Celiac Artery Aneurysm

Posted by Jen @jurney01, Jul 23, 2016

Hello! I was recently diagnosis with a celiac artery aneurysm in June 2016. I underwent a embolization w/ coils procedure since the aneurysm had grown while in the hospital. I was trying to reach out to someone who suffered the same illness but have not been lucky. I would like to locate someone with my same illness. I would appreciate any help. Thank you

@onemind711

No, he only said the pain might be the aneurysm. I have a fatty liver, thats why I thought it might be the culprit. But its definately a pain i experience often. Its not bad, more dull achy. It is a very odd unique pain. Its not debilitating just odd.

Jump to this post

Thank you!
I'm confused for myself as only on one test did it say I have a fatty liver… Which was ultrasound and not on any CT scan. So weird my doctor who did say I had fatty liver said it wouldn't cause osin. Seems like way too many differing opinions that the doctors give out. My supposed fatty liver is non alcoholic. I say supposed ss the gastroenterologist said if the CT scan didn't see that I don't have it.

REPLY
@dollylinda

Thank you!
I'm confused for myself as only on one test did it say I have a fatty liver… Which was ultrasound and not on any CT scan. So weird my doctor who did say I had fatty liver said it wouldn't cause osin. Seems like way too many differing opinions that the doctors give out. My supposed fatty liver is non alcoholic. I say supposed ss the gastroenterologist said if the CT scan didn't see that I don't have it.

Jump to this post

Its all abstract to Doctors , they only practice medicine, none of them really know. Since these aneurysms are so rare and there is no data, there's nothing they can really be certain that I suppose

REPLY

I was told by my vascular surgeon that the pain under my right ribs and into my right shoulder blade could be referred pain from the liver, possibly due to a small embolism from the celiac aneurysm to the liver. He is concerned about that for me because I have already had one aneurysm to my spleen causing a splenic infarct. (This is not common.) I will have a CT scan this week to see if my liver has any signs of an infarct. He took the symptoms related to the pain in my right side seriously. If it is, I will post to you all again this weekend. I am hoping it is nothing. (Also for me, the pain in my right ribs and shoulder blade occurred last summer and I told my vascular surgeon about it when I saw him recently. Even though I am fine now, he took what I said about the right side pain seriously.)

REPLY
@marylisa

I was told by my vascular surgeon that the pain under my right ribs and into my right shoulder blade could be referred pain from the liver, possibly due to a small embolism from the celiac aneurysm to the liver. He is concerned about that for me because I have already had one aneurysm to my spleen causing a splenic infarct. (This is not common.) I will have a CT scan this week to see if my liver has any signs of an infarct. He took the symptoms related to the pain in my right side seriously. If it is, I will post to you all again this weekend. I am hoping it is nothing. (Also for me, the pain in my right ribs and shoulder blade occurred last summer and I told my vascular surgeon about it when I saw him recently. Even though I am fine now, he took what I said about the right side pain seriously.)

Jump to this post

Thank you for the information.
I had 2 CT scans one a little over a year ago and one 2 years ago. Mine were fine so am hoping yours will be fine too but please let me know what they find. The area of pain is the same as mine.
My pain was pretty much 24/7 for about 4 years. I still have it but its not quite as bad. Mine also hurts in my right waist area.
I do not live by any big hospital. Am wondering if you live close to major hospital as it sounds to me as though you are getting quality care and are being listened to.

REPLY

I once was told by a dr in a larger city I am the doctor. I told him but I know my body and want to tell you what I am experiencing. I gave him my notes and just gave it back to me and went out the door. There is so much patient abuse. You have to spend thousands of dollars to find the one doctor that will listen, sad! I sometimes think smaller towns have better doctors because they aren’t over worked. A nurse told me book your appointments with a physicians assistant because they get scheduled for 30-45 minutes and a MD gets 15 minutes lots and if he is running late you may get 10 or 5 minutes.

REPLY
@helenannmarie55

I once was told by a dr in a larger city I am the doctor. I told him but I know my body and want to tell you what I am experiencing. I gave him my notes and just gave it back to me and went out the door. There is so much patient abuse. You have to spend thousands of dollars to find the one doctor that will listen, sad! I sometimes think smaller towns have better doctors because they aren’t over worked. A nurse told me book your appointments with a physicians assistant because they get scheduled for 30-45 minutes and a MD gets 15 minutes lots and if he is running late you may get 10 or 5 minutes.

