Benign carcinoid tumor in bronchi tube

Posted by jessie1990 @jessie1990, Oct 30, 2025

Hi I've been diagnosed with a benign typical carcinoid tumor in my bronchi tube in right lung was found when I went to A&E with pneumonia back in July of this year I've had 2 bronchoscopys 2 biopys which showed benign carcinoid tumor I was sent for ct scan mri scan and pet scan pet scan was clear I was put under general anesthetic as my lung specialist said he might be able to remove tumor by going down my throat instead of haven surgery but didn't work but he was able to take 40% of tumor out as it was blocking my air way that's how pneumonia set in the 40% he removed also came back benign carcinoid 1 lymph node was removed and checked also clear now I need surgery to remove the rest I'm so confused as doctor said its a benign tumor then Google is telling me it's a low grade cancerous tumor but doctor nor lung specialist said anything about cancer just said its benign doesnt benign mean non cancerous and can any one tell me how surgery went thank you bless you all xx

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@hopeful33250 so you have been all clear for 10 years with no recurrence

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@jessie1990
Yes! However, I did have a recurrence after 11 years, as my 2nd surgery was in 2005 and my third surgery was in 2016. So far, the lesions have all been small with no apparent lymph node involvment.

I look at any cancer as a chronic illness. It is a journey you take with the best doctors you can find and ample personal support. Do you have a good support community of family and friends?

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@jessie1990
Yes! However, I did have a recurrence after 11 years, as my 2nd surgery was in 2005 and my third surgery was in 2016. So far, the lesions have all been small with no apparent lymph node involvment.

I look at any cancer as a chronic illness. It is a journey you take with the best doctors you can find and ample personal support. Do you have a good support community of family and friends?

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@hopeful33250 wow 11 years.. yes I have alot of support from family I live with my partner and 3 kids

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My partner booked a night away for us both for valentines day I'm just wondering have any of ye had a drink while ye were away I'm not really a drinker but if im away just wondering is it safe or not ❤️

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