Caregiver for spouse with MCI (Mild cognitive impairment)

Posted by birdhouseclosed @birdhouseclosed, May 23, 2018

Need help accepting this and dealing with what is to come.

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I am also having trouble wrapping my head around this diagnosis. My husband has MCI but I feel that he is using the diagnosis as an excuse to not remember things. He is saying things like "You may tell something but I will probably forget it". It feels like a losing battle!! Yet he can come home from golf and tell my every shot he had! I am so confused as to what to feel bad about. Any suggestions would be helpful!
Also, we were hoping to get him started on the infusions and they are being held up by insurance.
Thanks for allowing me to vent!

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Profile picture for rebbie28 @rebbie28

I am also having trouble wrapping my head around this diagnosis. My husband has MCI but I feel that he is using the diagnosis as an excuse to not remember things. He is saying things like "You may tell something but I will probably forget it". It feels like a losing battle!! Yet he can come home from golf and tell my every shot he had! I am so confused as to what to feel bad about. Any suggestions would be helpful!
Also, we were hoping to get him started on the infusions and they are being held up by insurance.
Thanks for allowing me to vent!

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My husband also is diagnosed with MCI. And also golfs (age 72). I am so happy he leaves the house and that there is something he likes. He only golfs 9 holes. Not long enough!! My husband repeats questions and comments all day. And forgets instructions if I try to get him to help. Today I am getting him to help put a frame together. Finding things we can share surety limited. Eating, walking, watching streaming services. He was diagnosed through the MOCA test. And is 19 out of 30 so not far off Moderate cognitive impairment. Sorry I have nothing helpful to say re your husbands total recall of every shot played. I only wish mine played more and had more engagement with life outside the house.

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Profile picture for su2an @su2an

My husband also is diagnosed with MCI. And also golfs (age 72). I am so happy he leaves the house and that there is something he likes. He only golfs 9 holes. Not long enough!! My husband repeats questions and comments all day. And forgets instructions if I try to get him to help. Today I am getting him to help put a frame together. Finding things we can share surety limited. Eating, walking, watching streaming services. He was diagnosed through the MOCA test. And is 19 out of 30 so not far off Moderate cognitive impairment. Sorry I have nothing helpful to say re your husbands total recall of every shot played. I only wish mine played more and had more engagement with life outside the house.

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My husband was a 24 on the MOCA test. He has never done well on verbal and written tests specially in the doctor's office. Mine plays 18 holes and luckily walks. It gets him to socialize and out of the house. He is starting infusions in Sept. We are hoping they will help.
Luckily he is still driving himself and has not gotten lost. I can relate to feeling like he is on top of me every time I turn around. I hope that you can get some time for yourself and have people you can talk to.
Never in a million years did I see our future so glum at our age(74 and 72).
Try to stay positive! Thanks for responding.

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Profile picture for rebbie28 @rebbie28

My husband was a 24 on the MOCA test. He has never done well on verbal and written tests specially in the doctor's office. Mine plays 18 holes and luckily walks. It gets him to socialize and out of the house. He is starting infusions in Sept. We are hoping they will help.
Luckily he is still driving himself and has not gotten lost. I can relate to feeling like he is on top of me every time I turn around. I hope that you can get some time for yourself and have people you can talk to.
Never in a million years did I see our future so glum at our age(74 and 72).
Try to stay positive! Thanks for responding.

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If you do not mind sharing, which infusion are you starting in September and how did you choose it? Our family is struggling with the decision to start one of the new drugs.

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Kinsula and was suggested by his doctor.

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My husband is 71 with MCI due to Alzheimer’s. We caught it early enough that he was eligible for Kisunla and has had 2 infusions so far. The post infusion MRI’s have shown no sign of ARIA, one of the potential side effects that would require stopping them. Although the Kisunla doesn’t improve his symptoms, it seems to help slow down the rate of progression, although over the past couple of months I’ve noticed some progressive changes. He was also started on Lamotrogine, Buspirone , and Quetapine PRN to help with mood, agitation and anxiety. Without those meds, I don’t think I’d be able to manage the angry, verbally abusive outbursts. He’s still able to work at a job he enjoys, though, and wants to continue as long as he can as it gives him a sense of purpose and familiar routine. I’m don’t think he would be able to continue to work much longer without the Kisunla. I’ve also hired a maid service since I’m disabled from an autoimmune arthritis since 2017 l, and trying to get him to vacuum and mop the floor as he’s done in the past is too much of a fight. I’ve also hired a yard service so there are no more front yard loud meltdowns about weed eating. These services are less expensive than assisted living and memory care, so I feel they are well worth the money as we have more peace in the house now.

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