@njcarolnjn Hi, my friend. Just read your note, and recognize myself in it. I knew I was fighting itching on my forearms at an awful pace, but had no idea itwas “brachioradial pruritis”. But the term does make sense, although by struggling and studying a lot by myself I have learned what is causing mine. It may or may not be same as yours, but the experience sounds about the same. And I have the scars on my arms to prove it. I got wind of the dX a couple years ago, and have since learned a lot about various forms of Amyloidosis. In fact, Mayo said last year that they could not deny, without much further testing, that I have some form of FreeLiteChain Amyloidosis. Based on the tests they have done on me, I prove positive with the SERUM FreeLiteChain(C) sFLC-Bindings UK assay. I may have such things as AL (Amyloidosis Light Chair) ACys (Cystatin-C), AGel (Gelsolin) or others. It — or they — may be primary, systemic, localized, or so on. You can read my story at https://bit.Ly/1w7j4j8, titled Amyloidosis Series 13 or Amyloidosis Series 12. But in any event, what is important here is that Light Chain Amyloidosis is quite possibly the cause of your brachioradial pruritis. My arms have bled, oozed various liquids and gels, been black with cross-hatch furrows, and itched badly enough to make me think I am losing my mind. I get a little relief from some various medicated creams, But there is not much that helps. Only having an idea what is going on. Your local clinic can work with various top labs to do the sFLC and 24hr urine tests, but most doctors are too lazy to do that so they rely on their local clinics. But these are almost never well enough equipped to do the work. It takes a top lab like Mayo or ARUP or Brigham and Women’s, or Stanford to get the protein dX done properly. The lab needs to have an Atom-Force microscope and other very expensive equipment to do it right. Do not settle for anything less. Read the work of the Mayo staff on their web page, about Amyloidosis, or go to AmyloidosisFoundation.Org. The biggest problem I have with this is untrained doctors and labs. But it is time for your arms to stop bleeding and oozing like mine.

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@njcarolnjn Hi, my friend. Just read your note, and recognize myself in it. I knew I was fighting itching on my forearms at an awful pace, but had no idea itwas “brachioradial pruritis”. But the term does make sense, although by struggling and studying a lot by myself I have learned what is causing mine. It may or may not be same as yours, but the experience sounds about the same. And I have the scars on my arms to prove it. I got wind of the dX a couple years ago, and have since learned a lot about various forms of Amyloidosis. In fact, Mayo said last year that they could not deny, without much further testing, that I have some form of FreeLiteChain Amyloidosis. Based on the tests they have done on me, I prove positive with the SERUM FreeLiteChain(C) sFLC-Bindings UK assay. I may have such things as AL (Amyloidosis Light Chair) ACys (Cystatin-C), AGel (Gelsolin) or others. It — or they — may be primary, systemic, localized, or so on. You can read my story at https://bit.Ly/1w7j4j8, titled Amyloidosis Series 13 or Amyloidosis Series 12. But in any event, what is important here is that Light Chain Amyloidosis is quite possibly the cause of your brachioradial pruritis. My arms have bled, oozed various liquids and gels, been black with cross-hatch furrows, and itched badly enough to make me think I am losing my mind. I get a little relief from some various medicated creams, But there is not much that helps. Only having an idea what is going on. Your local clinic can work with various top labs to do the sFLC and 24hr urine tests, but most doctors are too lazy to do that so they rely on their local clinics. But these are almost never well enough equipped to do the work. It takes a top lab like Mayo or ARUP or Brigham and Women’s, or Stanford to get the protein dX done properly. The lab needs to have an Atom-Force microscope and other very expensive equipment to do it right. Do not settle for anything less. Read the work of the Mayo staff on their web page, about Amyloidosis, or go to AmyloidosisFoundation.Org. The biggest problem I have with this is untrained doctors and labs. But it is time for your arms to stop bleeding and oozing like mine.

