Benign carcinoid tumor in bronchi tube

Posted by jessie1990 @jessie1990, Oct 30, 2025

Hi I've been diagnosed with a benign typical carcinoid tumor in my bronchi tube in right lung was found when I went to A&E with pneumonia back in July of this year I've had 2 bronchoscopys 2 biopys which showed benign carcinoid tumor I was sent for ct scan mri scan and pet scan pet scan was clear I was put under general anesthetic as my lung specialist said he might be able to remove tumor by going down my throat instead of haven surgery but didn't work but he was able to take 40% of tumor out as it was blocking my air way that's how pneumonia set in the 40% he removed also came back benign carcinoid 1 lymph node was removed and checked also clear now I need surgery to remove the rest I'm so confused as doctor said its a benign tumor then Google is telling me it's a low grade cancerous tumor but doctor nor lung specialist said anything about cancer just said its benign doesnt benign mean non cancerous and can any one tell me how surgery went thank you bless you all xx

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Profile picture for jessie1990 @jessie1990

@nannybb yes 6 hrs went to sleep at 1 woke me in icu at 6.35 I've chest tube urine bag and epidural pump connected to me haven't slept a wink last night or night before I'm waiting on doctor to come around to fix chest drain its after loosening

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@jessie1990 Now it's pretty clear why they did the epidural and the general on you. Are you able to see your partner at all for a brief visit?

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Profile picture for jessie1990 @jessie1990

@californiazebra @nannybb @tomrennie had my surgery yesterday in alot of pain 😭 6 hours in surgery took middle lobe and lower lobe through open surgery I'm on chest drain plus epidural pump but so so sore

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@jessie1990 Wow. You have to be so relieved that it is over. Hopefully you can now get some rest and recover.

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@jessie1990
Wow, Jessie, 6 hours! So glad it’s over so you can start healing now. Hope they can manage the pain for you and you can get some sleep. 🙏

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@californiazebra yes 6 hrs they had to remove to lobes lower one and middle one

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Profile picture for nannybb @nannybb

@jessie1990 Now it's pretty clear why they did the epidural and the general on you. Are you able to see your partner at all for a brief visit?

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@nannybb yes I'm still on epidural pump day 3 today post op pain is alot better and I had a good sleep last night also ya my partner and kids cones to me and my parents

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Profile picture for Turkey, Volunteer Mentor @tomrennie

@jessie1990 Wow. You have to be so relieved that it is over. Hopefully you can now get some rest and recover.

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@tomrennie oh my God yes I'm glad it's over and pain is alot better today then it was last to days I had a great sleep last night they gave to tighting my drain tube because it's loose

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Profile picture for jessie1990 @jessie1990

@nannybb yes I'm still on epidural pump day 3 today post op pain is alot better and I had a good sleep last night also ya my partner and kids cones to me and my parents

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@jessie1990 I am so glad Jess! Thank you for keeping me updated 💕 I was worried about your pain level.

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Profile picture for jessie1990 @jessie1990

@nannybb yes I'm still on epidural pump day 3 today post op pain is alot better and I had a good sleep last night also ya my partner and kids cones to me and my parents

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@jessie1990
Good to hear your pain is improving and you were able to get some sleep.

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Profile picture for Zebra @californiazebra

@jessie1990
Good to hear your pain is improving and you were able to get some sleep.

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@californiazebra I no I still feel drained tho

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Profile picture for nannybb @nannybb

@jessie1990 I am so glad Jess! Thank you for keeping me updated 💕 I was worried about your pain level.

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@nannybb it's improving heart rate was high yesterday and this morning but back to normal now again

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Profile picture for jessie1990 @jessie1990

@californiazebra I no I still feel drained tho

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@jessie1990
I’m sure you do. It takes time to recover from major surgery. Hoping you’ll feel a little better each day.

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