Pain around pacemaker site

Posted by dorothynoz45 @dorothynoz45, Jun 22, 2019

I am getting very frustrated with this situation. I have had my pacemaker for over 2 years and I still have the same cramping ache at the site that I experienced after the implant. No one takes me seriously. I have been trying to rattle the cardiology office cage for a week and 1/2 now. Several weeks ago it got worse; woke me up at night and in the morning it hurt so bad that twice I couldn’t stand straight. It seems to harder to stand up when I get up and start moving. I can’t get past the phone nurse. She left a voice mail for me ‘ that it couldn’t possibly be the device because I’ve had it so long. That it must be something else.’ Dr. told me they could re position it but didn’t like to for fear of infection. I am posting because after this long of time, although I’ve been told nothing can be done about it, I don’t want this in my life anymore. Has this happened to anyone else?

I have a Medtronic pacemaker for 7 years. Having sudden pain now for 2 days where it is attached on the left side. Ironically, saw the doctor and the Medtronic tech for a yearly check-up this Friday. All was A-OK. Friday night I started feeling a low grade pain in that area. Fell asleep. Next morning it started again and got worse if I moved around too quickly. I tried calling the doctor but could only get a Nurse in the late afternoon. She said: Go to urgent care, which I want to avoid. I'm hoping to get hold of the doctor Monday and get some direction about it. It seems to come and go. It's a pulsing type pain, I assume it goes with the heart rhythm. But I've never had any issues for the past 7 years so this is sudden and concerning. Doctor said I have approximately 31/2 years left on the battery. Anyone here has had a similar issue? Thank You

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@deb1020

Yes!!!! Had Medtronic pace and Defibrillator installed 10/20. I have stings and horrible burning. Have a large keloid forming. Told Doc. Waiting for appt with cardiac electro physiologist. Not that I am happy you have this horrid pain, but glad I found you. I called Medtronic, they would not talk except to say they had calls about the stings/burn and check with doctor. Had 3 month check. Technician said device working great…had knowledge that device feels like it stings/ burns worse on slight body frames…waiting…

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WOW! Yes! Me too! This describes how mine feels. My surgery was October 8, 2020. Still hurts, and just recently the last few days the pain seems worse and there's a burn/sting sensation. OKAY, so I will call my dr tomorrow. I am "just now" new to this conversation, so maybe I commented on the wrong post. All I know is that I have a pacemaker that was installed October 2020. And this conversation seems to describe the pain I'm experiencing. Will do an upload on my medtronic device that's near my bed, and plan to call my Dr in the morning first thing. This scares me!

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Hi , Iam "Soldier 0461". I am new to this site> Here is my story: I am very fit having been an athlete all my life and a full career in the Army. My problem started when I had a blood pressure test and it was found that my Heart beat was only 29bpm yet! I felt good and still training every day with no symptoms of illness. It was arranged for me to have a Pace Maker fitted. The operation was to take 1hr 30 mins, indeed half way through the procedure I was rushed to the X-ray dept. for an X-ray. I was returned to the operating table and it took another 1hr 30 minutes to finish. . The surgeon later came to have a chat with me and advised me that during the operation when inserting a wire in my chest from the pace maker a vein had been punctured and the left ventricle of my heart scored.. He advised me that it was caused by a surgeon that he was training . He then gave me some paperwork and said if I wished to put in a formal complaint and to claim compensation to complete the forms. I said, I didn't want to claim any compensation as it was simply an accident and not done with any malicious intent. Summary> I feel fit and well, still training but less than I used to. I didn't realise the restrictions to ones daily life with a Pace Maker, Not allowed to lift anything heavy, not allowed to lift anything above ones head, not allowed do the crawl when swimming. No Contact sports, But I can still make love. [carefully] Update> 2 months later each time I yawn , sneeze, cough or take a deep breath I get a sharp pain in my chest as if pricked with a pin, lasts less than a second. I am burping quite a lot, I get pins and needles in my hands and feet and cramp in my legs, but other than that I feel good. My heart beat is a constant 60bpm but occasionally I have heart palpitations for about a minute. Question> Am I glad I had a Pace Maker fitted, Honestly> I am not sure as my life has been impacted so much with the restrictions of a pace maker, my life has changed dramatically. Oh yes and on top of this I have leukaemia.