Jump to this post

@njcarolnjn Hi, my friend. Just read your note, and recognize myself in it. I knew I was fighting itching on my forearms at an awful pace, but had no idea itwas “brachioradial pruritis”. But the term does make sense, although by struggling and studying a lot by myself I have learned what is causing mine. It may or may not be same as yours, but the experience sounds about the same. And I have the scars on my arms to prove it. I got wind of the dX a couple years ago, and have since learned a lot about various forms of Amyloidosis. In fact, Mayo said last year that they could not deny, without much further testing, that I have some form of FreeLiteChain Amyloidosis. Based on the tests they have done on me, I prove positive with the SERUM FreeLiteChain(C) sFLC-Bindings UK assay. I may have such things as AL (Amyloidosis Light Chair) ACys (Cystatin-C), AGel (Gelsolin) or others. It — or they — may be primary, systemic, localized, or so on. You can read my story at https://bit.Ly/1w7j4j8, titled Amyloidosis Series 13 or Amyloidosis Series 12. But in any event, what is important here is that Light Chain Amyloidosis is quite possibly the cause of your brachioradial pruritis. My arms have bled, oozed various liquids and gels, been black with cross-hatch furrows, and itched badly enough to make me think I am losing my mind. I get a little relief from some various medicated creams, But there is not much that helps. Only having an idea what is going on. Your local clinic can work with various top labs to do the sFLC and 24hr urine tests, but most doctors are too lazy to do that so they rely on their local clinics. But these are almost never well enough equipped to do the work. It takes a top lab like Mayo or ARUP or Brigham and Women’s, or Stanford to get the protein dX done properly. The lab needs to have an Atom-Force microscope and other very expensive equipment to do it right. Do not settle for anything less. Read the work of the Mayo staff on their web page, about Amyloidosis, or go to AmyloidosisFoundation.Org. The biggest problem I have with this is untrained doctors and labs. But it is time for your arms to stop bleeding and oozing like mine.

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Hi, check out this link I found on https://www.dermnetnz.org/topics/brachioradial-pruritus I have severe itching all over, but mine is due to diabetes and MS, I actually scratch sores on my arms and neck in my sleep and wake up with little drops of blood on my pillowcase and sheet. Very annoying to have to wash out blood a couple times a week!

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Hi, check out this link I found on https://www.dermnetnz.org/topics/brachioradial-pruritus I have severe itching all over, but mine is due to diabetes and MS, I actually scratch sores on my arms and neck in my sleep and wake up with little drops of blood on my pillowcase and sheet. Very annoying to have to wash out blood a couple times a week!

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Hi, check out this link I found on https://www.dermnetnz.org/topics/brachioradial-pruritus I have severe itching all over, but mine is due to diabetes and MS, I actually scratch sores on my arms and neck in my sleep and wake up with little drops of blood on my pillowcase and sheet. Very annoying to have to wash out blood a couple times a week!

Jump to this post

@njcarolnjn Hi, my friend. Just read your note, and recognize myself in it. I knew I was fighting itching on my forearms at an awful pace, but had no idea itwas “brachioradial pruritis”. But the term does make sense, although by struggling and studying a lot by myself I have learned what is causing mine. It may or may not be same as yours, but the experience sounds about the same. And I have the scars on my arms to prove it. I got wind of the dX a couple years ago, and have since learned a lot about various forms of Amyloidosis. In fact, Mayo said last year that they could not deny, without much further testing, that I have some form of FreeLiteChain Amyloidosis. Based on the tests they have done on me, I prove positive with the SERUM FreeLiteChain(C) sFLC-Bindings UK assay. I may have such things as AL (Amyloidosis Light Chair) ACys (Cystatin-C), AGel (Gelsolin) or others. It — or they — may be primary, systemic, localized, or so on. You can read my story at https://bit.Ly/1w7j4j8, titled Amyloidosis Series 13 or Amyloidosis Series 12. But in any event, what is important here is that Light Chain Amyloidosis is quite possibly the cause of your brachioradial pruritis. My arms have bled, oozed various liquids and gels, been black with cross-hatch furrows, and itched badly enough to make me think I am losing my mind. I get a little relief from some various medicated creams, But there is not much that helps. Only having an idea what is going on. Your local clinic can work with various top labs to do the sFLC and 24hr urine tests, but most doctors are too lazy to do that so they rely on their local clinics. But these are almost never well enough equipped to do the work. It takes a top lab like Mayo or ARUP or Brigham and Women’s, or Stanford to get the protein dX done properly. The lab needs to have an Atom-Force microscope and other very expensive equipment to do it right. Do not settle for anything less. Read the work of the Mayo staff on their web page, about Amyloidosis, or go to AmyloidosisFoundation.Org. The biggest problem I have with this is untrained doctors and labs. But it is time for your arms to stop bleeding and oozing like mine.

