Anaplastic astrocytoma: Can anyone recommend a great neurosurgeon?

Posted by parker80138 @parker80138, May 2, 2016

Can anyone recommend a great neurosurgeon for my 34 year old daughter that was just diagnosed with anaplastic astrocytoma on April 29, 2016. She has Kaiser insurance and we are trying to get authorization to go outside their network for treatment. Thanks!

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Yes, Doctor Howard Levine is located in Miami FL. He replaced three disks in my neck, and had to remove and put in another bridge in my lower back. I would never let any other Doctor touch me.

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Welcome to Connect, @parker80138.
If you would like to seek the consultation of a Mayo Clinic neurosurgeon, please contact the number at the location of your choice here: http://mayocl.in/1mtmR63

I’m also tagging Connect members @cleahy85 @audrapopp @121861 @carolina2501 @cynaburst for their surgeon recommendations.
How was the brain tumor discovered? What next steps are being considered?

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@colleenyoung

Welcome to Connect, @parker80138.
If you would like to seek the consultation of a Mayo Clinic neurosurgeon, please contact the number at the location of your choice here: http://mayocl.in/1mtmR63

I’m also tagging Connect members @cleahy85 @audrapopp @121861 @carolina2501 @cynaburst for their surgeon recommendations.
How was the brain tumor discovered? What next steps are being considered?

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Sorry to hear about your daughters diagnosis. My daughter has been diagnosed with same tumor .. Where are you considering having her surgery at ? My daughter had surgery at siteman in St. Louis . Her surgeon is dr luethardt , he is an amazing surgeon. Also at May in Minnesota , dr parney is supposed to be very good .

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@colleenyoung

Welcome to Connect, @parker80138.
If you would like to seek the consultation of a Mayo Clinic neurosurgeon, please contact the number at the location of your choice here: http://mayocl.in/1mtmR63

I’m also tagging Connect members @cleahy85 @audrapopp @121861 @carolina2501 @cynaburst for their surgeon recommendations.
How was the brain tumor discovered? What next steps are being considered?

Jump to this post

Thank you for the reply. I am sorry to hear you are going through the same thing we are right now. Her health care provider is Kaiser and we were hoping to get a referral outside Kaiser for the surgery but they denied our request today. I guess we are going to have to trust the surgeon will get as much of the tumor out without causing any damage to any important motor tracts. She is having open enrollment right now and she intends to select Blue Cross as her new provider starting July 1. Unfortunately she needs surgery ASAP and it’s currently scheduled for June 2. If she needs additional surgeries at least our options will be much greater starting July 1.

I hope your daughter is doing well!

Thanks again

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@trivon

Yes, Doctor Howard Levine is located in Miami FL. He replaced three disks in my neck, and had to remove and put in another bridge in my lower back. I would never let any other Doctor touch me.

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Thank you for the response Trivon. I am searching for a neurosurgeon that only works on brain tumors not a neurosurgeon generalist. I am glad Dr. Levine was able to help you with your back though!

Thanks again!

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My husband was diagnosed with Pituitary Adenoma and his doctor from University of Miami, Dr Ronald J Beneviste 305 243-6946.

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Go to Mayo Clinic Rochester

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Dr. Mohamed Elhammady Tampa Florida. Great neurosurgeon. My family member also diagnosed with anaplastic astrocytoma. Very caring and knowledgeable .

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@colleenyoung

Welcome to Connect, @parker80138.
If you would like to seek the consultation of a Mayo Clinic neurosurgeon, please contact the number at the location of your choice here: http://mayocl.in/1mtmR63

I’m also tagging Connect members @cleahy85 @audrapopp @121861 @carolina2501 @cynaburst for their surgeon recommendations.
How was the brain tumor discovered? What next steps are being considered?

Jump to this post

Hello Colleen, I just joined this group today. I read your post and was wondering how your daughter is doing. I was diagnosed with AA grade III on April 10. I just finished 6 weeks radiation/temedar. My first post treatment MRI is in a few days, I’m very nervous! I’m located in Kansas.

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@egee202

Dr. Mohamed Elhammady Tampa Florida. Great neurosurgeon. My family member also diagnosed with anaplastic astrocytoma. Very caring and knowledgeable .

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Can you share how long your family member has had their AA tumor?

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Welcome to Connect @kansastumor. I’m so glad you joined us here. It sounds like you’ve had a whirlwind tour of the medical system since April. I can imagine you’re nervous about your upcoming MRI. In patient lingo we have a name for that — scanxiety. Have you heard people say that? We’re here to talk any time you want.

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Hi @parker80138,
@kansastumor‘s post reminded me that we haven’t spoke for a while. How did your daughter’s surgery go? How is she doing? And you, how are you?

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