cPAP silicone allergy

Posted by SanibelSandy @sanibelsandy, May 6, 2017

I apparently have developed an allergy to silicone, which creates problems with my cPAP mask since they all seem to be made of silicone. Anyone know of other options? Solutions? I do use a barrier (Silent Night, RemZZs) but at times they slip and I end up with skin break-down.

@lisalucier

HI, @steventomer — welcome to Mayo Clinic Connect. Thanks for your suggestion about an all-cloth mask to use with a continuous positive airway pressure (CPAP) machine that works for your wife with her silicone allergy. I'm guessing that @sanibelsandy @bernese53 @gman007 @jimhd @blueyes782 @racerjon may be interested in this. Sounds like you are doing a lot to make this work for her with the taping the oxygen tubing and all.

How is she doing with her sleep apnea now that she is able to use the CPAP machine?

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I am interested in your wife's experience with the cloth mask. My daughter had tried one (Don't know which) but went back to her regular mask. Reviews I have read mentioned that the cloth masks were a hassle to position and leaks were a continuing problem. I may need to take a look at the one (SleepWeaver Anew) your wife is using. I did find relief from my allergy with the AirTouch, which has the memory foam welded to the silicone so the silicone doesn't come in contact with my face. It sounds like your wife's silicone allergy is worse than mine, so the AirTouch likely would not work well for her. I am interested in where you found the polycarbonate eyeglass pads. I had to switch to plastic frames because of my silicone allergy but much prefer the frames with the nose pads that elevate the glasses away from the face. I hadn't been able to find any alternative to the silicone eyeglass nosepads so I would appreciate information on the polycarbonate pads. Thank you!

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@lisalucier

HI, @steventomer — welcome to Mayo Clinic Connect. Thanks for your suggestion about an all-cloth mask to use with a continuous positive airway pressure (CPAP) machine that works for your wife with her silicone allergy. I'm guessing that @sanibelsandy @bernese53 @gman007 @jimhd @blueyes782 @racerjon may be interested in this. Sounds like you are doing a lot to make this work for her with the taping the oxygen tubing and all.

How is she doing with her sleep apnea now that she is able to use the CPAP machine?

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Positioning can be tricky, but we were able to get it to work without too many leaks.

As for the polycarbonate nose pads, I'm not sure where we got them from, but there are some links if you do a search for "eyeglass nose pads polycarbonate".

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Yes – medicine was Effexor.

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@macjane

Yes – medicine was Effexor.

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@macjane — so sorry the withdrawal process from venlafaxine (Effexor) has produced such horrific nightmares. I thought you might be interested in this Connect discussion on withdrawing from Effexor, http://mayocl.in/2HSF4Wc. Lots of experiences shared that echo yours.

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Thank you so much. The withdrawal is/has been a nightmare. I think many doctors ignore some of the side-effects of this med. It never helped me other than to make me feel worse. Again, many thanks. Jane

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@macjane

Thank you so much. The withdrawal is/has been a nightmare. I think many doctors ignore some of the side-effects of this med. It never helped me other than to make me feel worse. Again, many thanks. Jane

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Hi, @macjane — wondering how you are doing and how it's going with the CPAP machine? How is the swelling and rash you were experiencing?

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Consider also using Circadian cloth masks. Some DMEs carry it, but I know online retailers do. They have a couple types of nasal masks and one full face mask. Some leaks, but at least they don't have latex or silicon.

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@taran

Consider also using Circadian cloth masks. Some DMEs carry it, but I know online retailers do. They have a couple types of nasal masks and one full face mask. Some leaks, but at least they don't have latex or silicon.

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Hi, @taran – welcome to Mayo Clinic Connect. Thanks for the tip on the circadian cloth masks for those who need to avoid silicone or latex.

Do you have sleep apnea and use this kind of mask?

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Yes, I have an Airsense for Her. While I primarily use Airfit P10 or Dreamwear, i do use the Circadiance (I spelled wrong before) SleepWeaver Advance Nasal CPAP Mask with Improved Zzzephyr Seal. I primarily use it when I have sinus problems as my cheeks hurt then. There is also the Elan which has a replaceable 'cushion'. A number of online retailers carry the fit pack so that you can determine which size fits you best with the fewest leaks.

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I also have a silicone allergic reaction to my cpap attachments. I’ve had it for 16 mos. i had to change from face mask to the dreamwork pillows which touch my skin minimally under my nose. It helps for me to put carmax where the pillows touch, before and after use. My cpap supplier, apria, supplies me with cloth slips that have light velcro to cover like a wrap, from nose to ear to minimize skin contact. My face no longer has the “singed” look from the cpap products. I still get reactions, but rarely and lightly -usually when i forget my carmax. ** not sure if this could happen to you, but Be aware that some gel nail products have silicon and will cause damage to the nails. It happened to me simply with using gel nail paints.

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Thank you all for posting. I am so relieved to know that I am not alone in having an allergy to the silicone on the cpap machine and that there seems to be an alternative to try.
I am allergic to not only the silicone on the cpap machine but also the substance they make mouth guards out of, the dentists gloves where he touches my lips and dexon suture stitching thread used in some surgery.

The cpap machine is vital to my quality of life and very much needed so I definitely need to find a solution.

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@miniray

Thank you all for posting. I am so relieved to know that I am not alone in having an allergy to the silicone on the cpap machine and that there seems to be an alternative to try.
I am allergic to not only the silicone on the cpap machine but also the substance they make mouth guards out of, the dentists gloves where he touches my lips and dexon suture stitching thread used in some surgery.

The cpap machine is vital to my quality of life and very much needed so I definitely need to find a solution.

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@miniray l also had issues with the capc mask, l hated the mask then l tried the nose pillows which was okay. I was a to tolerate it. Then when l went to my pulmonologist. I saw some new mask. They have this new mask that goes across your face and you connect either the pillow that goes directly in your nose and then they have one where there is a wide like split and the air goes right through it and it goes to your nose. And the strap goes around your head and the tube connection from the machine to the head care is on the top. You have to make sure you connect it correctly and they have it written on the head gear as well as whichever nose peace you use. Now it is silicon so l don't know if you could maybe tie scotch tape around it or something else you might not be allergic too. You might check the medical supply stores, look online medical supply stores or see if there are any new type of machines but talk to your doctor also. He might know of something else. I go to my pulmonologist sometimes they know more since that's their specialty at least that was in my case. Hope that helps

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