C. difficile – Are your guts ever normal again?

Posted by sue6408 @sue6408, Jan 27, 2019

Does anyone know any body that has recovered from c.diff (guts back to pre-c.diff status ) . I have been negative for a year and still have bloating every time I eat anything and sporadic diarrhea. I need maternity clothing to eat and be comfortable. I have 0 appetite since I was initially infected.I am on creon 36,000 . this helps some what with bloating,I take papya&pineapple enzymes not helping, and floraster 2xday not sure about that.I have tried the FODMAP diet, I avoid many foods on that diet. I am seeing an RD, just finished an elimination diet with her. If I eat I bloat there for I am. Bottom line...are my guts ruined forever ?

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femalegolfer | @femalegolfer | Mar 6, 2019

In reply to @losthope "Can’t have a test unless watery stools and it will come back positive anyway where’s I..." + (show)

@losthope What do you mean yours is colonized?

pines | @pines | Mar 6, 2019

In reply to @femalegolfer "How many members in here was prescribed Dificid and what were your side effects and effectiveness..." + (show)

@femalegolfer I took Dificid last October, 2018 and have NOT relapsed since taking it after my 4th bout of Cdiff. I wish I would have taken in after my second relapse instead of being sick and dealing with Cdiff for six months. I know it's expensive but it worked for me.

losthope | @losthope | Mar 6, 2019

In reply to @sue6408 "Did you get a diagnosis of ulcerative colitis ?" + (show)

losthope | @losthope | Mar 6, 2019

In reply to @femalegolfer "@losthope What do you mean yours is colonized?" + (show)

Because I had it for a long time undiagnosed I have a 99% chance that I am colonizef

femalegolfer | @femalegolfer | Mar 6, 2019

In reply to @losthope "Because I had it for a long time undiagnosed I have a 99% chance that I..." + (show)

@losthope - how long did you go undiagnosed? I went almost a full year...But the Dr. has never mentioned anything about being colonized - so just curious.

losthope | @losthope | Mar 6, 2019

3 months. I am not that most people who have cdiff willl test positive for a long time after having. I went to a specialist in infectious disease.

sandyabbey | @sandyabbey | Mar 6, 2019

In reply to @ngorman25 "So I am wondering if anyone here has had the fmt? I am headed in that..." + (show)

I just had my first FMT a week ago after failure of Flagyl, vancomycin & Dificid. I feel bloated if I eat even a small amount. It doesn’t show right now because I lost down to 85. I’ve been sick since October. Taken to the hospital once by ambulance. I just feel full easily. My problem is that when I’m clear before a relapse I go for 3-4 days without a BM. Only thing is that if they tell me to take something it gives me diarrhea. Right now at just a week from my FMT I can’t take anything of any kind without clearing it by my GI. He’s great thought & has tried hard to get me well. Cdiff is a monster that consumes you. I hope I don’t relapse after this FMT. He said lots had to have another one. He’s hoping I’m going to ne clear. I sure hope so. I have had no life since I got this.

sandyabbey | @sandyabbey | Mar 6, 2019

In reply to @femalegolfer "How many members in here was prescribed Dificid and what were your side effects and effectiveness..." + (show)

I took Dificid after failing Flagyl & vancomycin. I was all good for 32 days then relapsed again. I just had an FMT last week. I’m so praying I’m over it. It has consumed my life. It’s such a monster & it’s so hard to deal with.

sandyabbey | @sandyabbey | Mar 6, 2019

In reply to @femalegolfer "@losthope - how long did you go undiagnosed? I went almost a full year...But the Dr...." + (show)

I would like to know what colonized means too.

ngorman25 | @ngorman25 | Mar 6, 2019

In reply to @sandyabbey "I just had my first FMT a week ago after failure of Flagyl, vancomycin & Dificid...." + (show)

@sandyabbey When I asked my doctor last week what happens if the fmt doesn't work?, He answered "we do it again"! Definitely not what I wanted to hear. In reading a lot about cdiff, I read that more women get it than men. I wonder if it was reversed, if we all would have heard of it before and if a whole lot more would be done to have a cure. Sorry, if this sounds sexist, but it's the way I really feel.