Celiac Artery Aneurysm

Posted by Jen @jurney01, Jul 23, 2016

Hello! I was recently diagnosis with a celiac artery aneurysm in June 2016. I underwent a embolization w/ coils procedure since the aneurysm had grown while in the hospital. I was trying to reach out to someone who suffered the same illness but have not been lucky. I would like to locate someone with my same illness. I would appreciate any help. Thank you

@dougf

Mine was 1.2 and I thought as you are that I should get it repaired. They basically refused to do it. they said the surgery is too risky for the benefit. It's been 1.5 years since first discovery and it has self healed some. Now just a yearly CT scan for me. Good luck but be prepared that they may not do the surgery.

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Thanks for the info. I see the vascular surgeon on Thursday. I'll post an update then.

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@txkathy

Thanks for the info. I see the vascular surgeon on Thursday. I'll post an update then.

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Hi @txkathy . I'm in Texas also. My celiac aneurysm was 1.25 6 months ago. Getting checked again in a few days. I was wondering who your vascular Dr was.?? I go to Vanguard in Rowlett. DR. Rose An.

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Hi, im wondering if any of you guys/gals have any issues with the anurisym going into the hepatic artery? The Celiac artery anurisym that shows up of mine is 1.4 cm Also liver enzymes irregular and told fatty liver, but i dont drink or do drugs? I have a twitchy pain at times and am pretty fatigued or lazy a lot.

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I have fatty liver also. Can get lightheaded but not tired. I have lots if right rib pain, do you?

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Randomly, i do. Not all the time.

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I don't understand why they say this is so rare but it seems like a lot of people have been diagnosed with celiac artery aneurysms. UMMMMMM!!!!!

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Do you think it is considered rare because little is really known? It seems to me many people have it. I think of the many many people that have it and it is not diagnosed yet. I suffered from age 15-50 with no true diagnosis.

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When I was diagnosed 10 years ago The vascular doctor that was highly recommended told He it is a very expensive surgery and it would be a 50 50 chance it would work. I talked to a friend that was a nurse in our hospital with vascular for many years. I was referred to the Chief Of staff that was in vascular for over 30 years. He told me if you were my wife I would say don’t touch it leave it alone. I belong to another Facebook group for MALS and it seems surgeries haven’t been working and also found out that people have 3-4 surgeries. There are some people that are glad they had surgery. I would highly recommend to join that Facebook group that is where I learned the most. Iwasn’t Diagnosed until I was 50 maybe if I would of been diagnosed at an earlier age I would of tried surgery. I would caution you to really educate yourself and choose a surgeon wisely or things could become worse. I hope you find the answers you need. God bless you and your family!

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I'm now having constant pain discomfort like right below my ribs feel swollen also my lower back hurts. I called the hospital and they say its some exoskeleton muscle pain. Sounds like bs to me. Before this I rode a bike 11 miles a day lifted items with one other person from 100 to 400 lbs for 5 to 9 hrs a day.and was never in pain. When I left the hospital it was at 1.7 cm ive been calling for 2 days for a follow up apt leaving messages and get nothing back. Its almost like theyre waiting for this to break before they do anything. This pain discomfort didnt start until I started feeling this swelling in my lower chest area. I'm not a dr but I know me and this isnt right
Also I'm tired all the time now

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Has anyone had their doctor discuss embolization? I had coils placed over mine. Its was an evasive procedure. Through groin main artery. I also have blood work done every 6 months to monitor my liver and ct scan annually.

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I was diagnosed with a celiac aneurysm a couple of years ago. It is about 1.2 cm in size so I am having it monitored. I have been told that surgery is an option if and when it grows to 1.4cm. From what I have been told by doctors and reading about the condition there isn't anything to do but have surgery when the aneurysm reaches a certain size. I welcome comments and thoughts from anyone else with this condition.

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@txkathy

Thanks for the info. I see the vascular surgeon on Thursday. I'll post an update then.

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I look forward to reading your update.

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@randy1950

Hi @txkathy . I'm in Texas also. My celiac aneurysm was 1.25 6 months ago. Getting checked again in a few days. I was wondering who your vascular Dr was.?? I go to Vanguard in Rowlett. DR. Rose An.

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I live in North Central TX on the OK border by Wichita Falls. I am seeing the only Vascular Surgeon near by (Dr. Mohamad), but am considering going to UT Southwestern in Dallas. It's 3 hours away, but far more advanced than we are here.

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Has anyone ever had an aneurysm rupture or ever heard of anyone that did?

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@txkathy

I live in North Central TX on the OK border by Wichita Falls. I am seeing the only Vascular Surgeon near by (Dr. Mohamad), but am considering going to UT Southwestern in Dallas. It's 3 hours away, but far more advanced than we are here.

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@txkathy Good luck. They say the Celiac aneurysm is not as common as an aortic. So finding someone in Dallas may be difficult as well. At least someone that has operated on one before. I have considered going to Mayo, but that is a long way.

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