Burning Mouth Syndrome. I have it very severe.

Posted by mygrigio @mygrigio, Aug 5, 2011

I am a 76 year old women and have had this condition for almost a year. it is getting worse everyday. been to many doctors and not one of them has heard otf it, I am getting desperate

@anon83338660

I too have burning mouth for about 1 year. Was finally sent to a dermatologist. She prescribed klonipin as needed and it worked the first pill i took. She is doing lots of blood work to check for vitamin levels. May also do allergy test to see if im allergic to fhe compounds in my gold crows and metal fillings. This is a Mayo clinic recommended treatment.

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Hello, I have had burning mouth for over 10 years. I also take klonipin and it helps quite a bit. How much Klonipin are your taking? I developed BMS after an aggressive dental treatment. I think the allergy test sounds interesting.

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@nanettehathaway

I have had neuropathic burning mouth syndrome since Dec. 2010. Most Drs. I’ve seen have never heard of it. I am on gabapentin and Lyrica, they are not working. Does anyone know of a specific Dr. who treats this disorder. I am in pain 24 hrs. per day, it is very SEVERE pain. Need help and a support group. HELP, NANETTE

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Gabapentn and Lyrica did not help. Klonipin is the only drug that gives me relief. Find a dentist who specialized in facial pain and has appropriate training. I was often misdiagnosed as having fibromyalgia.

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@lexie

I am a 55 year old woman who has had this for 13 years. It is devastating and has completely changed my life…I belong to a group of woman on line who have this and we are trying to figure out how to treat this. I have decided to go to a holistic dr to get bioidentical hormones. I think it’s either that or from GERD, something going on in our digestive track. will be gettng my kit for hormonal testing…will post my results.

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Hello lexie and phyllism, I think that there may be different causes and treatments for BMS. After ten years of trying different methods, I find the greatest relief comes from Klonipin and a laser. I don’t think that hormonal testing will help (I had a hysterectomy and there was no change.) Changes in the weather also make a difference as my BMS also involves some arthritis. I have read that women have this condition more often than men.

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Any attempts with benetron or monofax…herbal remedies for BMS??

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Looking for research or data to show benetron or monofax hermal remedy is safe, my mouth is so sore with dryness, swelling & stinging.

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Hi! I´m from Argentina. I got here since I´m investigating on my own over this syndrome. As I am a teacher I use my voice, and my mouth a lot. I´ve told docs that after each class, my mouth burns a lot, I have to get home, drink water, even ice to calm down the pain, I also notice some stickness in my neck. I try not to speak during afternoon so as to get better. On nights I feel my mouth gets dry, and my lips also. Now I´m waiting for the results on Sjorgen Syndrome. We´ll see. Until now docs have said they see nothing bad in my mouth or troat. I´m pleasead to have found this comunity. Hope we could support each other.

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I share your pain.Iam an 18yr sufferer.I have been to 3 neurogilists,oral specialists,dentists,had mri’s ct scans.I have been on seziure meds.and many more i can’t even remember.I have been to the best in the Boston area..No to much is known about this condition.I feel for you..I am 62yrs old,just retired and have this to look forward in my golden yrears..This is sad…

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@lexie

I am a 55 year old woman who has had this for 13 years. It is devastating and has completely changed my life…I belong to a group of woman on line who have this and we are trying to figure out how to treat this. I have decided to go to a holistic dr to get bioidentical hormones. I think it’s either that or from GERD, something going on in our digestive track. will be gettng my kit for hormonal testing…will post my results.

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Hi Lexie,i am a 62 yrold woman who has suffered for 18 yrs.I have done everything,from neurogilists,oral specialists,accupuncture..I have been on more pills than i can count.I have visited the best in Boston,i also have gerd and digestive problems and the Dr thought that was the problem.He put me on 4omeprazoile per day along with clonazepam.It is not the gerd.The omep.did not help the bms.I to would like to know your results..Good luck..

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@lexie

I am a 55 year old woman who has had this for 13 years. It is devastating and has completely changed my life…I belong to a group of woman on line who have this and we are trying to figure out how to treat this. I have decided to go to a holistic dr to get bioidentical hormones. I think it’s either that or from GERD, something going on in our digestive track. will be gettng my kit for hormonal testing…will post my results.

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Hi Laure,i have same condition and when there changes in the weather my bms becomes more severe.I am an 18yr sufferer.Gone to more specialists in Boston area,,,

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@lexie

I am a 55 year old woman who has had this for 13 years. It is devastating and has completely changed my life…I belong to a group of woman on line who have this and we are trying to figure out how to treat this. I have decided to go to a holistic dr to get bioidentical hormones. I think it’s either that or from GERD, something going on in our digestive track. will be gettng my kit for hormonal testing…will post my results.

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I feel your pain..I have had bms for 18yrs.I am glad i found this sight.I have been the whole route.If you would like to ask me any questions you might think of don’t hesitate.

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@anon83338660

I too have burning mouth for about 1 year. Was finally sent to a dermatologist. She prescribed klonipin as needed and it worked the first pill i took. She is doing lots of blood work to check for vitamin levels. May also do allergy test to see if im allergic to fhe compounds in my gold crows and metal fillings. This is a Mayo clinic recommended treatment.

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Oh my gosh please BE CAREFUL taking KLONOPIN!!!! I was on two pills in the morning & two pills in the evening for 2 years for BMS & then a Dr. wanted me to get off it because it’s not a long term medication & then my whole world got turned upside down! I went to the hospital to get off of it & then for the next year I was mentally & physically gone 🙁 I had been addicted in a way that I wasn’t aware of until I tried to stop taking it!!!! That medication is horrible!! It wasn’t until I got on Zoloft WITH Neurontin that I started to feel human again & some people have worse stories with Klonopin! STAY AWAY from that stuff!!

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@anon83338660

I too have burning mouth for about 1 year. Was finally sent to a dermatologist. She prescribed klonipin as needed and it worked the first pill i took. She is doing lots of blood work to check for vitamin levels. May also do allergy test to see if im allergic to fhe compounds in my gold crows and metal fillings. This is a Mayo clinic recommended treatment.

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Please read my above comment about KLONOPIN!!!!!

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