Autoimmune & temperature regulation: How do you get warm?

Posted by 1corinthians926 @1corinthians926, Jan 18, 2019

Does anyone have issues getting and staying warm? I am especially having this problem in large buildings with any AC. I often have to wear a hat and gloves indoors. I also have many blankets on my bed and still sleep in pants, sweatshirt, hat, and gloves. Maybe this is completely unrelated to autoimmune disease, just want to check with others.

Interested in more discussions like this? Go to the Autoimmune Diseases group.

@noosat1

Yes, Beryl t is a mystery. I ran competitively, played tennis and pickleball, mountain hiked, I never thought that as I got old my good strong legs would fail me. 🙂

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I know that is the thing I hate most always had the strongest legs and could walk forever…..we hope we get a bit of this back
I miss it ……Bery.

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Good morning everyone I certainly hope that you’re doing well today. From the above, the only thing I can really gather is that it appears to be an auto immune “side effect” but from what, no one knows. In addition, it does not sound that there’s really any type of treatment to stop the madness. You don’t know how very disappointing that is for me personally. So many issues that I have appear to be that way – without answers. I am so hopeful that my upcoming trip to Mayo will enlighten me in someway. Certainly hope the cost financialky and the cist emotionally will be worth it.

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@sammiray0921

Good morning everyone I certainly hope that you’re doing well today. From the above, the only thing I can really gather is that it appears to be an auto immune “side effect” but from what, no one knows. In addition, it does not sound that there’s really any type of treatment to stop the madness. You don’t know how very disappointing that is for me personally. So many issues that I have appear to be that way – without answers. I am so hopeful that my upcoming trip to Mayo will enlighten me in someway. Certainly hope the cost financialky and the cist emotionally will be worth it.

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@sammiray0921, I hope you get some answers and a treatment plan that helps. One of the things that may help you is to keep a log of your symptoms, pain levels, and any questions you want to ask the doctors. This will help you communicate a little easier with the doctors. There is a discussion that may provide some suggestions for your Mayo appointment.

Groups >Visiting Mayo Clinic > Your Tips on How to Get Off to the Best Start with a New Specialist
https://connect.mayoclinic.org/discussion/your-tips-on-how-to-get-off-to-the-best-start-with-a-new-specialist/

Which Mayo Clinic Campus will you be going to? Other members may be able to offer some additional suggestions.

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Has anyone tried ginseng for inflammation? I have some from Korea, red ginseng. Although not recommended by physicians because no real testing, I read that some people use it for a number of medical conditions, including inflammation in system

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@noosat1 Hi I haven't heard of red ginseng but I take Tumeric @ginger for inflammation

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I must try turmeric. I do make ginger water/tea. Garlic is also good for what ails us. 🙂

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@noosat1 Golden Milk recepie by @ Fresh air Tumeric add little water boil it grate ginger in it then boil add milk drink when it cools delicious that's just one way I like ginger,- tumeric tea also

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@peach414144

Hi there. Yes I have two autoimmune diseases and am as cold as you have stated perhaps even more so. But, I am also quite ANEMIC which contributes to the coldness. Perhaps you should be checked for anemia. Let me know if you are so It can help me to figure out my problems as well. I thank you, Peach.

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I've got hypothyroidism and hoshimotos both and I'm on 88 mg of levothyroxzine. My Dr knows and when this first started I was at my natural weight of 115 lbs and now I've gained to 179 lbs and have the hot cold symptoms also. Please I need advice on what I can do about how to get my life back to normal. The hot and cold sweats are awful so I understand. If anyone got their lives back to how they were before you got the 2 dieases I have please help.

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Has your doctor recommended an exercise program for you? If you have joint pain, aquatic exercise in a warm water therapy pool is a good option for you because the buoyancy of the water will decrease pain and you will be able to exercise to help decrease weight and improve mood through the release of natural endorphins. I struggle with weight gain from taking prednisone and anti-depressants. I have since changed my anti-depressant to one that does not cause weight gain. I have gained 10 pounds but I have to work hard exercising and watching what I eat. I think most of weight gain is muscle that i have regained.

