Celiac Artery Aneurysm: Anyone else with same illness?

Posted by Jen @jurney01, Jul 23, 2016

Hello! I was recently diagnosis with a celiac artery aneurysm in June 2016. I underwent a embolization w/ coils procedure since the aneurysm had grown while in the hospital. I was trying to reach out to someone who suffered the same illness but have not been lucky. I would like to locate someone with my same illness. I would appreciate any help. Thank you

Interested in more discussions like this? Go to the Aortic Aneurysms Support Group.

@randy1950

Why would your doctor wait? You have already had issues from it. My celiac aneurysm is 1.25 mm. 1.5mm and they operate. I am wanting to do it now while I’m healthy. Don’t get the waiting.

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Yes I wonder why they wait also mine is 1.2 but they said it had to be 2
It’s scary wondering if it’s growing

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I had a CT due to kidney stones last week. They found a 3.2CM by 3.6CM celiac artery aneurysm. Who do you contact in the Mayo system to inquire about sending scans for evaluation?

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Hi. I was diagnosed at 50 with a aneurysm of the celiac artery. Luckily, I haven't had to have surgery as it hasn't grown to a size that requires it. There is not many people that have this. It is very rare. My doctor says there is no reason for me to have such a thing! Well, it happened and I prayer it doesnt get bigger. I hope you are doing OK after your surgery!

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Hi @catbaker and welcome to Connect! You must be so grateful that surgery isn't necessary at this time.

I wanted to introduce you to fellow connect members @randy1950 @janet26 and @marylisa as they all have celiac artery aneurysms and you all may be able to provide support to one another.

Back to you @catbaker, what size is your aneurysm at this time?

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@rob1962

I had a CT due to kidney stones last week. They found a 3.2CM by 3.6CM celiac artery aneurysm. Who do you contact in the Mayo system to inquire about sending scans for evaluation?

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Hi @rob1962 and welcome to Connect. I apologize that your post wasn't seen sooner.

To answer your question, the best way to inquire about sending scans for evaluation at Mayo would be to call the number of the nearest Mayo Clinic location. You can find those phone numbers at this link: http://mayocl.in/1mtmR63

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I've posted previously. In Oct of 2017, I was diagnosed with a celiac aneurysm. Originally it was 1.2 and 6 months later was 1.3 and they considered that nothing and probably just the measurer who measured it. I have lots of right rib pain but they say it's not related. So I've gone to a pain specialist and am getting nerve blocks to see if that helps because I have a bad back also. Helped some but still have the scary pain under the top right part of rib by the chest. I'm to go back in a few months to the vascular surgeon. I try to not think about it. I'll keep you updated. My MRI's of my thoracic and lumbar showed nothing. That's good but you'd think since it's by my back it would show up. Does anyone have this sort of unexplained pain?

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@dollylinda

I've posted previously. In Oct of 2017, I was diagnosed with a celiac aneurysm. Originally it was 1.2 and 6 months later was 1.3 and they considered that nothing and probably just the measurer who measured it. I have lots of right rib pain but they say it's not related. So I've gone to a pain specialist and am getting nerve blocks to see if that helps because I have a bad back also. Helped some but still have the scary pain under the top right part of rib by the chest. I'm to go back in a few months to the vascular surgeon. I try to not think about it. I'll keep you updated. My MRI's of my thoracic and lumbar showed nothing. That's good but you'd think since it's by my back it would show up. Does anyone have this sort of unexplained pain?

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My aneurysm is also 1.3. Last summer I had a lot of pain in my right ribs up into my shoulder for several weeks. It passed after a while. I went to see my internist when I had the pain last summer. He is wonderful but he ordered the wrong kind of CT scan and it looked good. I should have gone to my Vascular surgeon. I went to my vascular surgeon for my annual check a couple of weeks ago and he is concerned that this the right side is pain connected to my liver. I had a splenic infarction in 2017 that was caused by a embolism from my celiac aneurysm. He is concerned that I may have had another small infarction to my liver. I am getting a CT scan in a couple of weeks then will meet with him again. I am hoping it is nothing. He noted that right sided pain can be your liver and should be taken very seriously for people who have a celiac aneurysm. For a small aneurysm he says you just watch it. But if I am having more clots that can affect other organs then we will have to consider surgery even though it is small. I can live without my spleen but not without my liver. I hope you see your vascular surgeon soon. Like I said, I should have gone to my Vascular surgeon last summer but on a positive note, I am dealing with it now. If you want I can keep you posted on what I find out.

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It's been 2 years since diagnosed with 1.2 aneurysm. Just received my annual CT scan recheck and all is good. No growth. Luckily no other symptoms for this very rare condition. It's difficult at times not to think about it but I can't do anything about it anyway so just need to wait and watch.

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@marylisa

My aneurysm is also 1.3. Last summer I had a lot of pain in my right ribs up into my shoulder for several weeks. It passed after a while. I went to see my internist when I had the pain last summer. He is wonderful but he ordered the wrong kind of CT scan and it looked good. I should have gone to my Vascular surgeon. I went to my vascular surgeon for my annual check a couple of weeks ago and he is concerned that this the right side is pain connected to my liver. I had a splenic infarction in 2017 that was caused by a embolism from my celiac aneurysm. He is concerned that I may have had another small infarction to my liver. I am getting a CT scan in a couple of weeks then will meet with him again. I am hoping it is nothing. He noted that right sided pain can be your liver and should be taken very seriously for people who have a celiac aneurysm. For a small aneurysm he says you just watch it. But if I am having more clots that can affect other organs then we will have to consider surgery even though it is small. I can live without my spleen but not without my liver. I hope you see your vascular surgeon soon. Like I said, I should have gone to my Vascular surgeon last summer but on a positive note, I am dealing with it now. If you want I can keep you posted on what I find out.

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I have had my liver thoroughly checked out and all my other organs because its a bad place to have chronic pain. The tests showed nothing. My blood tests are good also but I will bring it up again when I see the vascular surgeon. Thanks for your response. Also, my pain use to be worse so I take that as a good sign. And I think I'll try to get an appointment at an internist.

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I have been diagnosed with a celiac artery aneurysm. I had a stent put it my celiac artery 3 weeks ago. I have a lot of genetic testing and everything came back negative. My artery is thinning and I am worried about long term effects. How are you feeling? I feel so much better since I received the stent. I did have complications from the surgery my bronchial artery ruptured and I had to have emergency surgery to repair it. I would like to follow up with a specialist to find out why this happened to my celiac artery.

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