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@6sld6

WOW! Yes! Me too! This describes how mine feels. My surgery was October 8, 2020. Still hurts, and just recently the last few days the pain seems worse and there's a burn/sting sensation. OKAY, so I will call my dr tomorrow. I am "just now" new to this conversation, so maybe I commented on the wrong post. All I know is that I have a pacemaker that was installed October 2020. And this conversation seems to describe the pain I'm experiencing. Will do an upload on my medtronic device that's near my bed, and plan to call my Dr in the morning first thing. This scares me!

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Hi Deb, sorry to hear you are suffering the same side affects as me. Last night the feeling of being pricked by pins was the worse yet, not to mention my legs from the knee down to me feet felt as if they were on fire so I got up and ran around the garden a few times and felt better. When I got up this morning and gave a long yawn I got the strange pain in my chest again. The pain etc doesn't really worry so much as the restrictions on my daily life. I miss wrestling with my dogs on the lawn and going swimming, I know we are allowed to do the breast stroke but I need to do the crawl to feel myself powering along the pool. Oh yes and my tectonic device doesn't seem to work, I have been told they will call me in 4 weeks time. Just had a thought: When in the Army out training with my soldiers one of my Sgts stopped running and sat down gasping,, "Sgt are you in pain " I barked at him " Yes sir he replied" I said " If You feel pain that's good, Its shows your alive, get moving" good days,
Keep safe Deb and smile.

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@dennis0461

Hi Deb, sorry to hear you are suffering the same side affects as me. Last night the feeling of being pricked by pins was the worse yet, not to mention my legs from the knee down to me feet felt as if they were on fire so I got up and ran around the garden a few times and felt better. When I got up this morning and gave a long yawn I got the strange pain in my chest again. The pain etc doesn't really worry so much as the restrictions on my daily life. I miss wrestling with my dogs on the lawn and going swimming, I know we are allowed to do the breast stroke but I need to do the crawl to feel myself powering along the pool. Oh yes and my tectonic device doesn't seem to work, I have been told they will call me in 4 weeks time. Just had a thought: When in the Army out training with my soldiers one of my Sgts stopped running and sat down gasping,, "Sgt are you in pain " I barked at him " Yes sir he replied" I said " If You feel pain that's good, Its shows your alive, get moving" good days,
Keep safe Deb and smile.

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Well, I do appreciate the response…..however, I am not Deb. Make sure you get a message to the proper person. My name is "Shelley". Even tho I've had pain at my pacemaker site since the day I left the hospital October,2020… it has recently become worse. Feels as if there's a "pushing/pressure" followed by a burn sensation with the sharp prickly needles. My pulse got down to 37 in the hospital before my procedure and currently hovers around the 82 mark. I'd been feeling kind of "off", dizzy like and light headed and had absolutely NO color in my face, so I went to see my PCP. She sent me to ER, immediately I was transported to a hospital and had the pacemaker procedure the next day. Grateful to be alive today! Have an upcoming appt with cardiology to see what's going on. It is nice to be in touch with others, so Thank You for responding.

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Hi Shelly, sorry about the name error, maybe its because I type like a madman and my daughter thinks it sounds like a sledge hammer. About pulse rates: prior to being recommended for a pace maker my pulse was a constant 29BPM but I suffered no side affects and still ran and trained daily. The consultant on reading my Army med records noted that even then my pulse was a constant 40 BPM so I feel as a none-medical person that recommended pulse rates are a ball park guideline. My current pulse rate with the pace maker is constant 60BPM whether or not I have been training and my blood pressure is a constant= Systolic 100 and Diastolic 80 i/e 100/80. Prior to the pace maker being fitted I had no symptoms and felt healthy, now> I suffer variolous symptoms, cramp, strange feeling of being pricked by pins and my lower legs at night feel as if on fire and I cannot be involved in contact sports. But this is the least of my worries as I have now been diagnosed with blood cancer, but that's life. Keep safe. PS: Iam pleased I found this site, it is really full of sound advice

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I am experiencing the same issues. Mine was inserted on August 4 2020. It’s always been uncomfortable and hurts when I turn over at night. Now I am having high heart rates and sharp jabs in my left shoulder area and pacemaker area. I have an appointment in the morning. Hopefully will get resolved.

