american?), of course with my left hand. Afterwards I had a long period of irregular heart beats,( one hour.).
I hope you will get an answer soon.
yoanne.

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@yoanne Thank you for sharing your experiences with a pacemaker. You have proven how important it is for patients to advocate for themselves and seek another opinion and/or to go to an ER if needed.

Liked by AFRobin, gardenjoy

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@dorothynoz45

Just this week I have decided to pursue a 2nd opinion. I have an app't with my PC and I want a 2nd opinion.

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Hi @dorothynoz45,

How are you? Did you get any more insights after your appointment?

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Kanaaz, I do apologize that I have waited so long to respond to your kind inquiry about my pm pain. Progress is slow, isn't it? An x-ray shows that I have AC joint arthritis. I have waited 3 weeks tomorrow to hear from a dr who is going to give me some kind of nerve ending tests. Next week I see an orthopedic dr The pain hasn't bothered me recently although I could hardly sit in church about 2 weeks ago because of it. It is definitely related to activity although the pain seems to be directly over my pacemaker site. I just can't figure and why did the pain start at the exact same time I received my pacemaker?

Thank you again for asking. It takes time and I'm going to guess that most of us are short on patience. Oops! I sure am.

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