cPAP silicone allergy

Posted by SanibelSandy @sanibelsandy, May 6, 2017

I apparently have developed an allergy to silicone, which creates problems with my cPAP mask since they all seem to be made of silicone. Anyone know of other options? Solutions? I do use a barrier (Silent Night, RemZZs) but at times they slip and I end up with skin break-down.

Liked by dysautonomia9

@sanibelsandy

After two months with the AirTouch I am absolutely satisfied with this mask. No irritation, no pressure sores, decreased leaks, better sleep–what more can I say. Oh, yeah, my husband now has an AirTouch and is very happy with it. He has scars on the bridge of his nose from sores from previous masks. He has for years put a piece of tape across the bridge to prevent the sores. He has a “crease” at the corner of his mouth as a result of an automobile accident when he was young. He was putting a pad in that area with his old mask because the mask did not conform to that crease and it leaked. With the AirTouch, he has discontinued the tape strip and the pad for that crease. No leaking and no irritation. He said he feels he is sleeping better. So in this house you have two definite fans of the AirTouch!

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@sanibelsandy

Is Air Touch available with BIPAP? I switched from CPAP to BIPAP several months ago. I think that the nasal pillows are working very well for me, even though I was a mouth breather all my life until I had surgery for a deviated septum. I don’t know how much I breathe through my mouth now. I do know that I wake up with such a dry mouth that I can’t swallow a couple of times a night. Of course, dry mouth is a side effect of several of my meds.

I’m glad you’ve found something that works so well for you and your family.

Jim

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Yes, Jim. I wear a BiPAP and the mask is interchangeable

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@gman007

Yes, Jim. I wear a BiPAP and the mask is interchangeable

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@gman007

I’ll ask my supplier if I can try the air touch.

Jim

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Tell them you are swallowing air and have dry mouth issues. That gives them a clinical reason to sell your insurance a new one and, in my case, I order a new facial part of the mask every 30 days as it is made from memory foam. Good luck, it is very comfortable and I hate the full face variety.

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My wife is allergic to silicone. She wears the SleepWeaver Anew, an all-cloth mask, and has no trouble with it. It's available online and from some medical supply stores.

It's really a hassle, since almost all respiratory stuff is made of silicone. We wrap the oxygen tubing in tape to prevent contact.

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HI, @steventomer — welcome to Mayo Clinic Connect. Thanks for your suggestion about an all-cloth mask to use with a continuous positive airway pressure (CPAP) machine that works for your wife with her silicone allergy. I'm guessing that @sanibelsandy @bernese53 @gman007 @jimhd @blueyes782 @racerjon may be interested in this. Sounds like you are doing a lot to make this work for her with the taping the oxygen tubing and all.

How is she doing with her sleep apnea now that she is able to use the CPAP machine?

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@lisalucier

HI, @steventomer — welcome to Mayo Clinic Connect. Thanks for your suggestion about an all-cloth mask to use with a continuous positive airway pressure (CPAP) machine that works for your wife with her silicone allergy. I'm guessing that @sanibelsandy @bernese53 @gman007 @jimhd @blueyes782 @racerjon may be interested in this. Sounds like you are doing a lot to make this work for her with the taping the oxygen tubing and all.

How is she doing with her sleep apnea now that she is able to use the CPAP machine?

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She's doing fine with the CPAP therapy now. Without the cloth mask, She was continually getting perioral dermatitis (a rash around the mouth), and a rash anywhere the silicone oxygen tube touched her skin.

To eliminate the silicone, she also had to change out the nose pads on her glasses with polycarbonate pads, and remove her IUD. If someone has a silicone allergy (and it's real, not imagined – we've done several challenge / response trials with silicone for her), they really need to get rid of any exposure.

Her response is interesting: it starts with a rash (no anaphylaxis), and then all of her joints swell up. For her, it triggers an autoimmune response that only goes away with Prednisone.

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Every time I use my CPAP, I break out in rash and get very little sleep. It is 2:26am and I woke up with less than 2 hours of sleep. Does anyone wake up with swollen hands and feet. Both are very painful but my doctor neglects these. One other thing that I find bad is my horrific nightmares. I am coming off of some meds.

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@macjane

Every time I use my CPAP, I break out in rash and get very little sleep. It is 2:26am and I woke up with less than 2 hours of sleep. Does anyone wake up with swollen hands and feet. Both are very painful but my doctor neglects these. One other thing that I find bad is my horrific nightmares. I am coming off of some meds.

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Hi, @macjane — that doesn't sound like fun at all to be breaking out in a rash and getting very little sleep every time you use your continuous positive airway pressure (CPAP) machine.

Wondering if it's just when you use your CPAP that you get swollen hands and feet? I also thought that you are connecting your horrific nightmares with withdrawal from some medications. Is that correct?

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@lisalucier

HI, @steventomer — welcome to Mayo Clinic Connect. Thanks for your suggestion about an all-cloth mask to use with a continuous positive airway pressure (CPAP) machine that works for your wife with her silicone allergy. I'm guessing that @sanibelsandy @bernese53 @gman007 @jimhd @blueyes782 @racerjon may be interested in this. Sounds like you are doing a lot to make this work for her with the taping the oxygen tubing and all.

How is she doing with her sleep apnea now that she is able to use the CPAP machine?

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I am interested in your wife's experience with the cloth mask. My daughter had tried one (Don't know which) but went back to her regular mask. Reviews I have read mentioned that the cloth masks were a hassle to position and leaks were a continuing problem. I may need to take a look at the one (SleepWeaver Anew) your wife is using. I did find relief from my allergy with the AirTouch, which has the memory foam welded to the silicone so the silicone doesn't come in contact with my face. It sounds like your wife's silicone allergy is worse than mine, so the AirTouch likely would not work well for her. I am interested in where you found the polycarbonate eyeglass pads. I had to switch to plastic frames because of my silicone allergy but much prefer the frames with the nose pads that elevate the glasses away from the face. I hadn't been able to find any alternative to the silicone eyeglass nosepads so I would appreciate information on the polycarbonate pads. Thank you!

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@lisalucier

HI, @steventomer — welcome to Mayo Clinic Connect. Thanks for your suggestion about an all-cloth mask to use with a continuous positive airway pressure (CPAP) machine that works for your wife with her silicone allergy. I'm guessing that @sanibelsandy @bernese53 @gman007 @jimhd @blueyes782 @racerjon may be interested in this. Sounds like you are doing a lot to make this work for her with the taping the oxygen tubing and all.

How is she doing with her sleep apnea now that she is able to use the CPAP machine?

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Positioning can be tricky, but we were able to get it to work without too many leaks.

As for the polycarbonate nose pads, I'm not sure where we got them from, but there are some links if you do a search for "eyeglass nose pads polycarbonate".

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Yes – medicine was Effexor.

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@macjane

Yes – medicine was Effexor.

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@macjane — so sorry the withdrawal process from venlafaxine (Effexor) has produced such horrific nightmares. I thought you might be interested in this Connect discussion on withdrawing from Effexor, http://mayocl.in/2HSF4Wc. Lots of experiences shared that echo yours.

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Thank you so much. The withdrawal is/has been a nightmare. I think many doctors ignore some of the side-effects of this med. It never helped me other than to make me feel worse. Again, many thanks. Jane

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@macjane

Thank you so much. The withdrawal is/has been a nightmare. I think many doctors ignore some of the side-effects of this med. It never helped me other than to make me feel worse. Again, many thanks. Jane

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Hi, @macjane — wondering how you are doing and how it's going with the CPAP machine? How is the swelling and rash you were experiencing?

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