C. difficile – Are your guts ever normal again?

Posted by sue6408 @sue6408, Jan 27, 2019

Does anyone know any body that has recovered from c.diff (guts back to pre-c.diff status ) . I have been negative for a year and still have bloating every time I eat anything and sporadic diarrhea. I need maternity clothing to eat and be comfortable. I have 0 appetite since I was initially infected.I am on creon 36,000 . this helps some what with bloating,I take papya&pineapple enzymes not helping, and floraster 2xday not sure about that.I have tried the FODMAP diet, I avoid many foods on that diet. I am seeing an RD, just finished an elimination diet with her. If I eat I bloat there for I am. Bottom line…are my guts ruined forever ?

@lacy2

I am in northern Ontario , Canada… our Health Unit covers two districts…this small City has 54,000 people and surrounding communities… fortuntely, or unfortunately, we are surrounded by "bush" trees forest and here between two lakes so quite a bit of space compared with, say, Toronto. However, mostly, we have had to follow restrictions that are for the whole Province. I am the only one in our small family not to have the vaccine yet but am so ill (not looking for sympathy) I dont think I can take anything more right now, but no one had any reactions to first vaccine in our family. We did have an small apt. building of 100 tenants and 2 went overseas and brought it back, infected others in building and 3 died… I would think that was the worst thing, although an unnamed resident died which was "worst" for that family.
People have been coming into the Province and out all along, like USA, its a big country to "police" and someone daughter knows has been coming back and forth from Florida.
I think we have about 5th or less of USA population, so numbers are deceiving.. but I do read some of the news stories and many people have suffered beyong belief for 2021.,.and of course front line workers worn out. Who ever thought we would be living through a Pendemic and I think we all, or a lot do, fear it is far from over with the variants. Even when Covid is under control as is flu for example, then we face the financial and mental dealing with the fallout. But some countries…well we are all human and each death is more than a number eh? ps Dentist gave me same antibiotic as you at Christmas but I chose to have tooth out instead; however, over my lifetimes have had hundreds of antibiotics! Paying the price.

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@lacy2 Wow! Terrible! I have been vaccinated but who knows what's to come? I remember my Mom lived through the Spanish flu epidemic but she never wanted to talk about it. Now I know why. If this ever goes away, I don't want to ever remember it. Take care of yourself!

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…thanks, you too! Stay safe.

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wondering the same thing

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@femalegolfer

@ngorman25 , if FMT is 90% effective, why are we bothering with more antibiotics? I don't understand why Dr's won't just go that route after one fail of antibiotics? I am on my first round of vanco after being diagnosed on Wednesday, but sadly I lived with Cdiff for the last 8 months or so and never went to the Dr. I would have bad flare ups at times, like when I had strep and was given antibiotics, but I never shared how my bowels were affected with Dr., shame on me I know. So I'm praying that this 10 day treatment will bring me back to normal because I'm so tired of feeling bad. Clindamycin needs to be banned!!

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I total agree that Clindamycin should be banned… A lot of dentist prescribe this and it causes C-Diff in most people.. The FDA should ban this drug!!

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@minge

I total agree that Clindamycin should be banned… A lot of dentist prescribe this and it causes C-Diff in most people.. The FDA should ban this drug!!

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@minge Here's what I think. Whoever produces vancomycin would be out of business! If they gave you the fmt after the first round of vancomycin that didn't work, then we wouldn't need vancomycin! It's all about the money! Big pharma doesn't care about your health. They only care about the money.

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@ngorman25

@minge Here's what I think. Whoever produces vancomycin would be out of business! If they gave you the fmt after the first round of vancomycin that didn't work, then we wouldn't need vancomycin! It's all about the money! Big pharma doesn't care about your health. They only care about the money.

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@minge Also, I wonder what all the vancomycin I took is doing to my body. That remains to be seen.

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@ngorman25

@minge Also, I wonder what all the vancomycin I took is doing to my body. That remains to be seen.

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Did you try Dificid or fidaxomicin ?

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@minge

Did you try Dificid or fidaxomicin ?

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@minge My gastroenterologist told me after the 2nd round of vancomycin that if it didn't work, fmt would be done next. At that time, I did not know about dificid or fidaxomicin.

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Also, do not assume that ongoing diarrhea means that c diff is still present unless you are being tested regularly. My husband had to tell his GI doctor after six months that he refused to take any more antibiotics. The doctor finally prescribed cholestyramine powder for off label use. He started with multiple doses a day and gradually reduced it it to zero. The binding properties of cholestyramine finally stopped the diarrhea.

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@minge

I total agree that Clindamycin should be banned… A lot of dentist prescribe this and it causes C-Diff in most people.. The FDA should ban this drug!!

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I agree. It should not be used. And apparently, it is KNOWN to cause trouble with patients. Even my brother-in-law, retired MD, casually says the problems are quite prevalent in patients that have used Clindamycin. My question is, WHY do they keep using it?! I have been dealing with the aftermath since February of this year, after taking Clindamycin prescribed by my dentist. I was deathly ill and have now gratefully recovered from the C-diff but not from what it did to me. I took this drug without question because I trusted. Never again. I am fortunate that one round of Vanco got rid of the C-diff (I pray that's accurate), but I have not been the same since and I was told there is no knowing how long it will take for the body to heal. Everyone is different.

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