COPD and Emphysema: Want to connect with others

Posted by redsox @redsox, May 29, 2018

Confused by PFT so much to absorb ! What are the treatments for Mild, Moderate and Severe .

@joelars– That's a great question. I'm glad that you are going to see an allergist this month. I do not have asthma and don't know a lot about it. But it is treatable. There are several different forms of asthma: https://acaai.org/asthma/types-asthma.
Is your inhaler a rescue inhaler or one that you use regularly, or at least prior to exercising? My first, now retired pulmonologist, told me to use my inhaler (pro-air) prior to exercising.

You might have already been tested for Asthma, however there are differences in testing equipment, so make sure that you have the full monty. Takes about an hour, it also includes blood work, standing and sitting positions too.
https://my.clevelandclinic.org/health/diagnostics/8958-asthma-testing–diagnosis/test-details
The two most common lung function tests used to diagnose asthma are spirometry, exhaled nitric oxide and challenge tests. Spirometry — This is a simple breathing test that measures how much and how fast you can blow air out of your lungs. It is often used to determine the amount of airway obstruction you have.The two most common lung function tests used to diagnose asthma are spirometry, exhaled nitric oxide and challenge tests. Spirometry — This is a simple breathing test that measures how much and how fast you can blow air out of your lungs. It is often used to determine the amount of airway obstruction you have.
https://my.clevelandclinic.org/health/diagnostics/8958-asthma-testing–diagnosis/test-details

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@fracturedd

Try going to a "salt cave"

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@fractured Have heard of salt caves.There are such things, but will look up where they might be. Interesting…….

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@merpreb

@marczappa– Hello, after a year, how are you doing? There is a new inhaler which combine at least 2 of your inhalers and possibly the third. Everyone that I have spoken to who has been switched to it has seen positive results. It's called Trelegy. I can't rave about it enough!

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well i had a dumb attack over stress in my life and smoked awhile. quit again 5 weeks ago . but now i am having more problems with shortness of breath. Have been seeing primary DR as well as pulmonary who prescribed the Symbacort and Spirivia. As my oxygen levels seem to stay in the 90's my primary has suggested perhaps it is co2 not being expelled properly . He has contacted the pulmonary to ask about a blood test for that ( I think ) Merry did I get put on a list to be informed of any tests. Was it you I spoke on phone with way back?

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@marczappa– I'm sorry that you are having these problems right now. We haven't spoken on the phone. SOB is very common with people who have smoked. Have you had any breathing tests done as yet? You might have COPD and emphysema from smoking. How long did you smoke?

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yes I have been treated for years now. Thought you were the moderator who I have spoken with Thanks

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@marczappa– I'm a Mentor, but no problem at all. Good luck with your blood work!

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@merpreb I don't think it is a rescue inhaler. It is a use as needed but no more than 3 (or 4) times a day inhaler. And I usually use it after my weight training and just before my run.

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@joelars

@merpreb I don't think it is a rescue inhaler. It is a use as needed but no more than 3 (or 4) times a day inhaler. And I usually use it after my weight training and just before my run.

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@joelars– those are the directions on my rescue inhaler. You should read more info about it or ask your Dr or pharmacist. Ok?

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@merpreb that is what the docs and the pharmacist told me. Maybe the non medical term is "rescue" inhaler. As long as it's used properly what difference does it make? I just know it is the only one they want me to have. I just saw the pulmonary doc last week. I asked about new, additional or more effective inhalers he told me there were none, at least for me. That is the same inhaler they gave me 13 years ago, but I'm not complaining. My answer is not a palliative remedy (unless it is end of life-then I want generous access to fentanyl) it is my efforts at rehab-that's all I've got, unless they devise a break-through procedure that reverses the small airway damage.

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@joelars

@merpreb that is what the docs and the pharmacist told me. Maybe the non medical term is "rescue" inhaler. As long as it's used properly what difference does it make? I just know it is the only one they want me to have. I just saw the pulmonary doc last week. I asked about new, additional or more effective inhalers he told me there were none, at least for me. That is the same inhaler they gave me 13 years ago, but I'm not complaining. My answer is not a palliative remedy (unless it is end of life-then I want generous access to fentanyl) it is my efforts at rehab-that's all I've got, unless they devise a break-through procedure that reverses the small airway damage.

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@joelars and @merpreb, sounds like you both are using your inhalers as directed and with exercising. I believe you're both on the same page.

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@joelars

@merpreb that is what the docs and the pharmacist told me. Maybe the non medical term is "rescue" inhaler. As long as it's used properly what difference does it make? I just know it is the only one they want me to have. I just saw the pulmonary doc last week. I asked about new, additional or more effective inhalers he told me there were none, at least for me. That is the same inhaler they gave me 13 years ago, but I'm not complaining. My answer is not a palliative remedy (unless it is end of life-then I want generous access to fentanyl) it is my efforts at rehab-that's all I've got, unless they devise a break-through procedure that reverses the small airway damage.

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@joelars– It doesn't make any difference what name it is called, you are right. I wasn't trying to argue. It looks like you are on your way to knowing what is next, with your appointment coming up. I hope that it makes your life easier knowing what is going on until there is a breakthrough. Please come back and let us know what the new Pulmonary dr. says. Will you?

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@merpreb Hi,
no problem-even if you were arguing. I see an allergist next Monday. I don't see the pulmonary guy until next year-and if it was his choice it wouldn't be that soon.

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