Caregiver for spouse with MCI (Mild cognitive impairment)

Posted by birdhouseclosed @birdhouseclosed, May 23, 2018

Need help accepting this and dealing with what is to come.

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Profile picture for athena2023 @athena2023

Hi,
Where did you go to get the diagnosis of ADD? My spouse desperately needs some testing and diagnosis. Was this through a Mayo neurologist?Thank you.

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Try to share my experiences and hope it can help one way or another;
Talk nicely to your spouse and try to write the check in all details to pay the bills but ask him to co-sign at the end. This will have you asking your Banker to issue you NEW CHECKBOOK effective only if both of you signed that CHECK.
Another way:: If you have a trusted children to handle all your payments - - - so that you and your husband will turn over financial payments via this system. - - - have 3 of you go see your Banker to work out the details.
I am a caregiver myself; i often lost my cool and patience too. But I learn how to extend my "SORRY" to others!! That Help me at least!!! So, gook luck to all of you!.

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Profile picture for athena2023 @athena2023

Hi,
Where did you go to get the diagnosis of ADD? My spouse desperately needs some testing and diagnosis. Was this through a Mayo neurologist?Thank you.

Jump to this post

Me again. For going up the roof, try to tell him the agony of breaking the bones and terrible sufferings of using painkiller medicines through his life with metal pins in his legs and arms! Even you can scared him of losing his consciences and no more ability to move except in wheelchair! Learn to gentle infuse into his brain all terrible things which can occur if sliding or falling from his daring roof!. Is it hard to hire roofer to inspect or fix the problems? Why not spend money to hire the professional - - - may be he want to bring all his money into his coffin rather than given to you? Sorry no bad intention here!
As to hire a social worker. We lack tree benefits from gaining useful returns. ( Maybe our own faults ). Why not review first with your friends or relatives as to your issues or problems before deciding whether to hire social workers? Clearly Define your wants and problems first & put them in writing before taking any actions. I don't know where to get great Social workers. Sorry. Good luch in your search for obtaining a good one or a fine team. Bless be you with you. KSL.

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Profile picture for lowtltct36 @lowtltct36

Try to share my experiences and hope it can help one way or another;
Talk nicely to your spouse and try to write the check in all details to pay the bills but ask him to co-sign at the end. This will have you asking your Banker to issue you NEW CHECKBOOK effective only if both of you signed that CHECK.
Another way:: If you have a trusted children to handle all your payments - - - so that you and your husband will turn over financial payments via this system. - - - have 3 of you go see your Banker to work out the details.
I am a caregiver myself; i often lost my cool and patience too. But I learn how to extend my "SORRY" to others!! That Help me at least!!! So, gook luck to all of you!.

Jump to this post

Thanks for the idea about having one of the children write the checks. He might go for that! Bless you and hope all is well with you and yours.

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Profile picture for athena2023 @athena2023

Hi,
Where did you go to get the diagnosis of ADD? My spouse desperately needs some testing and diagnosis. Was this through a Mayo neurologist?Thank you.

Jump to this post

We need the same my husband has never been diagnosed, although he has failed a couple of questions the dr asked him.

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I'm new to this group but decided it was time to join. My husband was diagnosed with Mild Cognitive Impairment and I cried that day at the doctor's office. More so, because looking into his eyes, I realized, the life we had for so many years, would now turn and go down another path. Watching him change has been extremely difficult for me. The worst part is I'm frightened, and I'm not sure why. I just feel so alone, and I'm not sure how to shake that feeling off. Thank you for this support group and giving me a chance to introduce myself and share how I'm feeling.

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Profile picture for kjc48 @kjc48

I'm new to this group but decided it was time to join. My husband was diagnosed with Mild Cognitive Impairment and I cried that day at the doctor's office. More so, because looking into his eyes, I realized, the life we had for so many years, would now turn and go down another path. Watching him change has been extremely difficult for me. The worst part is I'm frightened, and I'm not sure why. I just feel so alone, and I'm not sure how to shake that feeling off. Thank you for this support group and giving me a chance to introduce myself and share how I'm feeling.

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@kjc48 you have every right to be fearful. Change, or the thought of it, sometimes makes everyone uncomfortable.
Did the doctor mention that MCI does NOT always lead to dementia? It’s true.

Write a gratitude list. It’s a great way to keep your thinking in the present.

Blessings

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Profile picture for athena2023 @athena2023

Hi,
Where did you go to get the diagnosis of ADD? My spouse desperately needs some testing and diagnosis. Was this through a Mayo neurologist?Thank you.

