Patrick Cotter
@patrickcotter
@patrickcotter
Posts: 1
Joined: Oct 05, 2017
Brachioradial pruritus. (severe itching on forearms and neck, no rash).
DonnaNY
@donnany
@donnany
Posts: 8
Joined: Oct 20, 2017
what can i take to stop the non stop itching it never goes away i feel like i want to rip the skin off my arm i have tried evereything over the counter but it does nt work i can not take much longer of this what can u suggest for me todo
Ice packs work temporarily. Chiropractic neck adjustments worked for me. It ha something to do with C5 and C6 in your neck.
Donnany
njcarolnjn
@njcarolnjn
@njcarolnjn
Posts: 67
Joined: Dec 07, 2017
Benzocaine comes in topical forms (also called lidocaine). I buy Solarcaine but it can be in a generic form, too. I get the spray so touching the skin is not necessary. It also comes in a gel form, for dry skin that’s oily.
US Brand Name
Anacaine
Chiggerex
Mandelay
Medicone
Outgro
Solarcaine
Canadian Brand Name
Baby Orajel Nighttime Formula
Dermoplast Maximum Strength
Topicaine
im sick and tired if all the bull on this condition. There is no help here so dont look for it. im 5 years and counting. Done it all and afraud for my future. capasin thx for that advice burns like u at yourself on fire. The drugs? cant funxtion on them. Chiro acupuncture? Dont count on it. i have cervical as well as lumbar issues. Had back surgery last year my back is worse. Do i dare chance letting them touch my neck. Too big a risk they dont know and honestly dont care.
njcarolnjn
@njcarolnjn
@njcarolnjn
Posts: 67
Joined: Dec 07, 2017
my question for the narrator is do u know if anyone that doesnt have terrible side effects from these toxic drugs!
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Jamie Olson
@jamienolson
@jamienolson
Posts: 530
Joined: Apr 21, 2016
acupucture does not work nothing works i am seriously thi king of taking my life because of this there is no relief my arms are scared for life have not selp in months all drs i see think im crazy
@screamingmeanie, Hello. Welcome to Mayo Clinic Connect. I’m so sorry you feel this way. It must be awful. I’m glad you have found a place here among others that also suffer with the same symptoms to know that you are not alone.
Have you seen a chiropractor before for brachioradial pruritus? Please keep us updated with what they offer to you- it may be something that will help someone else as well.
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njcarolnjn
@njcarolnjn
@njcarolnjn
Posts: 67
Joined: Dec 07, 2017
njcarolnjn
@njcarolnjn
@njcarolnjn
Posts: 67
Joined: Dec 07, 2017
acupucture does not work nothing works i am seriously thi king of taking my life because of this there is no relief my arms are scared for life have not selp in months all drs i see think im crazy
Well to add my two cents..once again…..I’m on my third Chiropractor. He believes it is a mold issue. I have to laugh…This one practices that Atlas technique reported by some to cure…Well big surprise no cure here. Cause there is none. The first order of business I think is patients not having to Educate there doctors that this is a definite condition not all in your head. My primary doctor suggested a trip to a shrink…lol Well my shrink laughs…she see’s my arms and my suffering…. Gave her the study’s . Dr’s seem to get offended when you know more than they do Pompous idiots most.
