Bullous Pemphigoid

Posted by yolanda53 @yolanda53, Feb 17, 2021

Anyone with this?

Interested in more discussions like this? Go to the Autoimmune Diseases Support Group.

@lisbeth

Do you have Bullous Pemphigoid disease?

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I have no problem with my eyes or mouth, but I am glad you gave the name of the rinse in case I need it. My skin is getting much better now. I hope I don’t get any more blisters

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@lisbeth

I have Bullous Pemphigoid and would like to connect to others.

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I have it also

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In reply to @shelly1234 "I have it also" + (show)
@shelly1234

I have it also

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Are you broken out or do you have hives now? Is this your first time? It is mine.

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@lisbeth

Do you have Bullous Pemphigoid disease?

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I am now experiencing blisters that itch and burn when the break.
They are mostly on my arms but have also shown up on my , face, chest, and upper thighs. It has been 3 years since I was diagnosed with Bullous Pemphigoid.
There was a time last summer when I wasn't having any symptoms.
But this year is different. I went to urgent care at one point because I couldn't get in to see a dermatologist until July 28th. They prescribed clobetasol and doxycycline. They want me to take the doxycycline for 3 months and use the clobetasol for 4 weeks.
Iam into 1 month and nothing has changed.
I am at my wits end. My partner has cancer so I try to put things into prospective but it's not easy. I hope you are doing better.

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@lisbeth

Do you have Bullous Pemphigoid disease?

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At this moment I still have the red blotches, but I don’t put the creams on them because they don’t itch, and the rash is gone, but my skin is pink. I guess you have been on prednisone before the Doxycycline? I am on the Doxycycline, too, and get a shot every other week. I hope your inflammatory skin will go away quickly.

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@shelly1234

I am now experiencing blisters that itch and burn when the break.
They are mostly on my arms but have also shown up on my , face, chest, and upper thighs. It has been 3 years since I was diagnosed with Bullous Pemphigoid.
There was a time last summer when I wasn't having any symptoms.
But this year is different. I went to urgent care at one point because I couldn't get in to see a dermatologist until July 28th. They prescribed clobetasol and doxycycline. They want me to take the doxycycline for 3 months and use the clobetasol for 4 weeks.
Iam into 1 month and nothing has changed.
I am at my wits end. My partner has cancer so I try to put things into prospective but it's not easy. I hope you are doing better.

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My doctor told me that I would never be able to get off doxycycline or another drug like it.

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@shelly1234

I am now experiencing blisters that itch and burn when the break.
They are mostly on my arms but have also shown up on my , face, chest, and upper thighs. It has been 3 years since I was diagnosed with Bullous Pemphigoid.
There was a time last summer when I wasn't having any symptoms.
But this year is different. I went to urgent care at one point because I couldn't get in to see a dermatologist until July 28th. They prescribed clobetasol and doxycycline. They want me to take the doxycycline for 3 months and use the clobetasol for 4 weeks.
Iam into 1 month and nothing has changed.
I am at my wits end. My partner has cancer so I try to put things into prospective but it's not easy. I hope you are doing better.

Jump to this post

My friend had this, the dermatologist put her on steroids for a long time. It finally went away. She was on them for months.

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@lisbeth

Do you have Bullous Pemphigoid disease?

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Hello @lisbeth. You will notice I have moved your post, and the replies, into an existing discussion that you can find here:
- Bullous Pemphigoid: https://connect.mayoclinic.org/discussion/bullous-pemphigoid-2/

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