cPAP silicone allergy

Posted by SanibelSandy @sanibelsandy, May 6, 2017

I apparently have developed an allergy to silicone, which creates problems with my cPAP mask since they all seem to be made of silicone. Anyone know of other options? Solutions? I do use a barrier (Silent Night, RemZZs) but at times they slip and I end up with skin break-down.

@JustinMcClanahan

Hello @sanibelsandy, and welcome to Connect. Thank you for starting a conversation about silicone allergy and a cPAP mask. I did some research of my own and it does appear there are some masks that are made from a different type of gel, but it would be best to consult with your physician about the alternative mask types in case that you have an allergy to the other mask types as well.

While I search for some other members who also have a silicone allergy, would you mind sharing a bit more about your situation? How long have you been using a cPAP before you developed your allergy? Has your physician diagnosed your allergy and talked about any other alternatives?

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I have been using a nasal pillow CPAP for many years and a year ago began developing a what we believe to be contact dermatitis around my eyes and exactly where the sillicone straps go along my cheeks. I have tried so many masks and have removed the fabric covers on the ResMed masks thinking that the fabric was the problem, but it seems to be the actual sillicone that is causing the problem. I need to find a solution…is there a mask that is not made using sillicone? Thank you for your help!

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@JustinMcClanahan

Hello @sanibelsandy, and welcome to Connect. Thank you for starting a conversation about silicone allergy and a cPAP mask. I did some research of my own and it does appear there are some masks that are made from a different type of gel, but it would be best to consult with your physician about the alternative mask types in case that you have an allergy to the other mask types as well.

While I search for some other members who also have a silicone allergy, would you mind sharing a bit more about your situation? How long have you been using a cPAP before you developed your allergy? Has your physician diagnosed your allergy and talked about any other alternatives?

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Hi, @rooster53 – I'd like to welcome you to Mayo Clinic Connect. That is too bad that after using your CPAP for many years you started developing what you believe to be contact dermatitis where the silicone goes along your face.

I am hoping that some of the members in this discussion, like @sanibelsandy @bernese53 @steventomer @taran @delolulara and others may have some ideas for you of masks not made of silicone.

@rooster53 – did your doctor have any input on what was going on with your facial reaction and how to proceed?

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Question for CPAP users with allergy to silicone – does anyone also experience significant edema / collection of fluid / around the eyes? I have this problem. I don't know whether it is an allergy to silicone, or whether the mask itself presses on lymph ducts which would otherwise drain excess fluid from around the eyes. I sleep on my side; whichever side is closer to the bed is always more swollen in the morning. This swelling recedes during the day but never disappears. As I have continued to use my CPAP equipment, this swelling has become more significant. It now sometimes extends beyond the "baggy eye" area below each eye into the cheek area and into the area outside each eye.
I'm a new CPAP user and have used a ResMed Airfit P10 nasal pillows mask since June 2018. The mask straps have a thin stretchable fabric over a stiff plastic frame. My skin directly underneath the straps, as well as areas between the straps and the nasal pillows, are always irritated and have a rash with small to medium red and sometimes infected bumps.
Discovering this website and discussion between users with silicone allergies has been very reassuring. Now I will look for fabric pads for my current mask and straps. If necessary I will change the type of mask I use.
However, I still have not found any documented causes of swelling around the eyelids. Suggestions welcome.

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@tinybeads2004

Question for CPAP users with allergy to silicone – does anyone also experience significant edema / collection of fluid / around the eyes? I have this problem. I don't know whether it is an allergy to silicone, or whether the mask itself presses on lymph ducts which would otherwise drain excess fluid from around the eyes. I sleep on my side; whichever side is closer to the bed is always more swollen in the morning. This swelling recedes during the day but never disappears. As I have continued to use my CPAP equipment, this swelling has become more significant. It now sometimes extends beyond the "baggy eye" area below each eye into the cheek area and into the area outside each eye.
I'm a new CPAP user and have used a ResMed Airfit P10 nasal pillows mask since June 2018. The mask straps have a thin stretchable fabric over a stiff plastic frame. My skin directly underneath the straps, as well as areas between the straps and the nasal pillows, are always irritated and have a rash with small to medium red and sometimes infected bumps.
Discovering this website and discussion between users with silicone allergies has been very reassuring. Now I will look for fabric pads for my current mask and straps. If necessary I will change the type of mask I use.
However, I still have not found any documented causes of swelling around the eyelids. Suggestions welcome.

