Does anyone know of this. I think its rare but does exist. My neurologist does not know about this. I have compression between my c5 and c6 cervical disk and have had alot of sun damage to my skin.
Liked by karenvduke
Hi @donnany. Welcome! Happy to have you here.
That’s great you have had success with your Chiropractor. What kind of regimen does he/she have you on?
@thedinnymurph, have you considered Chiropractic care? I would be curious to know if acupuncture would help?
Liked by Kanaaz Pereira, Connect Moderator
@njcarolnjn Hi, my friend. Just read your note, and recognize myself in it. I knew I was fighting itching on my forearms at an awful pace, but had no idea itwas “brachioradial pruritis”. But the term does make sense, although by struggling and studying a lot by myself I have learned what is causing mine. It may or may not be same as yours, but the experience sounds about the same. And I have the scars on my arms to prove it. I got wind of the dX a couple years ago, and have since learned a lot about various forms of Amyloidosis. In fact, Mayo said last year that they could not deny, without much further testing, that I have some form of FreeLiteChain Amyloidosis. Based on the tests they have done on me, I prove positive with the SERUM FreeLiteChain(C) sFLC-Bindings UK assay. I may have such things as AL (Amyloidosis Light Chair) ACys (Cystatin-C), AGel (Gelsolin) or others. It — or they — may be primary, systemic, localized, or so on. You can read my story at https://bit.Ly/1w7j4j8, titled Amyloidosis Series 13 or Amyloidosis Series 12. But in any event, what is important here is that Light Chain Amyloidosis is quite possibly the cause of your brachioradial pruritis. My arms have bled, oozed various liquids and gels, been black with cross-hatch furrows, and itched badly enough to make me think I am losing my mind. I get a little relief from some various medicated creams, But there is not much that helps. Only having an idea what is going on. Your local clinic can work with various top labs to do the sFLC and 24hr urine tests, but most doctors are too lazy to do that so they rely on their local clinics. But these are almost never well enough equipped to do the work. It takes a top lab like Mayo or ARUP or Brigham and Women’s, or Stanford to get the protein dX done properly. The lab needs to have an Atom-Force microscope and other very expensive equipment to do it right. Do not settle for anything less. Read the work of the Mayo staff on their web page, about Amyloidosis, or go to AmyloidosisFoundation.Org. The biggest problem I have with this is untrained doctors and labs. But it is time for your arms to stop bleeding and oozing like mine.
My brother-in-law had this and the only thing that helped this was putting frozen peas on his arms. The
doctors he saw had no answer and wanted him to see a psychiatrist. All of a sudden it went away and never returned.
Liked by Kanaaz Pereira, Connect Moderator
Mine went away for 2 1/2 years and it came
Back one year ago. Yes, ice on my arm calms it down. Thank you for sharing
Liked by Kanaaz Pereira, Connect Moderator
@darlia
I will be 59 in Jan. Mine started probably about 8 yrs ago if I remember correctly. It’s random and can go for a long stretch he without it like many months and then BAM! I’ve tried Aloe directly from the plant, calamine lotion, aloe in a bottle, medicated powder.. with only a slight bit of diff but I would say that the Dermatologist gave me a steroid based prescription that is a clear ointment and I think it helped a little too. He hadn’t prescribed it for this but for a little Ezema on the back of my forearms but also this itch thing hasn’t been diagnosed.
Darlia