Benign carcinoid tumor in bronchi tube
Hi I've been diagnosed with a benign typical carcinoid tumor in my bronchi tube in right lung was found when I went to A&E with pneumonia back in July of this year I've had 2 bronchoscopys 2 biopys which showed benign carcinoid tumor I was sent for ct scan mri scan and pet scan pet scan was clear I was put under general anesthetic as my lung specialist said he might be able to remove tumor by going down my throat instead of haven surgery but didn't work but he was able to take 40% of tumor out as it was blocking my air way that's how pneumonia set in the 40% he removed also came back benign carcinoid 1 lymph node was removed and checked also clear now I need surgery to remove the rest I'm so confused as doctor said its a benign tumor then Google is telling me it's a low grade cancerous tumor but doctor nor lung specialist said anything about cancer just said its benign doesnt benign mean non cancerous and can any one tell me how surgery went thank you bless you all xx
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@nannybb yea
@jessie1990
I was just going to tell you everything Colleen is saying. Everything they are doing to prepare right now and all the possibilities they mention are just their routine protocol for everyone. It’s just part of the standard process. You want them to do a CT scan before surgery (easy). The more you can just rest and go with the flow right now, the easier your recovery will be. No need to ask about biopsy outcomes right now because you’re going to have the pathology report in hand very soon and you’ll know everything for sure. I’ve had 50+ typical carcinoids in both lungs for decades and they are still stage 1 and have never spread outside my lungs. Very very very slow growing. I’m doing well. People like you that just have a single typical carcinoid just have that section of the lung removed and then get back to their life with just periodic CT scans to be sure. Anesthesia is more risky for seniors. You’re young and that works in your favor. You’re going to be okay. When I’m trying to get the time to pass quickly like during an MRI, I just close my eyes and start praying for each and every person I know. Everyone has challenges and could all use your prayers. Try it and you might even fall asleep. Just keep doing that. Put your thoughts on other things right now and just trust that your medical team knows what they are doing. They are all working together to help you. After surgery you’ll start healing and things will get better and better. Close your eyes, take a few deep slow breaths and start praying for each person you know, one at a time. We’ll all pray for you. ❤️
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2 Reactions@californiazebra thank you so much 🥰 I'm just super worried now that he said if report comes back atypical I might need treatment but I've had scans and biopys done and half of it removed and they have come back typical so I'm so confused and upset
@jessie1990
The surgeon’s legal team makes him mention every remote possibility so no one sues them later saying you never mentioned that before. Following that protocol makes the hospital legal team happy but unnecessarily scares patients. I know because I’ve been on the receiving end of those disclaimers and it’s no fun. You can’t change anything today, so focus on other things. Remember the serenity prayer, “God, help me change the things I can, accept the things I cannot change, and have the wisdom to know the difference.”
Here’s another distraction technique used to treat insomnia for people with a busy mind. Slowly go thru the alphabet and think of a word that starts with each letter. A is for Apple. B is for bicycle. C is for cat. Etc. If you’re still awake by z then start over and think of new words each time. Jessie, you need to tell yourself you don’t want to worry anymore and make a decision to try some of these distraction techniques. We can’t control our first thought, but we can control our second thought. Your first thought right now is to worry. That’s understandable. We all do it. Your second thought is for you to decide if you’re going to keep focusing on that worry or if you’re going to try to focus on something else. Please give something else a try. You can do it.
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1 Reaction@californiazebra just back from ct
@californiazebra can typical carcinoid been confirmed by biopys and having half of it removed also showed typical surely can't turn atypical can it
@californiazebra @nannybb @tomrennie had my surgery yesterday in alot of pain 😭 6 hours in surgery took middle lobe and lower lobe through open surgery I'm on chest drain plus epidural pump but so so sore
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1 ReactionOh Jess...SIX hours! I'm so glad that part is over. Do you just have one chest tube? Taking as much of your lung as they did, it's no wonder you were in as much pain as you were. I hope they are able to keep ahead of your pain and it allows you to sleep. You have been on my mind and in my prayers. Keep us posted as you feel you can do so. 💕
@nannybb yes 6 hrs went to sleep at 1 woke me in icu at 6.35 I've chest tube urine bag and epidural pump connected to me haven't slept a wink last night or night before I'm waiting on doctor to come around to fix chest drain its after loosening
@jessie1990
Wow, Jessie, 6 hours! So glad it’s over so you can start healing now. Hope they can manage the pain for you and you can get some sleep. 🙏
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