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I was being treated with a ResMed Mask AirFit F20 Mask that has caused ulcers on my nose, marks on face which got worse after weight loss. The bridge on nose and sinus area were/are extremely painful. I kept on appealing to doctors to see what is causing this mask to have such effects as the supplier would not address these issues. My sleep was severely reduced to the point that it could be limited to one hour or non-existent. Trying to research this face mask often the manufacturer would intercede and not address issue at all. What I noticed was the continuous needed movement of the straps once the pain became increasingly worse. I had lost 40 lbs over too quick a period. Nasal Masks fall off face.
i noticed the mask had two areas near the top with additional internal areas of stiffer plastic that may be cause. Another thing I noticed was that trying to get pads for mask are questionable. Some people say my mask has no padding. If it did why did the supplier for our insurance not bring them forward? Instead, I see when I look up these people claiming to be experts are making a profit if you order the mask through Amazon.

I would really like to see if anyone else has had ulcers that have been addressed by their doctors and providers.

Take care,

Jane Brown

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@macjane

I was being treated with a ResMed Mask AirFit F20 Mask that has caused ulcers on my nose, marks on face which got worse after weight loss. The bridge on nose and sinus area were/are extremely painful. I kept on appealing to doctors to see what is causing this mask to have such effects as the supplier would not address these issues. My sleep was severely reduced to the point that it could be limited to one hour or non-existent. Trying to research this face mask often the manufacturer would intercede and not address issue at all. What I noticed was the continuous needed movement of the straps once the pain became increasingly worse. I had lost 40 lbs over too quick a period. Nasal Masks fall off face.
i noticed the mask had two areas near the top with additional internal areas of stiffer plastic that may be cause. Another thing I noticed was that trying to get pads for mask are questionable. Some people say my mask has no padding. If it did why did the supplier for our insurance not bring them forward? Instead, I see when I look up these people claiming to be experts are making a profit if you order the mask through Amazon.

I would really like to see if anyone else has had ulcers that have been addressed by their doctors and providers.

Take care,

Jane Brown

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Hi,@macjane,@mamacita
here. I commend you, first off, for so thoroughly detailing your situation with the sleep mask. I have sleep apnea myself, and have been without a C-Pap mask for a long time now.

Now we all know that is not a good thing, as sleep apnea has many side effects that are quite worrisome. But then, neither are vicious skin eruptions that bother you to no end. I cannot diagnose your condition, as I am not in any way whatsoever qualified to act in place of a Board Certified Physician.

What I can do, as someone who has developed many, many allergies over the years, is suggest contacting the CEO of the company from where you made your purchase. My PHD mother in law made it her life's work after she retired! You cannot imagine the responses she received.

She made phone calls, sent emails, but always followed up with a letter, thus leaving a paper trail of her actions. She also researched to death the side effects of certain medications. She didn't have allergies, but I certainly did. And still do. Latex and silicone happen to be two of the ones that make me break out

Please let me know how your search turns out. I wonder if a sleep specialist could order a new study for you, since the old one is too big anyway? And Congratulations on the weight loss! Don't give up. We are here for you.

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@mamacita

Hi,@macjane,@mamacita
here. I commend you, first off, for so thoroughly detailing your situation with the sleep mask. I have sleep apnea myself, and have been without a C-Pap mask for a long time now.

Now we all know that is not a good thing, as sleep apnea has many side effects that are quite worrisome. But then, neither are vicious skin eruptions that bother you to no end. I cannot diagnose your condition, as I am not in any way whatsoever qualified to act in place of a Board Certified Physician.

What I can do, as someone who has developed many, many allergies over the years, is suggest contacting the CEO of the company from where you made your purchase. My PHD mother in law made it her life's work after she retired! You cannot imagine the responses she received.

She made phone calls, sent emails, but always followed up with a letter, thus leaving a paper trail of her actions. She also researched to death the side effects of certain medications. She didn't have allergies, but I certainly did. And still do. Latex and silicone happen to be two of the ones that make me break out

Please let me know how your search turns out. I wonder if a sleep specialist could order a new study for you, since the old one is too big anyway? And Congratulations on the weight loss! Don't give up. We are here for you.

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The company has quite a bad reputation. I think I also left out how physically sick I have been since February. The company has such poor ratings but our Medicare and Tricare for Life medical coverage provides the worst medical equipment suppliers. They have pages of horrific ratings and lost a huge lawsuit against them in another state. I am trying to see if I should leave my Pulmonary/Critical Care doctor and seek help at the Mayo Clinic for MAC.

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@macjane

The company has quite a bad reputation. I think I also left out how physically sick I have been since February. The company has such poor ratings but our Medicare and Tricare for Life medical coverage provides the worst medical equipment suppliers. They have pages of horrific ratings and lost a huge lawsuit against them in another state. I am trying to see if I should leave my Pulmonary/Critical Care doctor and seek help at the Mayo Clinic for MAC.

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Hi,@macjane, oh my goodness, isn't insurance one of worst/best two edged swords of the century?

May I ask, did your PCP order from this company for you? And this is the only company insurance will deal with?

I'm with you. Mayo Clinic all the way. Good luck and Godspeed!

