Brachioradial pruritus. (severe itching on forearms and neck, no rash).

I went to Mayo I think in 2013. The dermatologist that I saw diagnosed my itch as the BRP. I am going back there soon to see if any thing new has been discovered to treat it

acupucture does not work nothing works i am seriously thi king of taking my life because of this there is no relief my arms are scared for life have not selp in months all drs i see think im crazy

@njcarolnjn Hi, my friend. Just read your note, and recognize myself in it. I knew I was fighting itching on my forearms at an awful pace, but had no idea itwas “brachioradial pruritis”. But the term does make sense, although by struggling and studying a lot by myself I have learned what is causing mine. It may or may not be same as yours, but the experience sounds about the same. And I have the scars on my arms to prove it. I got wind of the dX a couple years ago, and have since learned a lot about various forms of Amyloidosis. In fact, Mayo said last year that they could not deny, without much further testing, that I have some form of FreeLiteChain Amyloidosis. Based on the tests they have done on me, I prove positive with the SERUM FreeLiteChain(C) sFLC-Bindings UK assay. I may have such things as AL (Amyloidosis Light Chair) ACys (Cystatin-C), AGel (Gelsolin) or others. It — or they — may be primary, systemic, localized, or so on. You can read my story at https://bit.Ly/1w7j4j8, titled Amyloidosis Series 13 or Amyloidosis Series 12. But in any event, what is important here is that Light Chain Amyloidosis is quite possibly the cause of your brachioradial pruritis. My arms have bled, oozed various liquids and gels, been black with cross-hatch furrows, and itched badly enough to make me think I am losing my mind. I get a little relief from some various medicated creams, But there is not much that helps. Only having an idea what is going on. Your local clinic can work with various top labs to do the sFLC and 24hr urine tests, but most doctors are too lazy to do that so they rely on their local clinics. But these are almost never well enough equipped to do the work. It takes a top lab like Mayo or ARUP or Brigham and Women’s, or Stanford to get the protein dX done properly. The lab needs to have an Atom-Force microscope and other very expensive equipment to do it right. Do not settle for anything less. Read the work of the Mayo staff on their web page, about Amyloidosis, or go to AmyloidosisFoundation.Org. The biggest problem I have with this is untrained doctors and labs. But it is time for your arms to stop bleeding and oozing like mine.

My brother-in-law had this and the only thing that helped this was putting frozen peas on his arms. The
doctors he saw had no answer and wanted him to see a psychiatrist. All of a sudden it went away and never returned.

Mine went away for 2 1/2 years and it came
Back one year ago. Yes, ice on my arm calms it down. Thank you for sharing

Hello @njcarolnjn,

Welcome to Connect. I’m so sorry you are going through this. We understand how difficult it can be to deal with such a chronic condition, and it’s important to know you are not alone! I’m tagging @thedinnymurph @darlia who have also dealt with similar issues and may be able to provide some support. Your Connect community is here for you!

If at any point you start to feel like you may consider hurting yourself, please call or text the 988 Suicide & Crisis Lifeline https://988lifeline.org for immediate help. Your experiences are real, and your feelings valid.
Your safety is the most important thing to us and needing to talk to a professional doesn’t show weakness – it shows strength!

thank ypu very much my biggest issue is no one believes me. i no longer know where to turn 5 years and counting

i wish

just one part if my arm

That is just awful. Mine has not
Gotten that bad even though it is chronic.