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mygrigio (@mygrigio)

Burning Mouth Syndrome. I have it very severe.

Skin Health | Last Active: Aug 31 8:42am | Replies (536)

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@nanettehathaway

I have had neuropathic burning mouth syndrome since Dec. 2010. On gabapentin and Lyrica. Nothing seems to help. Does anyone know a doctors name at Mayo clinic who treats this? Please help. Nanette

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Replies to "I have had neuropathic burning mouth syndrome since Dec. 2010. On gabapentin and Lyrica. Nothing seems..."

I had taken gabbapentine many years ago.
I've had this condition for many years.I have taken amatriptoline,currently on cymbalta,clonazapan,and a mild dose of oxycodone.
I have been receiving botox shots,which I read had been helping with this horrible condition. It really doesn't help.
My next move is to check out laser.I have been to a hospital in Boston.A oral maxofacial surgeon has been giving me the shots.He recommend laser.I'm going to find a Boston hospital who gives laser.
If you have some time,please Google ,botox for b.m.s.
Also Google, laser for same.
This is a horrible condition.
I've been to most Boston hospitals, and so many meds.it over 18yrs.
I'm mentally drained.
As a psychologist, referred to it as ,the devil in the mouth.
If you need any additional info.please feel free to ask.
I wish you luck with the gabbapentine, but sadly nothing has helped me..
God bless..

Dermatologist Dr Bruce at Mayo, Jacksonville put me on Amitriptyline-worked great for few months then stopped. Still searching

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