Bullous Pemphigoid

Posted by yolanda53 @yolanda53, Feb 17 1:13pm

Hello @yolanda53, Welcome to Connect. There are two older related discussions on Connect but I'm not sure if the members who participated in the discussions are still following. Mayo Clinic also has information on the condition – Bullous pemphigoid – Symptoms and causes: https://www.mayoclinic.org/diseases-conditions/bullous-pemphigoid/symptoms-causes/syc-20350414

– I have recently been diagnosed with bullous pemphigoid and I am looking: https://connect.mayoclinic.org/discussion/i-have-recently-been-diagnosed-with-bullous-pemphigoid-and-i-am-looking/
– Looking for info on medications for Bullous pemphigoid: https://connect.mayoclinic.org/discussion/ive-been-diagnosed-with-bullous-pemphigoid-and-i-need-to-find-if/

Have you been diagnosed with Bullous Pemphigold?

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@johnbishop

Hello @yolanda53, Welcome to Connect. There are two older related discussions on Connect but I'm not sure if the members who participated in the discussions are still following. Mayo Clinic also has information on the condition – Bullous pemphigoid – Symptoms and causes: https://www.mayoclinic.org/diseases-conditions/bullous-pemphigoid/symptoms-causes/syc-20350414

– I have recently been diagnosed with bullous pemphigoid and I am looking: https://connect.mayoclinic.org/discussion/i-have-recently-been-diagnosed-with-bullous-pemphigoid-and-i-am-looking/
– Looking for info on medications for Bullous pemphigoid: https://connect.mayoclinic.org/discussion/ive-been-diagnosed-with-bullous-pemphigoid-and-i-need-to-find-if/

Have you been diagnosed with Bullous Pemphigold?

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Thank you John for the information. Yes, I have been diagnosed with this at this time and knowing what I'm learning is a shock to say the least. In any case, my dermatologist is helping me along the way and hopefully we will lick this….. If not, well. We'll see!

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@yolanda53

Thank you John for the information. Yes, I have been diagnosed with this at this time and knowing what I'm learning is a shock to say the least. In any case, my dermatologist is helping me along the way and hopefully we will lick this….. If not, well. We'll see!

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@yolanda53, I'm glad to hear your dermatologist is helping you. Have they been able to provide any tips or suggestions for you that you can share? Have you seen the International Pemphigus & Pemphigoid Foundation website? They have a list of patient related links and some information about nutrition that may help you learn a little more about the condition.

https://www.pemphigus.org/patients/
https://www.pemphigus.org/nutrition/

REPLY
@johnbishop

@yolanda53, I'm glad to hear your dermatologist is helping you. Have they been able to provide any tips or suggestions for you that you can share? Have you seen the International Pemphigus & Pemphigoid Foundation website? They have a list of patient related links and some information about nutrition that may help you learn a little more about the condition.

https://www.pemphigus.org/patients/
https://www.pemphigus.org/nutrition/

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Thank you John for this very very important information on nutrition as well as getting the COVID shot! Very appreciative to you!!!!!!! Wow, I was gonna just get the shot as soon as I could have……

REPLY
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