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I have so far two known autoimmune conditions, one Wich is psoriasis I've had pretty much my whole life.. I'm now 41 btw. The other ulcerative colitis I've had since I was about 19. Anyway, I've been having a ton of different issues the past couple of years and especially this last year or so and I'm curious if anyone else has these symptoms and what it means. My main problem is muscle and joint aches almost constantly and it's most severe in the mornings when I wake up, I'm extremely stiff in every part of my body, especially the lower part. Also my psoriasis have gotten way worse and spread to other areas of my body where I've never had them before. I'm almost constantly overheated, and it just comes on suddenly. I mean like ridiculously hot to the point that I feel as if im going to just pass out or something worse. Recently, about a week ago I developed this pain in the bottom of my left foot that only happens when I step down on it but it feels like I'm stepping on glass or shattered a bone or something and now it is starting to go up the back of my leg every time i take a step. And I guess about a month-and-a-half ago I was at work and as I was walking down the hallway I noticed myself going to the right it was as if I was tilting or something anyway I kind of fell toward the wall but caught myself. I have had a few episodes where I kind of feel off balance or clumsy like as if I was drunk or something. Oh and another thing that's really odd I often get this feeling the inside of my body is vibrating, it always starts at My feet and goes up my body really quickly when I'm walking and kinda comes randomly out of nowhere. The first time that happened was actually probably close to a year ago, it happened a couple of times then went away until recently. Now when it happens I feel a little bit "loopy"or dizzy at the time but only for a second or two. But I did notice when it happens now it'll happen two or three times as I'm walking as opposed to just once and then going away like it did when it first started a year ago. Ive had a lot of other symptoms throughout the years but too many to post right now, this whole autoimmune thing is something I've only learned about recently while searching for answers concerning my niece's and mother's symptoms/conditions. They also have been diagnosed with autoimmune conditions recently. Thanks everyone for reading, it's appreciated.

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@simmons78

I have so far two known autoimmune conditions, one Wich is psoriasis I've had pretty much my whole life.. I'm now 41 btw. The other ulcerative colitis I've had since I was about 19. Anyway, I've been having a ton of different issues the past couple of years and especially this last year or so and I'm curious if anyone else has these symptoms and what it means. My main problem is muscle and joint aches almost constantly and it's most severe in the mornings when I wake up, I'm extremely stiff in every part of my body, especially the lower part. Also my psoriasis have gotten way worse and spread to other areas of my body where I've never had them before. I'm almost constantly overheated, and it just comes on suddenly. I mean like ridiculously hot to the point that I feel as if im going to just pass out or something worse. Recently, about a week ago I developed this pain in the bottom of my left foot that only happens when I step down on it but it feels like I'm stepping on glass or shattered a bone or something and now it is starting to go up the back of my leg every time i take a step. And I guess about a month-and-a-half ago I was at work and as I was walking down the hallway I noticed myself going to the right it was as if I was tilting or something anyway I kind of fell toward the wall but caught myself. I have had a few episodes where I kind of feel off balance or clumsy like as if I was drunk or something. Oh and another thing that's really odd I often get this feeling the inside of my body is vibrating, it always starts at My feet and goes up my body really quickly when I'm walking and kinda comes randomly out of nowhere. The first time that happened was actually probably close to a year ago, it happened a couple of times then went away until recently. Now when it happens I feel a little bit "loopy"or dizzy at the time but only for a second or two. But I did notice when it happens now it'll happen two or three times as I'm walking as opposed to just once and then going away like it did when it first started a year ago. Ive had a lot of other symptoms throughout the years but too many to post right now, this whole autoimmune thing is something I've only learned about recently while searching for answers concerning my niece's and mother's symptoms/conditions. They also have been diagnosed with autoimmune conditions recently. Thanks everyone for reading, it's appreciated.

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@simmons78 Have you seen your Dr? You haven't said A cardiologist would be good to see about the shifting of your body of neurologist for your legs I hope you see a Dr even your primary if you need referrals We care here at connect so I hope yoi,'ll let us know how your doing

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