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Autoimmune Diseases | Last Active: Mar 5 7:06am | Replies (42)
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I have Mucous Membrane Pemphigoid. It comes & goes & not many doctors have ever dealt with it.
Odd, but there isn’t even much on this Mayo Connect dire.
My only satisfaction was by going to the Cleveland Clinic. I’m seeing a few specialist here in Rochester, NY, but they do not communicate with eachother unless I force the issue.
I can’t find a Rheumatologist that will see me either.
Back to Dr. Jueng at the Cleveland Clinic, I guess.
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@griffin1120 Just came upon your post and recently diagnosed with Bullous Pemphigoid but have it in my mouth as well. I was wondering if you're still seeing the doctor at Cleveland Clinic? I'd like to try to get into see him as well if you recommend? Hope that your condition is being managed well.