njcarolnjn
@njcarolnjn
@njcarolnjn
Posts: 67
Joined: Dec 07, 2017
@njcarolnjn Hi, my friend. Just read your note, and recognize myself in it. I knew I was fighting itching on my forearms at an awful pace, but had no idea itwas “brachioradial pruritis”. But the term does make sense, although by struggling and studying a lot by myself I have learned what is causing mine. It may or may not be same as yours, but the experience sounds about the same. And I have the scars on my arms to prove it. I got wind of the dX a couple years ago, and have since learned a lot about various forms of Amyloidosis. In fact, Mayo said last year that they could not deny, without much further testing, that I have some form of FreeLiteChain Amyloidosis. Based on the tests they have done on me, I prove positive with the SERUM FreeLiteChain(C) sFLC-Bindings UK assay. I may have such things as AL (Amyloidosis Light Chair) ACys (Cystatin-C), AGel (Gelsolin) or others. It — or they — may be primary, systemic, localized, or so on. You can read my story at https://bit.Ly/1w7j4j8, titled Amyloidosis Series 13 or Amyloidosis Series 12. But in any event, what is important here is that Light Chain Amyloidosis is quite possibly the cause of your brachioradial pruritis. My arms have bled, oozed various liquids and gels, been black with cross-hatch furrows, and itched badly enough to make me think I am losing my mind. I get a little relief from some various medicated creams, But there is not much that helps. Only having an idea what is going on. Your local clinic can work with various top labs to do the sFLC and 24hr urine tests, but most doctors are too lazy to do that so they rely on their local clinics. But these are almost never well enough equipped to do the work. It takes a top lab like Mayo or ARUP or Brigham and Women’s, or Stanford to get the protein dX done properly. The lab needs to have an Atom-Force microscope and other very expensive equipment to do it right. Do not settle for anything less. Read the work of the Mayo staff on their web page, about Amyloidosis, or go to AmyloidosisFoundation.Org. The biggest problem I have with this is untrained doctors and labs. But it is time for your arms to stop bleeding and oozing like mine.
I will research…I’m dizzy from all the research, supplements struggle. Just diagnosed with Fibro and frightened for my future…..
Liked by thedinnymurph
thedinnymurph
@thedinnymurph
@thedinnymurph
Posts: 34
Joined: Oct 04, 2017
@njcarolnjn Hi, my friend. Just read your note, and recognize myself in it. I knew I was fighting itching on my forearms at an awful pace, but had no idea itwas “brachioradial pruritis”. But the term does make sense, although by struggling and studying a lot by myself I have learned what is causing mine. It may or may not be same as yours, but the experience sounds about the same. And I have the scars on my arms to prove it. I got wind of the dX a couple years ago, and have since learned a lot about various forms of Amyloidosis. In fact, Mayo said last year that they could not deny, without much further testing, that I have some form of FreeLiteChain Amyloidosis. Based on the tests they have done on me, I prove positive with the SERUM FreeLiteChain(C) sFLC-Bindings UK assay. I may have such things as AL (Amyloidosis Light Chair) ACys (Cystatin-C), AGel (Gelsolin) or others. It — or they — may be primary, systemic, localized, or so on. You can read my story at https://bit.Ly/1w7j4j8, titled Amyloidosis Series 13 or Amyloidosis Series 12. But in any event, what is important here is that Light Chain Amyloidosis is quite possibly the cause of your brachioradial pruritis. My arms have bled, oozed various liquids and gels, been black with cross-hatch furrows, and itched badly enough to make me think I am losing my mind. I get a little relief from some various medicated creams, But there is not much that helps. Only having an idea what is going on. Your local clinic can work with various top labs to do the sFLC and 24hr urine tests, but most doctors are too lazy to do that so they rely on their local clinics. But these are almost never well enough equipped to do the work. It takes a top lab like Mayo or ARUP or Brigham and Women’s, or Stanford to get the protein dX done properly. The lab needs to have an Atom-Force microscope and other very expensive equipment to do it right. Do not settle for anything less. Read the work of the Mayo staff on their web page, about Amyloidosis, or go to AmyloidosisFoundation.Org. The biggest problem I have with this is untrained doctors and labs. But it is time for your arms to stop bleeding and oozing like mine.
I’m SO with you NJ. I’m sitting here with an ice bag on my elbow …. itch started early a,m, hasn’t let up much since. Thought I’d found the goose that gave me a golden egg with Lyrica, but either the dose is too low or something, as the itch/burn/sting/pain has returned. Going to go from 50 3x/day to 100 to see if that helps. Pain doc after three failed epidurals wants to try intraspinal injections figuring the nerve tissues may be causing the itch as they are irritated so badly from the stenosis. Monday I’m going to try to find a chiropractor who may specialize in the cervical spine. Has anyone on this site tried that for BRP?
