Breast bone wiring

Posted by freedancer69 @freedancer69, Mar 4 12:32pm

Can any of you tell me about the wiring of the best bone back into place after an Aortic Septal Myectomy? Did you have a great deal of pain? Did it hurt to breathe? I am very nervous about my surgery on the 11 of April. I will be going to the University of Colorado Hospital and my Doctor is Dr Cleveland.

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Profile picture for milkmaid @milkmaid

I am 62, trying to improve the health i have. Sometimes dealing with chronic health issues you vacillate
Between fear and wellness emotions.
People around you can' t connect or don't want to. I don't want to be one of those people who talk about my illness all the time. I would rather focus on wellness. Unfortunately, my wellness curve has taken a dive. I would like to have a good eval of my heart function and esp tricuspid valve. Interested in a TTVR, trans catheter tricuspid valve replacement. Looking for facility who does them, any info appreciated🙂

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Yes i have seen it, but i was looking for tricuspid replacement not aortic.
So far i found cleavland clinic and seder sini as hospitals no others

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Profile picture for milkmaid @milkmaid

Yes i have seen it, but i was looking for tricuspid replacement not aortic.
So far i found cleavland clinic and seder sini as hospitals no others

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Thank you though!

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Profile picture for Debra, Volunteer Mentor @karukgirl

@freedancer, the nurses help teach you how to do this while you are in the hospital.
I felt like a beetle bug stuck on its back, flailing my arms, trying to get out of bed...but with the helpful tips to roll, get your legs over the side and then sit up, it all came together. I never looked like a graceful gazelle, but it worked and that's all that mattered!

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I would like to practice getting out of bed now to build that muscle memory..can you explain more thoroughly how to do this? Thanks in advance..Sharon Scudder

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Profile picture for Debra, Volunteer Mentor @karukgirl

Good question @freedancer69,
Of course, we are all different and respond to pain differently as well, so it is a subjective answer I give based on my own experience.
There is pain with any surgery. That's a no-brainer. It is not pleasant to be sure, to have your chest wired back together. I have nine wires in my chest. They no longer cause discomfort of any kind. I had no stiches, except the internal ones that dissolve over time. The wound healed quickly, maybe two weeks or so?
Your pain will be your guide for activity, and your body will tell you when not to do something. You will most likely have weight restrictions and driving restrictions for about 4 weeks. It goes by really fast.
It took several months for me to be able to sleep on my side. I didn't want to, it just didn't feel good. So I used a pillow behind me to give me an ever-so-slight sensation of sleeping side ways and a feeling of security.
There is a hesitation to cough or deep breathe for about four weeks as well...or the surprise sneeze that can catch you off guard. It was hard for me to get in or out of a lot of things...like in/out of bed. In/out of car. In/out of chair. But you will find ways to do so without much discomfort.
It's really amazing how strong we really are and how we learn to cope with discomfort. I never took one pain pill, only Advil the entire time...including the first night in ICU. They gave me Extra Strength Tylenol in the hospital, which did basically nothing. After getting the green light to take Advil it worked so much better.
No sugar coating here. There will be pain. Any surgery has pain associated with it. I just had bilateral meniscectomies in my right knee and the pain was not fun, and I still have pain. My open heart surgery was a much quicker healing process than my knee! But there are obvious differences in surgeries.
Do you have a hobby or something that you can do that brings you joy or peace between now and April 11?

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How long after heart surgery did you have your knee surgery..I have a torn meniscus I need to get a scope to fix. Thanks Sharon.

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Profile picture for oliviasoma @oliviasoma

How long after heart surgery did you have your knee surgery..I have a torn meniscus I need to get a scope to fix. Thanks Sharon.

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Hi @oliviasoma,
I had my knee surgery four months ago. That's four years after my open heart surgery. Everything was fine but the anesthesiologist wanted to be extra careful and put an arterial line in for better monitoring. HOCM and HCM post open heart surgery makes the anesthesiologists anxious! I was cleared for surgery by the Mayo Clinic right before my surgery, as in my local area HCM is unfamiliar and foreign.

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Since April 11 has passed, please share how you are doing!

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I am doing ok. I do not have to use oxygen during the day now, just at night when sleeping. I can do all my chores on my own but find I have to do them slowly and I have to sit down about every 8 to 10 minutes. I found it easier to pick one chore a day and do it. I don't get so tired. I took out my own drain stitches today. I find that my back hurts alot if I overdo activities. I am using my breathing apparatus regularly so I can get better at taking a breath. Thanks for asking about me.

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Profile picture for freedancer69 @freedancer69

I am doing ok. I do not have to use oxygen during the day now, just at night when sleeping. I can do all my chores on my own but find I have to do them slowly and I have to sit down about every 8 to 10 minutes. I found it easier to pick one chore a day and do it. I don't get so tired. I took out my own drain stitches today. I find that my back hurts alot if I overdo activities. I am using my breathing apparatus regularly so I can get better at taking a breath. Thanks for asking about me.

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Were you happy with Anschutz? I live in Colorado but my cardio is pretty insistent on the Mayo.

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Profile picture for hopenr @hopenr

Were you happy with Anschutz? I live in Colorado but my cardio is pretty insistent on the Mayo.

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It's sometimes a personal decision regarding where to go. Many do not have a choice mostly because of insurance restrictions, from what I have read. Mayo is a COE (Center of Excellence) with much experience performing septal myectomies, and as you probably know, people from all over the world travel there for treatment. Ask your cardiologist why he/she is pretty insistent on Mayo.

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