Colloid cyst

Posted by jwillits8 @jwillits8, Sep 27 7:16am

Anyone else have a colloid cyst on the brain? What symptoms do you have?

@jwillits8 I can see you would like to connect with others regarding colloid cysts.

I was able to find a previous comment in which @57r shared that she has a colloid cyst on the brain as well.

While we wait for @57r to join, do you mind sharing what type of symptoms you are having?

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@amandajro

@jwillits8 I can see you would like to connect with others regarding colloid cysts.

I was able to find a previous comment in which @57r shared that she has a colloid cyst on the brain as well.

While we wait for @57r to join, do you mind sharing what type of symptoms you are having?

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@amandajro my symptoms have been ongoing for 6 months with unsteady walking, head pressure, sore eyes, memory mainly.

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I had a brain tumor, not a colloid cyst. The tumor was located in one of my lateral ventricles, though. Basically, the center of my brain. The symptons I experienced were seizures, headaches, double vision, personally changes plus a few other things. Sounds like our symptons are/were similiar. Ended up having surgery in 1992. The tumor was benign, thank goodness! Was seizure free until 2014. Been having a grand mal seizure about every 2 years since. Any doctor I've been too have no clue as to why the seizures started up, again. Very fustrating! In November, it will be 29 years since my surgery. Feels like it was yesterday.

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@jwillits8

@amandajro my symptoms have been ongoing for 6 months with unsteady walking, head pressure, sore eyes, memory mainly.

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@jwillits8 have you been diagnosed with a colloid cyst or looking for an explanation of your symptoms?

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@amandajro

@jwillits8 have you been diagnosed with a colloid cyst or looking for an explanation of your symptoms?

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@amandajro I have a colloid cyst. Who did your surgery? How big was your tumor?

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@jwillits8

@amandajro I have a colloid cyst. Who did your surgery? How big was your tumor?

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@jwillits8 I do not have a colloid cyst. I am a moderator for Connect so am just asking a lot of questions to see if there are other members for whom I could connect you to in order to be able to share notes on your respective journeys.

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@lynda1992

I had a brain tumor, not a colloid cyst. The tumor was located in one of my lateral ventricles, though. Basically, the center of my brain. The symptons I experienced were seizures, headaches, double vision, personally changes plus a few other things. Sounds like our symptons are/were similiar. Ended up having surgery in 1992. The tumor was benign, thank goodness! Was seizure free until 2014. Been having a grand mal seizure about every 2 years since. Any doctor I've been too have no clue as to why the seizures started up, again. Very fustrating! In November, it will be 29 years since my surgery. Feels like it was yesterday.

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@lynda1992 Who did your surgery?

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Dr. Patrick J. Kelly. He left Mayo Clinic in July of 1993. He worked at & then retired in 2008 from NYU Langone. There could be a doctor there who could help you? It's worth checking out. Keep me posted.

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