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Benign carcinoid tumor in bronchi tube
Hi I've been diagnosed with a benign typical carcinoid tumor in my bronchi tube in right lung was found when I went to A&E with pneumonia back in July of this year I've had 2 bronchoscopys 2 biopys which showed benign carcinoid tumor I was sent for ct scan mri scan and pet scan pet scan was clear I was put under general anesthetic as my lung specialist said he might be able to remove tumor by going down my throat instead of haven surgery but didn't work but he was able to take 40% of tumor out as it was blocking my air way that's how pneumonia set in the 40% he removed also came back benign carcinoid 1 lymph node was removed and checked also clear now I need surgery to remove the rest I'm so confused as doctor said its a benign tumor then Google is telling me it's a low grade cancerous tumor but doctor nor lung specialist said anything about cancer just said its benign doesnt benign mean non cancerous and can any one tell me how surgery went thank you bless you all xx
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Jess, Ask your doctor if it is possible that the tumor has changed to atypical. In reality, he is not going to know anything for sure until he gets the pathology report. I now know, even a PET scan does not always give them much information. The NETs do not always light up. Waiting is torture. I know. But you've gotten this far. You can get through this too Jess. Think a month from now. This will all be behind you. 💕
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1 Reaction@nannybb yes both
@colleenyoung thank you so much 💓
@nannybb I'm going to ask him if he comes back to me
@jessie1990 Jess, I'm wearing my new Ireland sweatshirt just for you whole I have my video chat with pain specialist today @ 5:00 💕 I know you are not in the mood to laugh, but could I get a smile? Have you thought about a hospital chaplain coming and praying with you? It's was a good suggestion if you feel comfortable doing so.
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1 Reaction@jessie1990 And any other questions you might have before they wheel you to surgery. Some of what you asked in here, I cannot answer. Not in this forum. There are limits. But you can ,or should be able to ask your doctor anything. 💕
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1 Reaction@nannybb ireland sweatshirt 😊 I hope you get some answers regarding your pain 💓
Thank you Sweetness. Me too. I'm honestly thinking more about you right now. 🙏
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1 Reaction@nannybb thank you so very much 🥰 2.33am here waking every hour 🥹
Jess, are you still awake?