Mayo Clinic Connect
Does anyone know of this. I think its rare but does exist. My neurologist does not know about this. I have compression between my c5 and c6 cervical disk and have had alot of sun damage to my skin.
Liked by karenvduke
Hi, check out this link I found on https://www.dermnetnz.org/topics/brachioradial-pruritus I have severe itching all over, but mine is due to diabetes and MS, I actually scratch sores on my arms and neck in my sleep and wake up with little drops of blood on my pillowcase and sheet. Very annoying to have to wash out blood a couple times a week!
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thank you may we all fins some relief soon
Liked by Jamie Olson
@njcarolnjn Hi, my friend. Just read your note, and recognize myself in it. I knew I was fighting itching on my forearms at an awful pace, but had no idea itwas “brachioradial pruritis”. But the term does make sense, although by struggling and studying a lot by myself I have learned what is causing mine. It may or may not be same as yours, but the experience sounds about the same. And I have the scars on my arms to prove it. I got wind of the dX a couple years ago, and have since learned a lot about various forms of Amyloidosis. In fact, Mayo said last year that they could not deny, without much further testing, that I have some form of FreeLiteChain Amyloidosis. Based on the tests they have done on me, I prove positive with the SERUM FreeLiteChain(C) sFLC-Bindings UK assay. I may have such things as AL (Amyloidosis Light Chair) ACys (Cystatin-C), AGel (Gelsolin) or others. It — or they — may be primary, systemic, localized, or so on. You can read my story at https://bit.Ly/1w7j4j8, titled Amyloidosis Series 13 or Amyloidosis Series 12. But in any event, what is important here is that Light Chain Amyloidosis is quite possibly the cause of your brachioradial pruritis. My arms have bled, oozed various liquids and gels, been black with cross-hatch furrows, and itched badly enough to make me think I am losing my mind. I get a little relief from some various medicated creams, But there is not much that helps. Only having an idea what is going on. Your local clinic can work with various top labs to do the sFLC and 24hr urine tests, but most doctors are too lazy to do that so they rely on their local clinics. But these are almost never well enough equipped to do the work. It takes a top lab like Mayo or ARUP or Brigham and Women’s, or Stanford to get the protein dX done properly. The lab needs to have an Atom-Force microscope and other very expensive equipment to do it right. Do not settle for anything less. Read the work of the Mayo staff on their web page, about Amyloidosis, or go to AmyloidosisFoundation.Org. The biggest problem I have with this is untrained doctors and labs. But it is time for your arms to stop bleeding and oozing like mine.
do u think this might be a possibly? to whom do i turn every doctor i turn to already think im nuts…the odd rhink for me is i go into remission 5 months out of the year its january though this is the longest bought since August
Re your graphic… yes I’ve looked like that too. I don’t have sheets or pillowcases that aren’t stained! But wait!! You get into remission ???? That’s good at least u get a break. I don’t. I’m in Florida and I do believe the heat and sun have a lot to do with the situation. Even though I never expose my arms without my armor of sunscreen etc I still get it. I’m so sympathetic. Please don’t give up. Did the chiropractor help you?
Liked by Colleen Young, Connect Director
Benzocaine comes in topical forms (also called lidocaine). I buy Solarcaine but it can be in a generic form, too. I get the spray so touching the skin is not necessary. It also comes in a gel form, for dry skin that’s oily.
US Brand Name
Canadian Brand Name
Baby Orajel Nighttime Formula
Dermoplast Maximum Strength
@njcarolnjn, Hello. I’m sorry to hear that you are frustrated and fed up. I bet it’s really tough to deal with this day in and day out. However, I’m glad that you have found this community and glad that you are not alone in suffering with symptoms. Please use this forum to connect with others suffering and keep hope that with sharing ideas and knowledge we will continue to learn from each other.
Was surgery on your neck an option to help with symptoms?
no one will address the nerve pain one neurologist said i will be in a wheelchair if neck issues not addressed what wvwr that means i fractured lumbar disc last year they want to fuse neck and back… no way i dont trust a one if them
no not at all i love the beach i will be forced to aee my home and go on disability soon i was going to fl but now thats out of the question i think yes for 5 years it atarts end of august and usualkt ends mid dec this year not so this year i got arung by bees like 8 times that started this round
maybe if it were my only issue once my disc broke my life ended i think
oh wow. That’s a big decision. My husband had a spot in his back fused. It saved him….4 years of pain and depression and he finally said he couldn’t live like that anymore. He did his research and chose a surgeon- Dr. Bradford Currier was his name. He was fabulous. It didn’t take all of his pain away but it took it to a tolerable level. A decision that to this day, he doesn’t regret.
i took a chance on what they told me was relatively minor surgery my surgeon now says its was acrap shoot maybe when yr young and strong i just turned 60 two years ago i looked 40 now i look 80
i believe the end of my life has come depressed yes severely
i tired tired of incompetent drs who are not as smart as they pretend to be
Liked by Lmnl09
by the way what is a SPOT?
acupucture does not work nothing works i am seriously thi king of taking my life because of this there is no relief my arms are scared for life have not selp in months all drs i see think im crazy
What is “atlas technique”?
Atlas is a disc cervical the belief is once again if properly alighned can correct many issues one person posted thiis worked for him alas not for nothing works for me
troubling update my eyes have been hurting for weeks now driving yestetday my vision very blurry im very frightened i know im really sick whats wrong who knows
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