Mayo Clinic Connect
Does anyone know of this. I think its rare but does exist. My neurologist does not know about this. I have compression between my c5 and c6 cervical disk and have had alot of sun damage to my skin.
Liked by karenvduke
Hi @froglegs, welcome to Connect. Please meet @salemm72 who also recently joined Connect and posted about brachioradial pruritus (BRP). How long have you been dealing with BRP?
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I will be 59 in Jan. Mine started probably about 8 yrs ago if I remember correctly. It’s random and can go for a long stretch he without it like many months and then BAM! I’ve tried Aloe directly from the plant, calamine lotion, aloe in a bottle, medicated powder.. with only a slight bit of diff but I would say that the Dermatologist gave me a steroid based prescription that is a clear ointment and I think it helped a little too. He hadn’t prescribed it for this but for a little Ezema on the back of my forearms but also this itch thing hasn’t been diagnosed.
Mine Will calm down for a couple of days after I apply a water bottle full of ice cubes all night on my forarm. I fall asleep with the bag of ice againt the itch. I must numb it into submission. I’ve tries every ointment without any luck
I will scratch like mad! But it has to just go away on its own. It gets red from scratching so much and like you, no rash, NOTHING there when it strikes!
I have used a chiropractor with some success.
Oh, it’s real, alright!!!! Very very real!! Although there is no rash, I often leave marks on my skin where I scratch and dig until I bleed. I have scars from scratching.
I’ve done THE EXACT SAME THING! During our last hurricane here in FL, Irma, when we had no ice, I thought I would literally go out of my mind.
Hi @donnany. Welcome! Happy to have you here.
That’s great you have had success with your Chiropractor. What kind of regimen does he/she have you on?
@thedinnymurph, have you considered Chiropractic care? I would be curious to know if acupuncture would help?
Liked by Kanaaz Pereira, Connect Moderator
I leave red marks as well. It’s very intense and very crazy.
Are you in the keys?
I grew up in Sarasota
I went to Mayo I think in 2013. The dermatologist that I saw diagnosed my itch as the BRP. I am going back there soon to see if any thing new has been discovered to treat it
acupucture does not work nothing works i am seriously thi king of taking my life because of this there is no relief my arms are scared for life have not selp in months all drs i see think im crazy
@njcarolnjn Hi, my friend. Just read your note, and recognize myself in it. I knew I was fighting itching on my forearms at an awful pace, but had no idea itwas “brachioradial pruritis”. But the term does make sense, although by struggling and studying a lot by myself I have learned what is causing mine. It may or may not be same as yours, but the experience sounds about the same. And I have the scars on my arms to prove it. I got wind of the dX a couple years ago, and have since learned a lot about various forms of Amyloidosis. In fact, Mayo said last year that they could not deny, without much further testing, that I have some form of FreeLiteChain Amyloidosis. Based on the tests they have done on me, I prove positive with the SERUM FreeLiteChain(C) sFLC-Bindings UK assay. I may have such things as AL (Amyloidosis Light Chair) ACys (Cystatin-C), AGel (Gelsolin) or others. It — or they — may be primary, systemic, localized, or so on. You can read my story at https://bit.Ly/1w7j4j8, titled Amyloidosis Series 13 or Amyloidosis Series 12. But in any event, what is important here is that Light Chain Amyloidosis is quite possibly the cause of your brachioradial pruritis. My arms have bled, oozed various liquids and gels, been black with cross-hatch furrows, and itched badly enough to make me think I am losing my mind. I get a little relief from some various medicated creams, But there is not much that helps. Only having an idea what is going on. Your local clinic can work with various top labs to do the sFLC and 24hr urine tests, but most doctors are too lazy to do that so they rely on their local clinics. But these are almost never well enough equipped to do the work. It takes a top lab like Mayo or ARUP or Brigham and Women’s, or Stanford to get the protein dX done properly. The lab needs to have an Atom-Force microscope and other very expensive equipment to do it right. Do not settle for anything less. Read the work of the Mayo staff on their web page, about Amyloidosis, or go to AmyloidosisFoundation.Org. The biggest problem I have with this is untrained doctors and labs. But it is time for your arms to stop bleeding and oozing like mine.
Liked by Kanaaz Pereira, Connect Moderator, thedinnymurph
My brother-in-law had this and the only thing that helped this was putting frozen peas on his arms. The
doctors he saw had no answer and wanted him to see a psychiatrist. All of a sudden it went away and never returned.
Mine went away for 2 1/2 years and it came
Back one year ago. Yes, ice on my arm calms it down. Thank you for sharing
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