C. difficile – Are your guts ever normal again?

Posted by sue6408 @sue6408, Jan 27, 2019

Does anyone know any body that has recovered from c.diff (guts back to pre-c.diff status ) . I have been negative for a year and still have bloating every time I eat anything and sporadic diarrhea. I need maternity clothing to eat and be comfortable. I have 0 appetite since I was initially infected.I am on creon 36,000 . this helps some what with bloating,I take papya&pineapple enzymes not helping, and floraster 2xday not sure about that.I have tried the FODMAP diet, I avoid many foods on that diet. I am seeing an RD, just finished an elimination diet with her. If I eat I bloat there for I am. Bottom line…are my guts ruined forever ?

@cece55

I was diagnosed with CDiff approximately 2 1/2 months ago and was placed on Vancomycin. I am feeling fine right now but am having abnormal Creatinine and GFR levels. My Mayo GI is sending me to a Kidney Specialist. I am trying not to worry but am wondering if the Vancomycin which is such a strong antibiotic affected my kidneys and they need to heal.

Has anyone else had this problem?

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Hi @cece55, I wanted to make sure other members dealing with C. diff saw your question, so you will see I moved your inquiry about the powerful antibiotic to the discussion about C. diff and what can happen. I am glad you are feeling ok at least.

Did your GI suggest that it could have an adverse reaction on other organs?

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Hi Amanda,

Thank you for moving my question to the correct area. I am hoping someone might respond. My GI did not warn me about Vancomycin but when I researched it I read that it can impair kidney function. It is such a strong antibiotic. What choice do we have, though?

I have a Kidney Consult April 13th at Mayo with a nephrologist. That is the soonest that I can get in. I am hoping my bloodwork prior to this appointment will show improvement. I was so hoping that someone would post a similar problem happening to them and that the kidney repaired itself. I am very nervous about this new problem and need to hear something positive.

Thank You,
CeCe 55

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@cece55

Hi Amanda,

Thank you for moving my question to the correct area. I am hoping someone might respond. My GI did not warn me about Vancomycin but when I researched it I read that it can impair kidney function. It is such a strong antibiotic. What choice do we have, though?

I have a Kidney Consult April 13th at Mayo with a nephrologist. That is the soonest that I can get in. I am hoping my bloodwork prior to this appointment will show improvement. I was so hoping that someone would post a similar problem happening to them and that the kidney repaired itself. I am very nervous about this new problem and need to hear something positive.

Thank You,
CeCe 55

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Hi, I have very low iron, ferritin and other low counts, only 10 % saturation. Any ideas why? Do get infusions when low, only to get down in a month, headache and no energy! Can you help, margo

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@cece55

Hi Amanda,

Thank you for moving my question to the correct area. I am hoping someone might respond. My GI did not warn me about Vancomycin but when I researched it I read that it can impair kidney function. It is such a strong antibiotic. What choice do we have, though?

I have a Kidney Consult April 13th at Mayo with a nephrologist. That is the soonest that I can get in. I am hoping my bloodwork prior to this appointment will show improvement. I was so hoping that someone would post a similar problem happening to them and that the kidney repaired itself. I am very nervous about this new problem and need to hear something positive.

Thank You,
CeCe 55

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Hi @cece55 I did have cdif and was on Vancomycin for about 7 weeks from jun-july 2019 and as far as I know now I've had no ill effects. I was in the hospital for another reason for 5 of the weeks and came home with taking 125 my twice a day for a couple more weeks. Cdif never came back and no kidney issues. So I hope that helps? I'm available for any other questions you may have.
Have a Blessed Day
Dana

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@margockim

Hi, I have very low iron, ferritin and other low counts, only 10 % saturation. Any ideas why? Do get infusions when low, only to get down in a month, headache and no energy! Can you help, margo

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Hi @margockim, welcome back. can I ask that you provide a little more information? Are these symptoms in addition to you having C. diff?

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….question time: I had c.diff in 2018 and fecal incontinence after and never felt same; physical and nervous breakdown but coming out of it… slowly; I had lidocaine injection end of sept. for a stitch in a cut with mix of another drug and woke up shaking from head to foot; they went and i forgot about it. have had quite a bit of dental work done over past few months with numbing agent and gradually my neuropathy became more painful, wooden like and then internal tremors which I have as I type.. havent had them this bad for a week or so. my outsides are not visibly shaking but mainly my arms back, sides and down legs; cant type for too logn right now.. have been waiting couple of months for teleconference with nurologist and an ent as have plugged sore ears and tinnitus.. sorry to throw this out there; but i would love a doctor to see me while I am having this "attack" but by time i go to emerge it will have passed…. it is not painful as other issues but sure feels horrible and there is a certain pressure to it… would it be possible this is starting from my colon due to diarrhea for 15 years and fecal incontinence or more neuropathy… my b.p is up a bit but not bad.. thanks and again sorry for the disjointed typing but just wondered f anyone knows what i should do… J. thanks

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@amandaburnett

Hi @margockim, welcome back. can I ask that you provide a little more information? Are these symptoms in addition to you having C. diff?

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This is the result of my last blood test

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@brasileira

This is the result of my last blood test

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Hi @brasileira, welcome to Mayo Clinic Connect, an open online community where patients like yourself share their experiences, find support and exchange information. It is not a space to communicate with medical professionals about lab results. You'll notice that I removed the uploaded images of your blood test. I did this because the image included personal identifying information. Feel free to repost the results with the patient and institution information cropped out of the image or hidden.

Brasileira, do you have c-difficle?

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@colleenyoung

Hi @brasileira, welcome to Mayo Clinic Connect, an open online community where patients like yourself share their experiences, find support and exchange information. It is not a space to communicate with medical professionals about lab results. You'll notice that I removed the uploaded images of your blood test. I did this because the image included personal identifying information. Feel free to repost the results with the patient and institution information cropped out of the image or hidden.

Brasileira, do you have c-difficle?

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What is it? Never heard of it

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@brasileira

What is it? Never heard of it

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@brasileira, may I ask what condition you are looking for more information about?

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@colleenyoung

@brasileira, may I ask what condition you are looking for more information about?

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@colleenyoung I think @brasileira has never heard of cdiff and wants a definition.

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Hi there; I have been off the Vanco now for 2 months and I still don`t feel right. still have burning when I go,can`t eat anything fatty, no French fries,sad!!! I take RENEWEL-S. Boulardii once a day [same as florastor] and also a basic probiotic as well. Have only half my energy I had before 3 bouts of C Diff. It seems to be a long recovery process

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