Autoimmune & temperature regulation: How do you get warm?

Posted by 1corinthians926 @1corinthians926, Jan 18, 2019

Does anyone have issues getting and staying warm? I am especially having this problem in large buildings with any AC. I often have to wear a hat and gloves indoors. I also have many blankets on my bed and still sleep in pants, sweatshirt, hat, and gloves. Maybe this is completely unrelated to autoimmune disease, just want to check with others.

Interested in more discussions like this? Go to the Autoimmune Diseases Support Group.

Hello @1corinthians926, I have issues staying warm myself. In the winter I sleep in a sweatshirt and use electric blankets. When my mother-in-law lived with us for many years before she passed away, we always had to have the house at 78 degrees and I was sweating profusely and would find refuge in the basement. Now it seems I have become her except that I keep the temp around 70 degrees in the winter. I have small fiber PN and my hands get really cold easily. My feet are always cold, even in the summer. It maybe related to autoimmune diseases or just poor circulation but that might also be related to autoimmune diseases. I'm just happy to have a warm coat and gloves when I have to go outside and a warm house to retreat to.

Hoping we can all stay warm ☺

REPLY

Hello @1corinthians926

I agree with John, reactions to cold and heat are certainly symptomatic of autoimmune disorders. Autoimmune disorders can be difficult to diagnosis.
Have you seen a rheumatologist to discuss this matter of an autoimmune disorder?

REPLY

Hi there. Yes I have two autoimmune diseases and am as cold as you have stated perhaps even more so. But, I am also quite ANEMIC which contributes to the coldness. Perhaps you should be checked for anemia. Let me know if you are so It can help me to figure out my problems as well. I thank you, Peach.

REPLY
@johnbishop

Hello @1corinthians926, I have issues staying warm myself. In the winter I sleep in a sweatshirt and use electric blankets. When my mother-in-law lived with us for many years before she passed away, we always had to have the house at 78 degrees and I was sweating profusely and would find refuge in the basement. Now it seems I have become her except that I keep the temp around 70 degrees in the winter. I have small fiber PN and my hands get really cold easily. My feet are always cold, even in the summer. It maybe related to autoimmune diseases or just poor circulation but that might also be related to autoimmune diseases. I'm just happy to have a warm coat and gloves when I have to go outside and a warm house to retreat to.

Hoping we can all stay warm ☺

Jump to this post

I also sleep with an electric blanket and three layers of nightwear (including a sweatshirt and pants). I place the electric blanket on top of the bed blankets because of the probability that the electric blanket can do harm to the body. During the day I wear three layers of clothing in the house and I live in Florida. Outside I place a heavy duty coat on top. Peach

REPLY

@peach414144 I do take iron supplements which could be why anemia doesn’t show up on blood tests. I also have bradycardia but my hr has been elevated 10-15 above where it was before Plaquinol.

REPLY

Hi again. I also take 6000 mg's of disolvable iron under the tongue. It does not help me. But still, perhaps You should have a complete blood panel test. It could not hurt and usually reveals so much of what is going on within the body. Also, I have just started going to a new oncologist who will start treating me in the manner that should have been treated. Now we will be more hopeful. Good luck, Peach.

REPLY
@peach414144

Hi again. I also take 6000 mg's of disolvable iron under the tongue. It does not help me. But still, perhaps You should have a complete blood panel test. It could not hurt and usually reveals so much of what is going on within the body. Also, I have just started going to a new oncologist who will start treating me in the manner that should have been treated. Now we will be more hopeful. Good luck, Peach.

Jump to this post

Have you tried Vitron C? The Vit C is supposed to help with absorption.

REPLY
@hopeful33250

Hello @1corinthians926

I agree with John, reactions to cold and heat are certainly symptomatic of autoimmune disorders. Autoimmune disorders can be difficult to diagnosis.
Have you seen a rheumatologist to discuss this matter of an autoimmune disorder?

Jump to this post

Yes @hopeful33250 ! Tentative UMCTD diagnosis as well as SCLE. Waiting for Mayo appt to get some more answers.

REPLY

Hello my name is Beryl ....the best thing to keep warm , apart from our electrical devices, is a good down duvet on the bed .......can't beat it ......I have to keep it my side of the bed as my husband would melt under it .....bit like you John having to go down into the basement ha ha .....

REPLY
@1corinthians926

Have you tried Vitron C? The Vit C is supposed to help with absorption.

Jump to this post

Yes, I am on this vitamin and other special ones. Am not ready to give up yet. Thanks for the help, Peach

REPLY
Please sign in or register to post a reply.