1. < Skin Health

Burning Mouth Syndrome. I have it very severe.

Posted by mygrigio @mygrigio, Aug 5, 2011

I am a 76 year old women and have had this condition for almost a year. it is getting worse everyday. been to many doctors and not one of them has heard otf it, I am getting desperate

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Shellb123 | @shellb123 | Feb 27, 2012
In reply to @lexie "I am a 55 year old woman who has had this for 13 years. It is..." + (show)
@lexie

I am a 55 year old woman who has had this for 13 years. It is devastating and has completely changed my life…I belong to a group of woman on line who have this and we are trying to figure out how to treat this. I have decided to go to a holistic dr to get bioidentical hormones. I think it’s either that or from GERD, something going on in our digestive track. will be gettng my kit for hormonal testing…will post my results.

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Its awful I’ve been suffering for 8 years 🙁

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phyllisrn | @phyllisrn | Mar 5, 2012
In reply to @lexie "I am a 55 year old woman who has had this for 13 years. It is..." + (show)
@lexie

I am a 55 year old woman who has had this for 13 years. It is devastating and has completely changed my life…I belong to a group of woman on line who have this and we are trying to figure out how to treat this. I have decided to go to a holistic dr to get bioidentical hormones. I think it’s either that or from GERD, something going on in our digestive track. will be gettng my kit for hormonal testing…will post my results.

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I forgot to tell you I have already tried a holistic approach. I was told to soak in hot tub with 1 cup bleach.Didn’t help/ I tried bio identical hormones,nope, its not gerd I stopped eating for 4 months just liquids. Please believe me you are wasting your time. I even talked with someone on the internet that said she had all her teeth pulled, and it didn’t help. I believed it is caused by damage to one of the cranial nerves that is responsible for taste.All of you will be in my prayers

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lauren123 | @lauren123 | Mar 20, 2012
In reply to @anon83338660 "I too have burning mouth for about 1 year. Was finally sent to a dermatologist. She..." + (show)
@anon83338660

I too have burning mouth for about 1 year. Was finally sent to a dermatologist. She prescribed klonipin as needed and it worked the first pill i took. She is doing lots of blood work to check for vitamin levels. May also do allergy test to see if im allergic to fhe compounds in my gold crows and metal fillings. This is a Mayo clinic recommended treatment.

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Hello, I have had burning mouth for over 10 years. I also take klonipin and it helps quite a bit. How much Klonipin are your taking? I developed BMS after an aggressive dental treatment. I think the allergy test sounds interesting.

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lauren123 | @lauren123 | Mar 20, 2012
In reply to @nanettehathaway "I have had neuropathic burning mouth syndrome since Dec. 2010. Most Drs. I've seen have never..." + (show)
@nanettehathaway

I have had neuropathic burning mouth syndrome since Dec. 2010. Most Drs. I’ve seen have never heard of it. I am on gabapentin and Lyrica, they are not working. Does anyone know of a specific Dr. who treats this disorder. I am in pain 24 hrs. per day, it is very SEVERE pain. Need help and a support group. HELP, NANETTE

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Gabapentn and Lyrica did not help. Klonipin is the only drug that gives me relief. Find a dentist who specialized in facial pain and has appropriate training. I was often misdiagnosed as having fibromyalgia.

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lauren123 | @lauren123 | Mar 20, 2012
In reply to @lexie "I am a 55 year old woman who has had this for 13 years. It is..." + (show)
@lexie

I am a 55 year old woman who has had this for 13 years. It is devastating and has completely changed my life…I belong to a group of woman on line who have this and we are trying to figure out how to treat this. I have decided to go to a holistic dr to get bioidentical hormones. I think it’s either that or from GERD, something going on in our digestive track. will be gettng my kit for hormonal testing…will post my results.

Jump to this post

Hello lexie and phyllism, I think that there may be different causes and treatments for BMS. After ten years of trying different methods, I find the greatest relief comes from Klonipin and a laser. I don’t think that hormonal testing will help (I had a hysterectomy and there was no change.) Changes in the weather also make a difference as my BMS also involves some arthritis. I have read that women have this condition more often than men.

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1 reply
lisaabentley | @lisaabentley | Apr 1, 2012

Any attempts with benetron or monofax…herbal remedies for BMS??

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lisaabentley | @lisaabentley | Apr 1, 2012

Looking for research or data to show benetron or monofax hermal remedy is safe, my mouth is so sore with dryness, swelling & stinging.

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carolaxis | @carolaxis | Apr 10, 2012

Hi! I´m from Argentina. I got here since I´m investigating on my own over this syndrome. As I am a teacher I use my voice, and my mouth a lot. I´ve told docs that after each class, my mouth burns a lot, I have to get home, drink water, even ice to calm down the pain, I also notice some stickness in my neck. I try not to speak during afternoon so as to get better. On nights I feel my mouth gets dry, and my lips also. Now I´m waiting for the results on Sjorgen Syndrome. We´ll see. Until now docs have said they see nothing bad in my mouth or troat. I´m pleasead to have found this comunity. Hope we could support each other.

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1 reply
sheetrock0131 | @sheetrock0131 | Apr 13, 2012

I share your pain.Iam an 18yr sufferer.I have been to 3 neurogilists,oral specialists,dentists,had mri’s ct scans.I have been on seziure meds.and many more i can’t even remember.I have been to the best in the Boston area..No to much is known about this condition.I feel for you..I am 62yrs old,just retired and have this to look forward in my golden yrears..This is sad…

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13 replies
sheetrock0131 | @sheetrock0131 | Apr 13, 2012
In reply to @lexie "I am a 55 year old woman who has had this for 13 years. It is..." + (show)
@lexie

I am a 55 year old woman who has had this for 13 years. It is devastating and has completely changed my life…I belong to a group of woman on line who have this and we are trying to figure out how to treat this. I have decided to go to a holistic dr to get bioidentical hormones. I think it’s either that or from GERD, something going on in our digestive track. will be gettng my kit for hormonal testing…will post my results.

Jump to this post

Hi Lexie,i am a 62 yrold woman who has suffered for 18 yrs.I have done everything,from neurogilists,oral specialists,accupuncture..I have been on more pills than i can count.I have visited the best in Boston,i also have gerd and digestive problems and the Dr thought that was the problem.He put me on 4omeprazoile per day along with clonazepam.It is not the gerd.The omep.did not help the bms.I to would like to know your results..Good luck..

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