Hi! I´m from Argentina. I got here since I´m investigating on my own over this syndrome. As I am a teacher I use my voice, and my mouth a lot. I´ve told docs that after each class, my mouth burns a lot, I have to get home, drink water, even ice to calm down the pain, I also notice some stickness in my neck. I try not to speak during afternoon so as to get better. On nights I feel my mouth gets dry, and my lips also. Now I´m waiting for the results on Sjorgen Syndrome. We´ll see. Until now docs have said they see nothing bad in my mouth or troat. I´m pleasead to have found this comunity. Hope we could support each other.
Liked by sherikay
I share your pain.Iam an 18yr sufferer.I have been to 3 neurogilists,oral specialists,dentists,had mri’s ct scans.I have been on seziure meds.and many more i can’t even remember.I have been to the best in the Boston area..No to much is known about this condition.I feel for you..I am 62yrs old,just retired and have this to look forward in my golden yrears..This is sad…
Liked by Shellb123
Hi Lexie,i am a 62 yrold woman who has suffered for 18 yrs.I have done everything,from neurogilists,oral specialists,accupuncture..I have been on more pills than i can count.I have visited the best in Boston,i also have gerd and digestive problems and the Dr thought that was the problem.He put me on 4omeprazoile per day along with clonazepam.It is not the gerd.The omep.did not help the bms.I to would like to know your results..Good luck..
Oh my gosh please BE CAREFUL taking KLONOPIN!!!! I was on two pills in the morning & two pills in the evening for 2 years for BMS & then a Dr. wanted me to get off it because it’s not a long term medication & then my whole world got turned upside down! I went to the hospital to get off of it & then for the next year I was mentally & physically gone 🙁 I had been addicted in a way that I wasn’t aware of until I tried to stop taking it!!!! That medication is horrible!! It wasn’t until I got on Zoloft WITH Neurontin that I started to feel human again & some people have worse stories with Klonopin! STAY AWAY from that stuff!!
Please do not use KLONOPIN & disregard any advice to take it! It is a CONTROLLED SUBSTANCE for a reason!! I have used it & almost lost my life!!!! I became mentally & physically disabled after getting off of it! You can’t think or function & people lose their marraiges, jobs etc. please be careful!!!!!!! I would not recommend taking this medication!!!!!
Hi Sheetrock, it’s good to hear back from someone who understands this condition. Weather changes, sinus conditions, and certain foods all
aggravate the pain in my case.
Whoever said that having your teeth pulled is NOT a good move was definitely correct. I have been told repeatedly that this will worsen the condition because they can’t work with your bite. My best help came from dentists specially trained in facial pain. There is evidence I experienced nerve damage from an aggressive dental procedure, I’ve heard that a significant number of cases start from a dental procedure, or it can be simply genetic.
The Mayo Clinic recommends Alpha Lipoic Acid & Vitamin B which are both harmless 🙂 I take ALA 200 mg. 3x day & Vit B once per day & I believe that they have helped some. Also, all of you who are suffering have you had any surgeries or tooth work? This happened to me after a tonsillectomy & I do believe I may have had some nerve damage?! Also, anxiety is a cause of this & I suffer from that as well; do any of you? The safer route to Klonopin which you’ve heard me suggest to stay away from is Neurontin, I am on 900 mg. 3x day, yes that much! Plus the ALA & Vit B & Zoloft for the anxiety. I also have some good days & some bad days & some inbetween days, the bad days are awful!! This is such a tough disorder to have!!!! Sometimes I find eating something small can change the way my mouth feels or chewing gum. I wish there were Dr.s that were knowledgeable about BMS because those of us who suffer need some guidance & relief! May God Bless you & keep you as pain free as possible!!! 🙂
Liked by lauren123
@lisaabentley
Any attempts with benetron or monofax…herbal remedies for BMS??