Jump to this post

@athena2023 what is ADD?

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Profile picture for kjc48 @kjc48

I'm new to this group but decided it was time to join. My husband was diagnosed with Mild Cognitive Impairment and I cried that day at the doctor's office. More so, because looking into his eyes, I realized, the life we had for so many years, would now turn and go down another path. Watching him change has been extremely difficult for me. The worst part is I'm frightened, and I'm not sure why. I just feel so alone, and I'm not sure how to shake that feeling off. Thank you for this support group and giving me a chance to introduce myself and share how I'm feeling.

Jump to this post

Those feelings of fear and loneliness are familiar to most of us. After the diagnosis, anger set in and then, depression...those feelings come and go for me. On the positive side, changes have not happened as quickly as I feared. The memory lapses have worsened over the course of a year. He doesn't have the skills of problem solving as he once did...he still is driving although I see that changing soon. there have been a couple of episodes of angry outbursts that scared me..unexpected, unreasonable. My response was not good...I got over it. Traveling is a challenge but since we are snowbirds, I need to figure it out. Each trip is different and I try to anticipate how I can make everything go more smoothly. Everyone is different...you'll hear that a million times...but for us the changes happen slower than I feared they would. We are 2 years in from the formal diagnosis, and he is still able to share in social events...difficulty following conversations... putters in his garage every day. As long as I keep things on an even keel he does ok...I avoid disagreeing on unimportant matters. Keep the peace if it is a matter of simply pointing out he is misremembering. It doesn't matter. Let it go. I am trying to prepare for the next outburst and be prepared to not react. My husband is a very mild mannered man and he never had angry outbursts so this behavior, for me, it the most difficult.

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Profile picture for scupper @scupper

Those feelings of fear and loneliness are familiar to most of us. After the diagnosis, anger set in and then, depression...those feelings come and go for me. On the positive side, changes have not happened as quickly as I feared. The memory lapses have worsened over the course of a year. He doesn't have the skills of problem solving as he once did...he still is driving although I see that changing soon. there have been a couple of episodes of angry outbursts that scared me..unexpected, unreasonable. My response was not good...I got over it. Traveling is a challenge but since we are snowbirds, I need to figure it out. Each trip is different and I try to anticipate how I can make everything go more smoothly. Everyone is different...you'll hear that a million times...but for us the changes happen slower than I feared they would. We are 2 years in from the formal diagnosis, and he is still able to share in social events...difficulty following conversations... putters in his garage every day. As long as I keep things on an even keel he does ok...I avoid disagreeing on unimportant matters. Keep the peace if it is a matter of simply pointing out he is misremembering. It doesn't matter. Let it go. I am trying to prepare for the next outburst and be prepared to not react. My husband is a very mild mannered man and he never had angry outbursts so this behavior, for me, it the most difficult.

Jump to this post

How grateful am I to get a response like this so appreciative. I haven't had the anger set in. For me it's this incredible fear, "I don't know what I don't know" and my mind, just keeps predicting the worse outcome. Which is odd since I"m usually so, so positive. Yes, the problem solving skills are an issue for my husband. Last night's disappearance where he was angrily sitting at the community pool alone and I didn't know where he was. I had to take the car out to find him. Hearing that the changes happen slower, is a positive for me to have faith, and hope, that whatever will be, will be. Keeping things on an even keel is right. And I think you are great about the disagreeing on unimportant things, I think I'm so frustrated, that I just blurt out stuff that really isn't right....My husband is very mild mannered too, I wish I could say the same for me, especially going through this. But reaching out to this group, I knew was the right thing. Thank you for you, today. Your words mean so much to me. Thank you for sharing.

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Profile picture for lowtltct36 @lowtltct36

Try to share my experiences and hope it can help one way or another;
Talk nicely to your spouse and try to write the check in all details to pay the bills but ask him to co-sign at the end. This will have you asking your Banker to issue you NEW CHECKBOOK effective only if both of you signed that CHECK.
Another way:: If you have a trusted children to handle all your payments - - - so that you and your husband will turn over financial payments via this system. - - - have 3 of you go see your Banker to work out the details.
I am a caregiver myself; i often lost my cool and patience too. But I learn how to extend my "SORRY" to others!! That Help me at least!!! So, gook luck to all of you!.

Jump to this post

Many thanks for your eMail. Lately, my wife & I have agreed to have our
daughter fully in charge of our 4 quarterly payments on our 3 routines
accounts. Time has come to let family member take the work on their hands
but talks &interacts frequently to each other on the matters. Trust & open
mind are the keys. Good years to come your way always. Bye. ksl.

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