I am a 76 year old women and have had this condition for almost a year. it is getting worse everyday. been to many doctors and not one of them has heard otf it, I am getting desperate
I am a 55 year old woman who has had this for 13 years. It is devastating and has completely changed my life...I belong to a group of woman on line who have this and we are trying to figure out how to treat this. I have decided to go to a holistic dr to get bioidentical hormones. I think it's either that or from GERD, something going on in our digestive track. will be gettng my kit for hormonal testing...will post my results.
I'm 45 and have had this for almost 4 months. My mouth hurts so bad I can hardly smile. I feel like it doesn't stop hurting at all!! I wake up hurting worse everyday. My doctor is baffled. I am getting so depressed. I am newly married and can't even kiss my husband. Any advice would be greatly appreciated.
I have had neuropathic burning mouth syndrome since Dec. 2010. On gabapentin and Lyrica. Nothing seems to help. Does anyone know a doctors name at Mayo clinic who treats this? Please help. Nanette
I have had neuropathic burning mouth syndrome since Dec. 2010. Most Drs. I've seen have never heard of it. I am on gabapentin and Lyrica, they are not working. Does anyone know of a specific Dr. who treats this disorder. I am in pain 24 hrs. per day, it is very SEVERE pain. Need help and a support group. HELP, NANETTE
I am 53 and I have had burning mouth for about a year now. I have been to dentists, pychiatrist, family doctor and everyone of the docs tell me to see another doc it is so frustrating ... I am bipolar and take meds for it but this is a very depressing ailment in itself. All the docs look at you and don't know what you are talking about, so I do my own researching all the time and I found this site....if anyone has found something that helps PLEASE let me know.
I too have burning mouth for about 1 year. Was finally sent to a dermatologist. She prescribed klonipin as needed and it worked the first pill i took. She is doing lots of blood work to check for vitamin levels. May also do allergy test to see if im allergic to fhe compounds in my gold crows and metal fillings. This is a Mayo clinic recommended treatment.
I have had BMS for 8 years after a tonsillectomy and have gone in circles with no relief and most doctors are clueless! 🙁
Any attempts with benetron or monofax...herbal remedies for BMS??
Looking for research or data to show benetron or monofax hermal remedy is safe, my mouth is so sore with dryness, swelling & stinging.
Hi! I´m from Argentina. I got here since I´m investigating on my own over this syndrome. As I am a teacher I use my voice, and my mouth a lot. I´ve told docs that after each class, my mouth burns a lot, I have to get home, drink water, even ice to calm down the pain, I also notice some stickness in my neck. I try not to speak during afternoon so as to get better. On nights I feel my mouth gets dry, and my lips also. Now I´m waiting for the results on Sjorgen Syndrome. We´ll see. Until now docs have said they see nothing bad in my mouth or troat. I´m pleasead to have found this comunity. Hope we could support each other.
I share your pain.Iam an 18yr sufferer.I have been to 3 neurogilists,oral specialists,dentists,had mri's ct scans.I have been on seziure meds.and many more i can't even remember.I have been to the best in the Boston area..No to much is known about this condition.I feel for you..I am 62yrs old,just retired and have this to look forward in my golden yrears..This is sad...
The Mayo Clinic recommends Alpha Lipoic Acid & Vitamin B which are both harmless 🙂 I take ALA 200 mg. 3x day & Vit B once per day & I believe that they have helped some. Also, all of you who are suffering have you had any surgeries or tooth work? This happened to me after a tonsillectomy & I do believe I may have had some nerve damage?! Also, anxiety is a cause of this & I suffer from that as well; do any of you? The safer route to Klonopin which you've heard me suggest to stay away from is Neurontin, I am on 900 mg. 3x day, yes that much! Plus the ALA & Vit B & Zoloft for the anxiety. I also have some good days & some bad days & some inbetween days, the bad days are awful!! This is such a tough disorder to have!!!! Sometimes I find eating something small can change the way my mouth feels or chewing gum. I wish there were Dr.s that were knowledgeable about BMS because those of us who suffer need some guidance & relief! May God Bless you & keep you as pain free as possible!!! 🙂
I used cayenne pepper mixed with water and the pain left after about 5 minutes of really burning from the pepper... fight fire with fire... I am glad it worked so I can eat again! Stacy
I think i replied to you
I am 66 yrs old and have had bms over 20 yrs.i have much experience with this condition, if you need any questions answered, please feel free to ask,as i have been to almost 4- 5 Boston hospitals.
Have suffered with bms for over 25 years-everyday. Tried many melds. Believe Lyrica helps a little.
I find wearing a bite plate during night takes away the pain. Try it.