I have recently been diagnosed with bullous pemphigoid and I am looking
I have recently been diagnosed with bullous pemphigoid and I am looking for others with the same illness – especially trying to find out what meds or treatment protocol has been helpful. Mine first appeared as blisters along the gum line – but has also progressed to other areas of my body in rash form. Any information anyone has will add to my current knowledge base of zero.
Interested in more discussions like this? Go to the Skin Health Support Group.
It’s 6 years since your post but was hoping you still check his. I just got diagnosed today with this and am terrified as I have yet to know much about this thing, and seeing how few people are diagnosed I assume that means little is known about it at all let alone any closer to drs figuring out how to fix it. I think my body got triggers with it after taking amoxicillin for strep while I had been on humira for. Crohns disease. I am hoping to find people with it for the same reasons you listed and also just to help cope with the new illness added to my list.
@athena1626 I read your post with interest as I was wondering if this was what had happened to my mother. You might want to check out the articles on this on the Mayo site. I also read the Wikipedia write-up, but can only recommend that site with caution. For me it is a good place to start and may give me clues of other places to search. I certainly hope you find someone to talk to about this and find some relief and treatment. Take care.