Jump to this post

@njcarolnjn Hi, my friend. Just read your note, and recognize myself in it. I knew I was fighting itching on my forearms at an awful pace, but had no idea itwas “brachioradial pruritis”. But the term does make sense, although by struggling and studying a lot by myself I have learned what is causing mine. It may or may not be same as yours, but the experience sounds about the same. And I have the scars on my arms to prove it. I got wind of the dX a couple years ago, and have since learned a lot about various forms of Amyloidosis. In fact, Mayo said last year that they could not deny, without much further testing, that I have some form of FreeLiteChain Amyloidosis. Based on the tests they have done on me, I prove positive with the SERUM FreeLiteChain(C) sFLC-Bindings UK assay. I may have such things as AL (Amyloidosis Light Chair) ACys (Cystatin-C), AGel (Gelsolin) or others. It — or they — may be primary, systemic, localized, or so on. You can read my story at https://bit.Ly/1w7j4j8, titled Amyloidosis Series 13 or Amyloidosis Series 12. But in any event, what is important here is that Light Chain Amyloidosis is quite possibly the cause of your brachioradial pruritis. My arms have bled, oozed various liquids and gels, been black with cross-hatch furrows, and itched badly enough to make me think I am losing my mind. I get a little relief from some various medicated creams, But there is not much that helps. Only having an idea what is going on. Your local clinic can work with various top labs to do the sFLC and 24hr urine tests, but most doctors are too lazy to do that so they rely on their local clinics. But these are almost never well enough equipped to do the work. It takes a top lab like Mayo or ARUP or Brigham and Women’s, or Stanford to get the protein dX done properly. The lab needs to have an Atom-Force microscope and other very expensive equipment to do it right. Do not settle for anything less. Read the work of the Mayo staff on their web page, about Amyloidosis, or go to AmyloidosisFoundation.Org. The biggest problem I have with this is untrained doctors and labs. But it is time for your arms to stop bleeding and oozing like mine.

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Benzocaine comes in topical forms (also called lidocaine). I buy Solarcaine but it can be in a generic form, too. I get the spray so touching the skin is not necessary. It also comes in a gel form, for dry skin that’s oily.

US Brand Name
Anacaine
Chiggerex
Mandelay
Medicone
Outgro
Solarcaine

Canadian Brand Name
Baby Orajel Nighttime Formula
Dermoplast Maximum Strength
Topicaine

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Benzocaine comes in topical forms (also called lidocaine). I buy Solarcaine but it can be in a generic form, too. I get the spray so touching the skin is not necessary. It also comes in a gel form, for dry skin that’s oily.

US Brand Name
Anacaine
Chiggerex
Mandelay
Medicone
Outgro
Solarcaine

Canadian Brand Name
Baby Orajel Nighttime Formula
Dermoplast Maximum Strength
Topicaine

Jump to this post

@njcarolnjn Hi, my friend. Just read your note, and recognize myself in it. I knew I was fighting itching on my forearms at an awful pace, but had no idea itwas “brachioradial pruritis”. But the term does make sense, although by struggling and studying a lot by myself I have learned what is causing mine. It may or may not be same as yours, but the experience sounds about the same. And I have the scars on my arms to prove it. I got wind of the dX a couple years ago, and have since learned a lot about various forms of Amyloidosis. In fact, Mayo said last year that they could not deny, without much further testing, that I have some form of FreeLiteChain Amyloidosis. Based on the tests they have done on me, I prove positive with the SERUM FreeLiteChain(C) sFLC-Bindings UK assay. I may have such things as AL (Amyloidosis Light Chair) ACys (Cystatin-C), AGel (Gelsolin) or others. It — or they — may be primary, systemic, localized, or so on. You can read my story at https://bit.Ly/1w7j4j8, titled Amyloidosis Series 13 or Amyloidosis Series 12. But in any event, what is important here is that Light Chain Amyloidosis is quite possibly the cause of your brachioradial pruritis. My arms have bled, oozed various liquids and gels, been black with cross-hatch furrows, and itched badly enough to make me think I am losing my mind. I get a little relief from some various medicated creams, But there is not much that helps. Only having an idea what is going on. Your local clinic can work with various top labs to do the sFLC and 24hr urine tests, but most doctors are too lazy to do that so they rely on their local clinics. But these are almost never well enough equipped to do the work. It takes a top lab like Mayo or ARUP or Brigham and Women’s, or Stanford to get the protein dX done properly. The lab needs to have an Atom-Force microscope and other very expensive equipment to do it right. Do not settle for anything less. Read the work of the Mayo staff on their web page, about Amyloidosis, or go to AmyloidosisFoundation.Org. The biggest problem I have with this is untrained doctors and labs. But it is time for your arms to stop bleeding and oozing like mine.

Jump to this post