Autoimmune disease and temperature regulation

Posted by 1corinthians926 @1corinthians926, Jan 18, 2019

Does anyone have issues getting and staying warm? I am especially having this problem in large buildings with any AC. I often have to wear a hat and gloves indoors. I also have many blankets on my bed and still sleep in pants, sweatshirt, hat, and gloves. Maybe this is completely unrelated to autoimmune disease, just want to check with others.

Hello @1corinthians926, I have issues staying warm myself. In the winter I sleep in a sweatshirt and use electric blankets. When my mother-in-law lived with us for many years before she passed away, we always had to have the house at 78 degrees and I was sweating profusely and would find refuge in the basement. Now it seems I have become her except that I keep the temp around 70 degrees in the winter. I have small fiber PN and my hands get really cold easily. My feet are always cold, even in the summer. It maybe related to autoimmune diseases or just poor circulation but that might also be related to autoimmune diseases. I'm just happy to have a warm coat and gloves when I have to go outside and a warm house to retreat to.

Hoping we can all stay warm ☺

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Hello @1corinthians926

I agree with John, reactions to cold and heat are certainly symptomatic of autoimmune disorders. Autoimmune disorders can be difficult to diagnosis.
Have you seen a rheumatologist to discuss this matter of an autoimmune disorder?

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Hi there. Yes I have two autoimmune diseases and am as cold as you have stated perhaps even more so. But, I am also quite ANEMIC which contributes to the coldness. Perhaps you should be checked for anemia. Let me know if you are so It can help me to figure out my problems as well. I thank you, Peach.

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@johnbishop

Hello @1corinthians926, I have issues staying warm myself. In the winter I sleep in a sweatshirt and use electric blankets. When my mother-in-law lived with us for many years before she passed away, we always had to have the house at 78 degrees and I was sweating profusely and would find refuge in the basement. Now it seems I have become her except that I keep the temp around 70 degrees in the winter. I have small fiber PN and my hands get really cold easily. My feet are always cold, even in the summer. It maybe related to autoimmune diseases or just poor circulation but that might also be related to autoimmune diseases. I'm just happy to have a warm coat and gloves when I have to go outside and a warm house to retreat to.

Hoping we can all stay warm ☺

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I also sleep with an electric blanket and three layers of nightwear (including a sweatshirt and pants). I place the electric blanket on top of the bed blankets because of the probability that the electric blanket can do harm to the body. During the day I wear three layers of clothing in the house and I live in Florida. Outside I place a heavy duty coat on top. Peach

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@peach414144 I do take iron supplements which could be why anemia doesn’t show up on blood tests. I also have bradycardia but my hr has been elevated 10-15 above where it was before Plaquinol.

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Hi again. I also take 6000 mg's of disolvable iron under the tongue. It does not help me. But still, perhaps You should have a complete blood panel test. It could not hurt and usually reveals so much of what is going on within the body. Also, I have just started going to a new oncologist who will start treating me in the manner that should have been treated. Now we will be more hopeful. Good luck, Peach.

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@peach414144

Hi again. I also take 6000 mg's of disolvable iron under the tongue. It does not help me. But still, perhaps You should have a complete blood panel test. It could not hurt and usually reveals so much of what is going on within the body. Also, I have just started going to a new oncologist who will start treating me in the manner that should have been treated. Now we will be more hopeful. Good luck, Peach.

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Have you tried Vitron C? The Vit C is supposed to help with absorption.

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@hopeful33250

Hello @1corinthians926

I agree with John, reactions to cold and heat are certainly symptomatic of autoimmune disorders. Autoimmune disorders can be difficult to diagnosis.
Have you seen a rheumatologist to discuss this matter of an autoimmune disorder?

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Yes @hopeful33250 ! Tentative UMCTD diagnosis as well as SCLE. Waiting for Mayo appt to get some more answers.

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Hello my name is Beryl ….the best thing to keep warm , apart from our electrical devices, is a good down duvet on the bed …….can't beat it ……I have to keep it my side of the bed as my husband would melt under it …..bit like you John having to go down into the basement ha ha …..

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@1corinthians926

Have you tried Vitron C? The Vit C is supposed to help with absorption.

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Yes, I am on this vitamin and other special ones. Am not ready to give up yet. Thanks for the help, Peach

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@1corinthians926 , I am late in the game here, but here is my two cents on the subject. I am an old Granny who has gone from freezing to death all the way to tropical hot flashes, all for a period of over twenty years. I have Type 2 Diabetes , Fibromyalgia, and Osteoarthritis. Degenerative Disc Disease, Spinal Stenosis, and a laundry list of other things. I suspect my literal nervous system , which includes the Fibromyalgia, for the reason I am never in a coat during the winter. I rarely even wear sweaters. I simply get too hot. I have been known to wear shorts and a tee shirt inside my cozy home when there is a blizzard outside. Tomorrow we are expecting the coldest day of the year, and I am so excited to be able to perhaps wear a sweater to church! I have felt for years that it is my Fibromyalgia that makes me run so hot. That and maybe anxiety. I am also severely allergic to many foods and environmental triggers. The anxiety comes from hypervigilence, and hyper sensitivity. I hear off the charts, being a member of the Autism club. I can detect specific odors a mile away. Makes for interesting outings. I hope that something I have said proves useful for you. Take everything with a grain of salt. Do your own research and get the best doctor you can find. Good luck and this Mama hopes you are feeling better soon!

Mamacita

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@beryl

Hello my name is Beryl ….the best thing to keep warm , apart from our electrical devices, is a good down duvet on the bed …….can't beat it ……I have to keep it my side of the bed as my husband would melt under it …..bit like you John having to go down into the basement ha ha …..

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@beryl, I agree, a Down Duvet is amazing. If you are allergic to Down feathers, as I am, there are indeed amazing Down alternatives that do a very good job. I purchased two comforters from Zulilly and we have been very happy with them. They are not as dense as my MIL's Down duvet, but they are better for me than sneezing all the time! Hapoy, healthy days to you and yours!
Mamacita

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@peach414144

Hi again. I also take 6000 mg's of disolvable iron under the tongue. It does not help me. But still, perhaps You should have a complete blood panel test. It could not hurt and usually reveals so much of what is going on within the body. Also, I have just started going to a new oncologist who will start treating me in the manner that should have been treated. Now we will be more hopeful. Good luck, Peach.

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@peach414144 Sometimes blood thinners will cause coldness also like Coumadin

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@lioness

@peach414144 Sometimes blood thinners will cause coldness also like Coumadin

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Thanks but not on blood thinners now. Peach

Liked by lioness, beryl

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@lioness

@peach414144 Sometimes blood thinners will cause coldness also like Coumadin

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Thank you for thinking of me but I am not on blod thinners. Still, it was a good idea.

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