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@stormlyn

I am experiencing the same issues. Mine was inserted on August 4 2020. It’s always been uncomfortable and hurts when I turn over at night. Now I am having high heart rates and sharp jabs in my left shoulder area and pacemaker area. I have an appointment in the morning. Hopefully will get resolved.

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@stormlyn Hi I thought I might mention a strange feeling my wife had after her Covid Shot. It was some discomfort in the area where the pacemaker usually sits. She doesn't have a pacemaker but I thought I might mention that. It was on the same side as where she received the vaccine. So might be a possibility the newer discomfort from that. It did pass and She no longer is having an issue.
I once had a pacemaker until my heart transplant so I know a little but never any sharp pain just it would get itchy at times. Plus laying on that side did at times cause some discomfort.
I hope all goes well with your Dr apt.
Blessings

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I had that problem. They moved the site to the other side and also did a nerve block. That happened to me while I was living on Nc though and was at Duke. They said it’s from the nerves growing back. That wasy case I am not a doctor and I am not saying that’s your situation. That happened years after my implantation.

REPLY
@dennis0461

Hi , Iam "Soldier 0461". I am new to this site> Here is my story: I am very fit having been an athlete all my life and a full career in the Army. My problem started when I had a blood pressure test and it was found that my Heart beat was only 29bpm yet! I felt good and still training every day with no symptoms of illness. It was arranged for me to have a Pace Maker fitted. The operation was to take 1hr 30 mins, indeed half way through the procedure I was rushed to the X-ray dept. for an X-ray. I was returned to the operating table and it took another 1hr 30 minutes to finish. . The surgeon later came to have a chat with me and advised me that during the operation when inserting a wire in my chest from the pace maker a vein had been punctured and the left ventricle of my heart scored.. He advised me that it was caused by a surgeon that he was training . He then gave me some paperwork and said if I wished to put in a formal complaint and to claim compensation to complete the forms. I said, I didn't want to claim any compensation as it was simply an accident and not done with any malicious intent. Summary> I feel fit and well, still training but less than I used to. I didn't realise the restrictions to ones daily life with a Pace Maker, Not allowed to lift anything heavy, not allowed to lift anything above ones head, not allowed do the crawl when swimming. No Contact sports, But I can still make love. [carefully] Update> 2 months later each time I yawn , sneeze, cough or take a deep breath I get a sharp pain in my chest as if pricked with a pin, lasts less than a second. I am burping quite a lot, I get pins and needles in my hands and feet and cramp in my legs, but other than that I feel good. My heart beat is a constant 60bpm but occasionally I have heart palpitations for about a minute. Question> Am I glad I had a Pace Maker fitted, Honestly> I am not sure as my life has been impacted so much with the restrictions of a pace maker, my life has changed dramatically. Oh yes and on top of this I have leukaemia.

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Who put in your pacemaker? If it was the army you need to go somewhere else to get it checked out not
The va! You should be able to lift weights after the few weeks of recovery! If they hit your ventricle that is very very bad. I had a problem
With a military hospital and if I could of sued I would of. Luckily I was just military wife any patents flew to fort Bragg and came and got me and brought me to Mayo. My mayo dr was pissed at Womack. They didn’t do things right! They didn’t even have certified specialists in certain departments. God. Also I am sorry you have leukemia . But there isn’t any limitations really with a pacemaker I mean there is a few but it’s
Mostly things you can’t got buy or put
By the area. I am kind of
Concerned by your post. I hope you are okay….

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I had a.Pacemaker placed July 2020 & I am having the same pain all of you are describing, mine got infected right after surgery so it took longer to heal, but I have the burning, it always feels swollen, sometimes it is just unbearable!! I went back to the surgeon so many times that the last time, he said, "I don't know what to do for you except to just take it out", my heart rate in the hospital before my surgery dropped between 30 to 40 over a period of 3 hrs, so I looked at him & said well don't I need this to live, & he said yes, but I don't know what else to do!!! Needless to say I found another specialist! She is going to do an Echo to see if my lead wires have come loose, so at least they are trying to find out the problem. I will let you know.

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