Caregiver for spouse with MCI (Mild cognitive impairment)

Posted by birdhouseclosed @birdhouseclosed, May 23, 2018

Need help accepting this and dealing with what is to come.

Interested in more discussions like this? Go to the Caregivers: Dementia Support Group.

@sillyblone

I am thankful for your post. My husband won't even surrender his driver's license. Which means he still is on the policy. I feel like going in his wallet and getting it. But ...no telling what he might do or say. He says the the most ugly things. Sometimes I respond and sometimes I leave from his presence. He was awful yesterday. Does your spouse refuse to bathe and acts like he will perish if water touches his skin? He is sometimes an evil version of someone who looks like my spouse but..is not. If I hear one more time he has Parkinsons so he can't help it I will scream. He will get a call on his phone is so nice to them. So go figure. I cook, clean, bathe him, shave and trim his beard, and give him a pedicure when needed. The only person that visits is my best friend. She does not use platitudes. She speaks truthfully to him. He looks at her like I wish I could say what I want. Lol...He never says anything ugly to anyone else but me
I gave him Parkinsons and a number of other conditions he has. He will not do PT when it is ordered. Everything is my fault..PERIOD. I have decided he will not take my spirit away. I know one thing I will never marry again. Been there done it. Most likely I will be gone before him. I am healthy ..but that doesn't guarantee anything. I love my husband and would not wish this for anyone. But the name calling, screaming and outrageous comments is daily. He is a bully and does not appreciate anything. (Verbally). My sanity is intact and I know what to expect ..but that being said this not how I thought I would be spending my golden year's. That is my rant and every bit is true.

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I felt like I wrote this, my heart goes out to you. This is by far the hardest thing I’ve ever gone through and we’re only in the beginning of this.

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@rreaves

I felt like I wrote this, my heart goes out to you. This is by far the hardest thing I’ve ever gone through and we’re only in the beginning of this.

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Believe me..I get it! They get meaner, more needy( not their fault) . You do everything and no one bothers to check if you are ok. I have 2 people in my life who do. My BFF and my son. So many have no clue on your angst and despair. Your loneliness and your overwhelming feeling to go on a vacation just for a day. It is hard..I just ate a 1/2 pint of ice cream. Lol. My pleasure for the day! Keep writing. I will respond. I am probably older than you ..but life experiences are with me. Ask me anything or share what u feel comfortable with. I wish I could go back to my life as it used to be. Work, play and raising kid's. Vacation with my spouse. We went to so many fun places. I have learned that life can throw you a curveball. My spouse's brother is his only living sibling and he has dementia. My spouse is the youngest of six. He gets so sad about the past instead of living in the moment!!! I say live, love and cry when needed my new friend.

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@rreaves

I felt like I wrote this, my heart goes out to you. This is by far the hardest thing I’ve ever gone through and we’re only in the beginning of this.

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thanks everyone for the hugs, it’s great to not feel so alone!

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