COPD and Emphysema: Want to connect with others

Posted by redsox @redsox, May 29, 2018

Confused by PFT so much to absorb ! What are the treatments for Mild, Moderate and Severe .

Liked by debbmol62

@joelars – What a great question. I'm learning that anything is possible. I have been tested several times with a scratch test. It showed nothing both times but when I got home I I'd break out in hives or just itches! Have you asked your doctor?

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@mepreb as I said I didn't react to any allergens and my immune response was normal to every strain of pneumonia. the dpc said they'd call me to discuss if they found anything. They didn't find a thing, so there is nothing to discuss.

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catcatanzaro60 Hello and God Bless Everyone too! Stay Safe! I found out this year I have COPD. I have had it for years and chose to deny it. But I cannot
ignore it anymore. Quiting nicotine in cig form four years ago and exercising daily has really helped. New to this group!

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@catcatanzaro60

catcatanzaro60 Hello and God Bless Everyone too! Stay Safe! I found out this year I have COPD. I have had it for years and chose to deny it. But I cannot
ignore it anymore. Quiting nicotine in cig form four years ago and exercising daily has really helped. New to this group!

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@catcatanzaro60– Welcome to Lung Health. What finally made you get tested and out of denial?

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@merpreb

@debbmol62 – Good afternoon Deb. Boy talk about a mixed message about breathing at night! Did you them for a clarification? I feel that it's very important that you understand every bit of the results of your tests, scans and treatments because then you will know what is wrong, or right. And where to go from there. I know nothing about health insurance so I can not address that here.
However if you wouldn't mind answering a few questions for me, I will see if I can help you. I have COPD from lung cancer and smoking. I am treated with inhalers. What treatments in the past have you had for COPD? Which kind of doctor has been treating you? When did you begin to have problems?

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Hi. I need some help. I take 120mg lasix at 08h00 and again at 14h00. I'm far from docters how do i know how much liquid is still in my lungs and is it safe to nubelize with saline for 20min one hour before bedtime. Can someone please advise.
Thanking you.
Erasmus in South Africa.

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Erasmus, I have no advice regarding the lasix, I take it, but not in that dosage. I suspect that your comfort level will give you a strong hint regarding the amount of liquid remaining in your lungs.
Regarding the use of the "nubelize" since it is generally designed to loosen the build up in the lungs so that you can relieve your self, use it as often as you feel the need/discomfort. I don't believe that there is no downside in its use. When in distress, I use it four times a day.
Can't you visit with your doctor via a tele-visit or a telephone?
Feel better.

Liked by Chloe Liu

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@erasmus

Hi. I need some help. I take 120mg lasix at 08h00 and again at 14h00. I'm far from docters how do i know how much liquid is still in my lungs and is it safe to nubelize with saline for 20min one hour before bedtime. Can someone please advise.
Thanking you.
Erasmus in South Africa.

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@erasmus– Welcome to America and Mayo Clinic Connect. It must be scary and frustrating to be so far from medical help. We are not doctors or medical professionals We are patients helping other patients with similar difficulties. We can't give you any medical advice. I suggest that you might call your pharmacy with questions regarding dosages. Also perhaps, see if you can call and speak with your doctor.
Here is an explanation regarding nebulizers.
Nebulizer treatment works by atomizing liquid medicine into an inhalable gas form, which can then be easily breathed in by the patient as they wear a nebulizer mask. Nebulizer medicine also dissipates into the lungs faster, so it can enter the bloodstream more quickly to provide relief as fast as possible. So in short, your nebulizer is a delivery system for medicine that was prescribed for your problem. Are you experiencing more discomfort, pain or difficulty breathing? Do you think that liquid has filled your lungs out more since your last procedure?

Liked by Chloe Liu

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I would't classify saline solution as a medication, although it is designed to ease certain issues.
I use it twice daily for sinus congestion. I use the nebulizer for my asthma, it contains prescribed medication along with a rescue inhaler.
i don't recommend asking a pharmacist for dosage advise, etc. They are great for recognizing drug interactions, etc. Doctors and pharmacists both have a significant place in or medical care.

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Where are my COPD people? Are you here?

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@janrn1

Where are my COPD people? Are you here?