NJ I wish you luck. A new diagnosis of fibro really stinks.
njcarolnjn
@njcarolnjn
@njcarolnjn
Posts: 67
Joined: Dec 07, 2017
@njcarolnjn Hi, my friend. Just read your note, and recognize myself in it. I knew I was fighting itching on my forearms at an awful pace, but had no idea itwas “brachioradial pruritis”. But the term does make sense, although by struggling and studying a lot by myself I have learned what is causing mine. It may or may not be same as yours, but the experience sounds about the same. And I have the scars on my arms to prove it. I got wind of the dX a couple years ago, and have since learned a lot about various forms of Amyloidosis. In fact, Mayo said last year that they could not deny, without much further testing, that I have some form of FreeLiteChain Amyloidosis. Based on the tests they have done on me, I prove positive with the SERUM FreeLiteChain(C) sFLC-Bindings UK assay. I may have such things as AL (Amyloidosis Light Chair) ACys (Cystatin-C), AGel (Gelsolin) or others. It — or they — may be primary, systemic, localized, or so on. You can read my story at https://bit.Ly/1w7j4j8, titled Amyloidosis Series 13 or Amyloidosis Series 12. But in any event, what is important here is that Light Chain Amyloidosis is quite possibly the cause of your brachioradial pruritis. My arms have bled, oozed various liquids and gels, been black with cross-hatch furrows, and itched badly enough to make me think I am losing my mind. I get a little relief from some various medicated creams, But there is not much that helps. Only having an idea what is going on. Your local clinic can work with various top labs to do the sFLC and 24hr urine tests, but most doctors are too lazy to do that so they rely on their local clinics. But these are almost never well enough equipped to do the work. It takes a top lab like Mayo or ARUP or Brigham and Women’s, or Stanford to get the protein dX done properly. The lab needs to have an Atom-Force microscope and other very expensive equipment to do it right. Do not settle for anything less. Read the work of the Mayo staff on their web page, about Amyloidosis, or go to AmyloidosisFoundation.Org. The biggest problem I have with this is untrained doctors and labs. But it is time for your arms to stop bleeding and oozing like mine.
im on my third. i wont take lyrcia. gabapentin knocks me out. my pain management guy wont even discuss it alrhough got him to order me a compounded cream that codt me 200 out of pocket and also knocked me on my rear
njcarolnjn
@njcarolnjn
@njcarolnjn
Posts: 67
Joined: Dec 07, 2017
@njcarolnjn Hi, my friend. Just read your note, and recognize myself in it. I knew I was fighting itching on my forearms at an awful pace, but had no idea itwas “brachioradial pruritis”. But the term does make sense, although by struggling and studying a lot by myself I have learned what is causing mine. It may or may not be same as yours, but the experience sounds about the same. And I have the scars on my arms to prove it. I got wind of the dX a couple years ago, and have since learned a lot about various forms of Amyloidosis. In fact, Mayo said last year that they could not deny, without much further testing, that I have some form of FreeLiteChain Amyloidosis. Based on the tests they have done on me, I prove positive with the SERUM FreeLiteChain(C) sFLC-Bindings UK assay. I may have such things as AL (Amyloidosis Light Chair) ACys (Cystatin-C), AGel (Gelsolin) or others. It — or they — may be primary, systemic, localized, or so on. You can read my story at https://bit.Ly/1w7j4j8, titled Amyloidosis Series 13 or Amyloidosis Series 12. But in any event, what is important here is that Light Chain Amyloidosis is quite possibly the cause of your brachioradial pruritis. My arms have bled, oozed various liquids and gels, been black with cross-hatch furrows, and itched badly enough to make me think I am losing my mind. I get a little relief from some various medicated creams, But there is not much that helps. Only having an idea what is going on. Your local clinic can work with various top labs to do the sFLC and 24hr urine tests, but most doctors are too lazy to do that so they rely on their local clinics. But these are almost never well enough equipped to do the work. It takes a top lab like Mayo or ARUP or Brigham and Women’s, or Stanford to get the protein dX done properly. The lab needs to have an Atom-Force microscope and other very expensive equipment to do it right. Do not settle for anything less. Read the work of the Mayo staff on their web page, about Amyloidosis, or go to AmyloidosisFoundation.Org. The biggest problem I have with this is untrained doctors and labs. But it is time for your arms to stop bleeding and oozing like mine.
