Autoimmune & temperature regulation: How do you get warm?

Posted by 1corinthians926 @1corinthians926, Jan 18, 2019

Does anyone have issues getting and staying warm? I am especially having this problem in large buildings with any AC. I often have to wear a hat and gloves indoors. I also have many blankets on my bed and still sleep in pants, sweatshirt, hat, and gloves. Maybe this is completely unrelated to autoimmune disease, just want to check with others.

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@peach414144

Hi again. I also take 6000 mg's of disolvable iron under the tongue. It does not help me. But still, perhaps You should have a complete blood panel test. It could not hurt and usually reveals so much of what is going on within the body. Also, I have just started going to a new oncologist who will start treating me in the manner that should have been treated. Now we will be more hopeful. Good luck, Peach.

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@peach414144 Sometimes blood thinners will cause coldness also like Coumadin

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@lioness

@peach414144 Sometimes blood thinners will cause coldness also like Coumadin

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Thanks but not on blood thinners now. Peach

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@lioness

@peach414144 Sometimes blood thinners will cause coldness also like Coumadin

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Thank you for thinking of me but I am not on blod thinners. Still, it was a good idea.

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@peach414144

Thank you for thinking of me but I am not on blod thinners. Still, it was a good idea.

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@peach414144 I too have cold feet more then cold hands but its probably coming from our dis-eases and poor circulation

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I do feel the cold more since I was diagnosed with polymyalgia. (Also have osteoarthritis) I have an electric blanket under my fitted bottom sheet, turn it up high so that my bed is warm when I retire. I sleep with duvet and blanket. My greatest regret. is that I no longer can bring myself to wrap up warm and take out the dog to the river. The wind is so much worse in winter cold weather, however, I do make myself go out twice a week to volunteer jobs (inside), go to the grocery store and book club. It is important to be active and socialize. It is part of treatment for the ailment.

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@noosat1

I do feel the cold more since I was diagnosed with polymyalgia. (Also have osteoarthritis) I have an electric blanket under my fitted bottom sheet, turn it up high so that my bed is warm when I retire. I sleep with duvet and blanket. My greatest regret. is that I no longer can bring myself to wrap up warm and take out the dog to the river. The wind is so much worse in winter cold weather, however, I do make myself go out twice a week to volunteer jobs (inside), go to the grocery store and book club. It is important to be active and socialize. It is part of treatment for the ailment.

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Hello noosat1 my name is Beryl and I recognize everything you say
As the PMR leaves a place in the body the cold stops effecting that part of ie. i started off with all of my body effected now it is only my legs. I can be hot at the top and feeling the cold in my legs and then the pain starts. You are doing the right thing at bedtime. Hope you get well again soon. Beryl

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Thanks Beryl, The PMR is worse in my legs, especially the left one. Just before I was diagnosed I got shingles, which I knew nothing of, on my left buttock. I find that is the leg that is most affected by the PMR. Frustrating, because when I was a runner my left was my strong lead leg. Oh well, must be grateful for what I can do. Sitting for a long time may seem pleasant to me, but I know it is not beneficial. Right now I am doing internet research for a paper I will give to small group in March, so every 20 minutes at most I make myself get up and walk around.

Cheere, Maggie

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New to Mayo and thrilled to hear from others! Like many, I too have difficulty with temperature control. Within an hours time I can boil over in sweat that can not be cooled that transitions into goose bumps on my skin boiling on the inside while skin is freezing then transitioning to freezing cold that can not be warmed.

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@sammiray0921

New to Mayo and thrilled to hear from others! Like many, I too have difficulty with temperature control. Within an hours time I can boil over in sweat that can not be cooled that transitions into goose bumps on my skin boiling on the inside while skin is freezing then transitioning to freezing cold that can not be warmed.

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This is how it is for me too. One moment I am freezing cold and an hour later I am boiling.

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@noosat1

Thanks Beryl, The PMR is worse in my legs, especially the left one. Just before I was diagnosed I got shingles, which I knew nothing of, on my left buttock. I find that is the leg that is most affected by the PMR. Frustrating, because when I was a runner my left was my strong lead leg. Oh well, must be grateful for what I can do. Sitting for a long time may seem pleasant to me, but I know it is not beneficial. Right now I am doing internet research for a paper I will give to small group in March, so every 20 minutes at most I make myself get up and walk around.

Cheere, Maggie

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It seems PMR strikes the very fit , nobody understands this and my Rheumatolgist said to me …."You work it out and tell me " does seem strange though doesn't it? Any ideas anyone ……Beryl

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I have autoimmune disorder primarily caused or the cause of lymphoma. I go from being incredibly warm, to being unusually cold. When I’m cold everything hurts. I sweat a lot even when I’m not warm, but profusely when I am warm. It is a constant adjusting game. I wish you the best and do what feels right. I have tons of fans and also tons of heating blankets around that I use as needed.

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@beryl

It seems PMR strikes the very fit , nobody understands this and my Rheumatolgist said to me …."You work it out and tell me " does seem strange though doesn't it? Any ideas anyone ……Beryl

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Yes, Beryl t is a mystery. I ran competitively, played tennis and pickleball, mountain hiked, I never thought that as I got old my good strong legs would fail me. 🙂

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