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Hi @janrn1, you'll notice that I moved your message to an active discussion where you'll meet others living with COPD like @catcatanzaro60 @fracturedd @marczappa @bb729 @jgpolachek @mrbill @sews and more.

Jan, tell us more about you. How long have you been living with COPD? Are you currently on oxygen? What does life look like for you these days?

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@janrn1

Where are my COPD people? Are you here?

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@janrn1– Good morning Jan. I also have COPD and emphysema caused by smoking. Unfortunately, I also have stage 4 lung cancer from it. I hear that you are feeling pretty lousy. I know that it takes a while for some bacteria to grow. Have any of your doctors suggested how you can feel better while you wait?

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@janrn1

Where are my COPD people? Are you here?

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Been living with COPD for past 10 years. Last January ended up in ER unable to breath. Spent few days in hospital. After back home for a couple days and back to ER, then ICU. Found out I had Pneumonia and flu along with the COPD. Make a long story short I was between rehab and hospital several times. Didn't get back home for 3 1/2 months. On oxygen when I came home. We went for a ride up in the NY dutch country (about 20 miles) I took my portable tank with me, but did not wear it. For four hours my oximeter reading stayed between 92 – 97. Used oxygen off and on back home and at night. O2 readings still good. Finally a few weeks ago I did not use any oxygen and reading between 92 – 98. I guess for someone with severe COPD I can count my blessings. I don't know if they tested me for COVID, but I would like to find out. I know when I woke up in ICU i was intubated and my hands tied down. Tried to communicate with wife and three daughters by pointing to letters on special card. Not a chance.
I just am grateful to be home and improving. Oh ya, throw in two plural effusions. Each time removing a large family soda bottle of liquid. Then toss in a GI bleed and 4 bags of blood because I was not getting food with prednisone. The had to go in and weld that leak shut. Time to stop complaining. Thought it might help others going thru similar issues.

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@colleenyoung

Hi @janrn1, you'll notice that I moved your message to an active discussion where you'll meet others living with COPD like @catcatanzaro60 @fracturedd @marczappa @bb729 @jgpolachek @mrbill @sews and more.

Jan, tell us more about you. How long have you been living with COPD? Are you currently on oxygen? What does life look like for you these days?

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I was diagnosed in August 2015 while hospitalized. I have extremely severe emphysema and am waiting for other test results. I am feeling lousy and think I have at least 1 Dr who is listening to me. After many ct scans, 1 with contrast and 1 without I am clear for Pneumonia and a Pulmonary Emboli. I just started Augmentin, prednisone 15 mg, and budesonide through a nebulizer. I am grateful to be here with you all. Thanks, Jan

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@merpreb

@erasmus– Welcome to America and Mayo Clinic Connect. It must be scary and frustrating to be so far from medical help. We are not doctors or medical professionals We are patients helping other patients with similar difficulties. We can't give you any medical advice. I suggest that you might call your pharmacy with questions regarding dosages. Also perhaps, see if you can call and speak with your doctor.
Here is an explanation regarding nebulizers.
Nebulizer treatment works by atomizing liquid medicine into an inhalable gas form, which can then be easily breathed in by the patient as they wear a nebulizer mask. Nebulizer medicine also dissipates into the lungs faster, so it can enter the bloodstream more quickly to provide relief as fast as possible. So in short, your nebulizer is a delivery system for medicine that was prescribed for your problem. Are you experiencing more discomfort, pain or difficulty breathing? Do you think that liquid has filled your lungs out more since your last procedure?

Jump to this post

Hi Merry, I am experiencing sob after my nebulizing treatment with budesonide This is a new medication for me and I also started on 15 mg od Prednisone. Could it be to much? Just looking for someone who shares this experience..

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Hi Jan,
Glad you are here as well. Has the Budesonide had any affect on your blood pressure or heart rate? I had sob after nebulizer treatment. Is was in rehab center when it happened. I just sat quietly for awhile taking deep breaths and it did go away. Once they loaded me in ambulance and carted me from rehab to hospital. That's when they found buildup of liquid and had to drain it. I finally told them we should try nebulizer treatment as needed. That seemed to help me. Now I just use rescue inhaler when needed. Which is maybe once a week.
Keep up the fight & Best Wishes,
Mr. Bill

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