Jump to this post

Yeah that can happen. I have a really nice surgeon he’s younger and he’s friendly and walks around with his big cuppa coffee from the convenient store and sits on the windowsill in your room and talke to you like a friend

REPLY
@maryswims

Yeah that can happen. I have a really nice surgeon he’s younger and he’s friendly and walks around with his big cuppa coffee from the convenient store and sits on the windowsill in your room and talke to you like a friend

Jump to this post

I kind of like that!

REPLY

I was diagnosed in July 2017. I had gone to the ER thinking I had an inner ear infection. Was sent to,a larger hospital where a vascular surgeon confirmed it. He said it was just shy of being big enough to operate.
I have consistent pain in my left side under my rib. No one can find what is wrong. Causes pain and nausea. I do not have insurance and after 2 trips to the ER this weekend I was sent home with Zofran and Bentyl. Helps with nausea but not the pain. They suggested I go to a gastro doc to have a scope but with no insurance I can’t afford it.
I will just withno reason start throwing up. Does anyone else have anything like this happen? I know it’s no related to my aneurysm. Just so tired of not finding any help. I have a history of diverticulitis but the CT scan at the ER doesn’t show anything.

REPLY
@ritaself

I was diagnosed in July 2017. I had gone to the ER thinking I had an inner ear infection. Was sent to,a larger hospital where a vascular surgeon confirmed it. He said it was just shy of being big enough to operate.
I have consistent pain in my left side under my rib. No one can find what is wrong. Causes pain and nausea. I do not have insurance and after 2 trips to the ER this weekend I was sent home with Zofran and Bentyl. Helps with nausea but not the pain. They suggested I go to a gastro doc to have a scope but with no insurance I can’t afford it.
I will just withno reason start throwing up. Does anyone else have anything like this happen? I know it’s no related to my aneurysm. Just so tired of not finding any help. I have a history of diverticulitis but the CT scan at the ER doesn’t show anything.

Jump to this post

Sorry to hear that. I have had a recent bout with GI issues which I am told is not related. Others have had similar issues as well as rib cage pain , liver problems and one in this group has been instructed to avoid lifting anything over 20 pounds. Empirically it appears that there is some relationship between these issues and celiac aneurysms

REPLY

virtually all of us are in a monitoring phase as the risk of repair is greater than the risk of waiting and monitoring until the aneurysm reaches 1.4cm or greater.

REPLY

I am in a wait and monitor mode at this point. Have things gone well for you since your procedure? Where was the procedure performed?

REPLY

I have not had any procedures done. The ER just sends me home. I tell them about the aneurysm but they just act as if no big deal. If I understand there are no symptoms of the aneurysm.
Dr. Lee is a vascular surgeon at Centinnial Hospital in Nashville and has performed the surgery. Mine is too small to repair.

REPLY
@codonpatrick

virtually all of us are in a monitoring phase as the risk of repair is greater than the risk of waiting and monitoring until the aneurysm reaches 1.4cm or greater.

Jump to this post

Mine is only 11 mm, which is much smaller than 1.4 cm. However, the vascular surgeon says if it gets any larger at all, I will need surgery. I asked him if he has ever performed this kind of operation, & he said "no". So I have another CT in 6 months, & if it is any larger, I'm gonna look into UT Southwestern in Dallas.They have a lot of vascular surgeons there, & maybe one of them has performed this operation. Dallas is 3 hrs away, & I've been there several times to a GI doc, & she and everyone else we came into contact with UTSW were all just amazing!

REPLY
@txkathy

Mine is only 11 mm, which is much smaller than 1.4 cm. However, the vascular surgeon says if it gets any larger at all, I will need surgery. I asked him if he has ever performed this kind of operation, & he said "no". So I have another CT in 6 months, & if it is any larger, I'm gonna look into UT Southwestern in Dallas.They have a lot of vascular surgeons there, & maybe one of them has performed this operation. Dallas is 3 hrs away, & I've been there several times to a GI doc, & she and everyone else we came into contact with UTSW were all just amazing!

Jump to this post

I saw my vascular surgeon yesterday. My celiac aneurysm is at 1.3 mm. Slightly larger from 1.24 cm. Will check again in 6 months. She says if it got to be 1.5 cm they would start to talk about repair. I wish I had never known it was there. Good luck with finding a good doctor. From my research, the celiac aneurysm is much more difficult to repair because of all the veins coming off of it. I will try to tune it out for six months and forget about it.

REPLY

Thanks for your input and I completely understand why you wish you had never learned that you had the aneurysm. Wait and monitor can cause a bit of anxiety but from everything I have studied the likelihood of rupture is small at this point.

REPLY
Please login or register to post a reply.