Mayo Clinic Connect
Does anyone know of this. I think its rare but does exist. My neurologist does not know about this. I have compression between my c5 and c6 cervical disk and have had alot of sun damage to my skin.
Liked by karenvduke
My therapist and doctors believe it’s stess related and mine sometines comes out as a rash and now it hits everywhere; legs, arms and belly. The doctor gave me itching cream which does help (only use for two weeks and stop, he calls the rash chiggers….lol) after that a month later the itching starts again and not long after the rash comes. This is very nerving and only me and my daughter has this condition, my husband and friend doesn’t. Any clue could help.
I can’t believe
That it is stress
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My local doctors are Clueless about Brachioradial pruritus.
Liked by kimklein4759
my understanding is that BRP is limited to the arms and is not stress related. I’ve read that there seems to be some link to sun exposure but stress? no
BP does not present with s rash there not s thing a dermatologist csn do for u actually theres mothing anyone can do
This discussion about Brachioradial Pruritis is just stunning to me, because I may have slipped into that world myself. My arms itch this December as they did a year ago. The itch also affects my legs (up to about mid-thigh) and my waist and belly. Two dermatologists gave me prescriptions for the same ointment, with instructions to use it sparingly and not ask for more. As an A-fib patient using blood-thinners to prevent blood clots, the scratching to alleviate the itch draws blood spots on both arms and legs.
The dermatologists are unsure of a diagnosis, never mentioned BRP, and asked about humidity in my house. I focused on that, because of the seasonal itching — starting and worsening as the weather gets cold and my home gets heated with a gas furnace. But humidity is not the problem! I have a good large humidifier on my forced-air heating system. So, the dermatologist asked, whaddaya use as laundry soap to wash your underwear and your socks? He was suggesting a chemical allergy, and I took that as a serious possibility and have used nonallergenic laundry soap since then. But allergy is not the problem! I still itch (although not as intolerably as others in this discussion).
My latest tactic gave me some relief: I scrubbed my arms and legs with a soft wash cloth using nonallergenic bath soap. That gave me one day of relief. I have used moisturizing skin lotion and also got a day or two of relief. My next tactic is a total chemical analysis of our public water supply. Then (if the water seems innocent) long soaks in the tub rather than long showers. I’ll keep you posted.
Now for quick read of the material that Kanaaz introduced last Monday.
Liked by Jamie Olson
I agree there’s not much a dermatologist can do except that a steroid cream with lidocaine has provided a bit of relief IF I can catch the itch very early (and if the moon is full and the tide is low, etc etc ha ha). BUT I DO THINK neurological intervention may be a key here. I’m going to keep trying.
Again, BRP does not present with a rash and occurs on the arms
In my case, I haven’t experienced a rash. Moreover, a number of research articles on BRP report that, although it originates ordinarily on the arms, it sometimes replicates elsewhere, especially around the belly and on the lower legs. Could this not suggest a link with a neurological problem?
There are no answers here…no answers anywhere. I guess I shouldnt worry to much I will be dead soon due to lack of restorative sleep
Hi fellow BRP sufferers, especially @njcarolnjn ….I’m so very very sorry to know of your suffering and dilemma as I too have just gone nuts with this ridiculous condition. Had my third cervical epidural administered by the pain doc on Dec 1. By Dec 2 I was scratching. He said the third epidural might be the charm. NOT! Now the option he suggests is to see a neurosurgeon for spinal surgery on the cervical discs that are so bad they have caused the stenosis that’s causing the impingement on the nerves that’s causing the CRAZY ITCH/PAIN/BURN. So like you all I’m back to ice, ice, ice and steroid cream and lidocaine and pramoxine. Really nothing but ice helps and even that takes longer and longer to soothe.
Before I even think seriously about surgery, I’ll try acupuncture and I read about a topical mixture of Elavil and ketamine (anybody try that?) My neurologist suggests mindfulness therapy!!!! He nearly launched me out of my chair! I told him I see a therapist already and am on Effexor and mirtazapine for depression and he can go mindful himself.
This BRP is starting to kind of take over my life. FL has approved medical marijuana and the pain doc said he could offer that. Whatever.
i dont believe i saw this mindfullness yeah ok dont ya love it i feel like a dog that needs to be put out of his misery. i had a ketimine cream compounded just drugged me. i had lumbar surgery last year and im worse. i dont know what to do ive aged 1o years no one has any answers
oh acupuncture dudnt work for me either. Im now trying cyrotherapy and no glutten no sugar diet
it has taken over my life
@njcarolnjn and @david33 I am convinced to two things with the stuff you struggle with. First, the only relationship to stress comes when this takes over your lives and your emotions and everything else. Second, the core of the disorder is inside your sensori-motor nerves, especially down your spines. It is not on or in your skin. It will break down your nerves, especially from your brain to your heart or lungs or pancreas if it is not stopped. Whether it is the same stuff I have I don’t know, but I have a couple suggestions. They rely on you taking control of your nerves. In other words, start by doing various motions such as stretching and bending and lifting small stuff, and see if you can figure out where in the nerve train things seem to be affecting your pruritis. Then concentrate on your own movements and body controls to try to make it less powerful. I went through a period of time several years ago when everything I had itched. It lasted a couple years before I finally began to make it respond to my own body language. I tried every creme available, morphine, etc. that I and the doctors could find. Absolutely nothing worked until I tried this. It wasn’t a complete cure, but it slowly helped, and it was something I could do, and inexpensive. I still itch a lot, but not nearly as bad. There are some simple signs. Foam or bubbles in the urine. Black or blue or purple spots on toes or around eyes or near syringe sites. Red eyelids. Bloody urine or stools. AFib. Tachycardia. Growing dementia. I know now it was some form of Amyloidosis, a disorder of blood, urine and protein, that gets into your nerve chains, separating the cells and shorting out the electrical circuits. It is rare, but deadly if not treated. And there is good treatment now. Have your Bindings SERUM FreeLiteChain Assay done. If your sFLC is over 1.4 mg/deciliter, or there is any other problem with your protein, plasma, urine, etc., have a strong lab check it out. It takes a special lab, such as Mayo, ARUP, Sloan Kettering, etc. And don’t let your local medicos talk you out of getting the strongest lab work possible. About 8 persons each year out of each million will be diagnosed. Probably ten times as many get it and die without diagnosis.
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