i dont want to do neck surgery seriously i cant live this way mych longer ive been looking into assisted sucide in europe no joke
njcarolnjn
@njcarolnjn
@njcarolnjn
Posts: 67
Joined: Dec 07, 2017
@njcarolnjn Hi, my friend. Just read your note, and recognize myself in it. I knew I was fighting itching on my forearms at an awful pace, but had no idea itwas “brachioradial pruritis”. But the term does make sense, although by struggling and studying a lot by myself I have learned what is causing mine. It may or may not be same as yours, but the experience sounds about the same. And I have the scars on my arms to prove it. I got wind of the dX a couple years ago, and have since learned a lot about various forms of Amyloidosis. In fact, Mayo said last year that they could not deny, without much further testing, that I have some form of FreeLiteChain Amyloidosis. Based on the tests they have done on me, I prove positive with the SERUM FreeLiteChain(C) sFLC-Bindings UK assay. I may have such things as AL (Amyloidosis Light Chair) ACys (Cystatin-C), AGel (Gelsolin) or others. It — or they — may be primary, systemic, localized, or so on. You can read my story at https://bit.Ly/1w7j4j8, titled Amyloidosis Series 13 or Amyloidosis Series 12. But in any event, what is important here is that Light Chain Amyloidosis is quite possibly the cause of your brachioradial pruritis. My arms have bled, oozed various liquids and gels, been black with cross-hatch furrows, and itched badly enough to make me think I am losing my mind. I get a little relief from some various medicated creams, But there is not much that helps. Only having an idea what is going on. Your local clinic can work with various top labs to do the sFLC and 24hr urine tests, but most doctors are too lazy to do that so they rely on their local clinics. But these are almost never well enough equipped to do the work. It takes a top lab like Mayo or ARUP or Brigham and Women’s, or Stanford to get the protein dX done properly. The lab needs to have an Atom-Force microscope and other very expensive equipment to do it right. Do not settle for anything less. Read the work of the Mayo staff on their web page, about Amyloidosis, or go to AmyloidosisFoundation.Org. The biggest problem I have with this is untrained doctors and labs. But it is time for your arms to stop bleeding and oozing like mine.
sorry gor the graphic but this is how bad it gets i dont feel human
2much2do
@2much2do
@2much2do
Posts: 2
Joined: Dec 24, 2017
Hi, check out this link I found on https://www.dermnetnz.org/topics/brachioradial-pruritus I have severe itching all over, but mine is due to diabetes and MS, I actually scratch sores on my arms and neck in my sleep and wake up with little drops of blood on my pillowcase and sheet. Very annoying to have to wash out blood a couple times a week!
2much2do
@2much2do
@2much2do
Posts: 2
Joined: Dec 24, 2017
Hi, check out this link I found on https://www.dermnetnz.org/topics/brachioradial-pruritus I have severe itching all over, but mine is due to diabetes and MS, I actually scratch sores on my arms and neck in my sleep and wake up with little drops of blood on my pillowcase and sheet. Very annoying to have to wash out blood a couple times a week!
Also I feel for anyone that has to deal with this, prayers and thoughts to all of you.
Liked by Jamie Olson, coolkat
njcarolnjn
@njcarolnjn
@njcarolnjn
Posts: 67
Joined: Dec 07, 2017
Hi, check out this link I found on https://www.dermnetnz.org/topics/brachioradial-pruritus I have severe itching all over, but mine is due to diabetes and MS, I actually scratch sores on my arms and neck in my sleep and wake up with little drops of blood on my pillowcase and sheet. Very annoying to have to wash out blood a couple times a week!
nice piece but a lot of misinformation as usual. i live in nj hardly what youd call a tropical paradise
@screamingmeanie
I too have thought of suicide because of this awful itching..I know deep in my soul I cannot do that but I don’t want to live with this the rest of my life..I have been to several drs and get new creams but nothing helps but the ice pack I take with me everywhere. I have just made an appointment with a chiropractor that specializes in the neck region of the spine and hope to get some relief