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Benign carcinoid tumor in bronchi tube
Hi I've been diagnosed with a benign typical carcinoid tumor in my bronchi tube in right lung was found when I went to A&E with pneumonia back in July of this year I've had 2 bronchoscopys 2 biopys which showed benign carcinoid tumor I was sent for ct scan mri scan and pet scan pet scan was clear I was put under general anesthetic as my lung specialist said he might be able to remove tumor by going down my throat instead of haven surgery but didn't work but he was able to take 40% of tumor out as it was blocking my air way that's how pneumonia set in the 40% he removed also came back benign carcinoid 1 lymph node was removed and checked also clear now I need surgery to remove the rest I'm so confused as doctor said its a benign tumor then Google is telling me it's a low grade cancerous tumor but doctor nor lung specialist said anything about cancer just said its benign doesnt benign mean non cancerous and can any one tell me how surgery went thank you bless you all xx
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@jessie1990 Jess are you saying they are telling you before they have operated that it has changed from typical to atypical?
@nannybb I need it in my back for pain management nope I didn't ask for meds I'm going to ask In amin if I'm finding it hard to sleep
@nannybb no he said he will take lymph nodes and send them to lab also to see if it has spread
@jessie1990, I see that @nannybb is virtually by your side as you prepare for surgery tomorrow. I'm so glad the two of you have connected.
I wanted to pop in and mention a few things.
You are going to be okay. The surgeon wants you to get through this surgery as safely as you do. But they are obliged to tell you about all the possible risks with surgery and general anesthesia. It makes it sound scary. You're strong and you can do this for you and your family.
After surgery, they will do more testing on the tumor and lymph nodes to confirm the diagnosis and to make sure you get the care you need if necessary.
I also agree with @nannybb that you should let your nurse or doctor know that you are feeling especially anxious. They can help. You might ask if you can see a hospital chaplain or cancer social worker. They can be so helpful to get you through today and the night.
Here's a exercise you can do if you feel anxious that might help.
5-4-3-2-1 Technique: Name 5 things you see, 4 you feel, 3 you hear, 2 you smell, and 1 you taste. This anchors you in the present.
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3 Reactions@nannybb yes think before they give me epidural
@jessie1990 Then that's a good thing! Jess, try to concentrate on getting the rest of the tumor out. You have waited so long. Are you having general anesthesia plus the epidural?
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1 Reaction@colleenyoung hi yes @nannybb is a lovely lady 🥰 my concern is if my tumor was confirmed on biopsys as typical my pet/ct scan was clear half of tumor was removed in sept this year that also came back typical one lymph node waw checked when the half was removed that was also clear so do I need to worry about it been atypical now is that possible
You can ask for sleep AND your anxiety. I would. It does not help your body being in an anxious state. Just ask if you feel ok to.
@jessie1990 Yes. That is how they usually detect if it has moved anywhere else. It's all good.
@jessie1990, it is routine to check the removed tumor and lymph nodes. I can understand you're worried, but you don't need to worry about this. They have to check just to be sure. Your team is doing the right thing. They got this. You got this.
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