Mamacita

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Hi. I am new to using a CPAP machine and I came across this site when googling how to tell if you have a skin allergy to your CPAP mask. I just started using a ResMed Air Fit F20 mask about a month ago. I have noticed that I wake up with strap marks each morning. That is annoying, but not as bad as the other problem I've started noticing. I keep waking up with tiny bumps in the general vicinity of the air mask. I thought they were pimples, but this morning I have a bump on my right cheek that itches like the Dickens and appears to be fluid filled, but not a pimple. I don't think it is a matter of keeping the mask clean as I have been pretty diligent in cleaning it. I do have extremely sensitive skin. What can I do?

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@larkspur725

Hi. I am new to using a CPAP machine and I came across this site when googling how to tell if you have a skin allergy to your CPAP mask. I just started using a ResMed Air Fit F20 mask about a month ago. I have noticed that I wake up with strap marks each morning. That is annoying, but not as bad as the other problem I've started noticing. I keep waking up with tiny bumps in the general vicinity of the air mask. I thought they were pimples, but this morning I have a bump on my right cheek that itches like the Dickens and appears to be fluid filled, but not a pimple. I don't think it is a matter of keeping the mask clean as I have been pretty diligent in cleaning it. I do have extremely sensitive skin. What can I do?

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Hello, @larkspur725. Welcome to Mayo Clinic Connect. May I suggest that if you click on VIEW & REPLY in your email notification, you will see the whole discussion and can join in, meet, and participate with other members talking about their or their loved ones' experiences.

Sounds like the tiny bumps and their itching are challenging.

Hoping that members like @mamacita @macjane @tinybeads2004 @rooster53 @steventomer @techi and others in this discussion on CPAP and allergy may have some input for you on these bumps developing in the vicinity of the mask. I'd also like to invite @johnbishop and @thankful to join in for their thoughts.

Has you doctor who prescribed the CPAP about these bumps weighed in about what may be causing this problem, @larkspur725?

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@larkspur725

Hi. I am new to using a CPAP machine and I came across this site when googling how to tell if you have a skin allergy to your CPAP mask. I just started using a ResMed Air Fit F20 mask about a month ago. I have noticed that I wake up with strap marks each morning. That is annoying, but not as bad as the other problem I've started noticing. I keep waking up with tiny bumps in the general vicinity of the air mask. I thought they were pimples, but this morning I have a bump on my right cheek that itches like the Dickens and appears to be fluid filled, but not a pimple. I don't think it is a matter of keeping the mask clean as I have been pretty diligent in cleaning it. I do have extremely sensitive skin. What can I do?

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My wife somewhat continuously had perioral dermatitis (literally inflammation of skin around the mouth) until she changed her mask to a cloth mask. This appeared as raised bumps. Hers wasn't itchy, but any allergic response certainly could be.

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@larkspur725

Hi. I am new to using a CPAP machine and I came across this site when googling how to tell if you have a skin allergy to your CPAP mask. I just started using a ResMed Air Fit F20 mask about a month ago. I have noticed that I wake up with strap marks each morning. That is annoying, but not as bad as the other problem I've started noticing. I keep waking up with tiny bumps in the general vicinity of the air mask. I thought they were pimples, but this morning I have a bump on my right cheek that itches like the Dickens and appears to be fluid filled, but not a pimple. I don't think it is a matter of keeping the mask clean as I have been pretty diligent in cleaning it. I do have extremely sensitive skin. What can I do?

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Hello @larkspur725, With all of my previous masks I had the CPAP nose – big sore spot on the bridge. It wasn't an allergy which I know some people have. I recently switched to the ResMed AirTouch F20 mask which has memory foam edges and is quite comfortable and took care of my sore nose. When I switched the medical store gave me a sample AirFit F20 mask because they use the same frame and headgear and I wasn't sure about the memory foam mask because I've read they only last about a month. The lady at the store said she wipes hers every day with a CPAP wipe since you cannot wash the memory foam mask with soap and water as it destroys the foam. So I faithfully wiped mine with a non alcohol CPAP wipe each morning and put it in the SoClean machine to sanitize it. That was a little over a month ago. The AirTouch mask was pretty awesome for about 3 weeks and I noticed my AHI number getting a little higher so I decided to test my AirFit F20. I had purchased a CPAP full face mask comfort cover which keeps the silicon off of my face and nose and it has been as good if not better than the AirTouch F20 mask. It has been a week wearing it so I washed it in cold water this morning and dried it off and will use the backup comfort cover this evening and for the next week and keep rotating it that way. They sell 2 to a package for $35 – spendy but not bad if they last for 6 months or so by hand washing. They are made of a soft knitted material in the USA. Here's a link to the company that sells them:

https://cpapcomfortcover.com/

So I would try a mask cover to see if it helps. The memory foam is also a good choice but I was just not sure about how long they last.

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I am also having a terrible time with the nose piece. The inside of my nose is raw, they told me to put hemmororid cream in my nose but I don’t know how much longer I can take it. Is there anyone who makes them out of something else?…

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