Thanks for your reply! I apologize for getting back to you so late — its
9:28 PM and my day (night) is just starting. I’ve been asleep almost all
day since 6:30 AM when I tried to start today. Yes the pain is really bad
today. I’ve had to resort to taking the prescribed narcotics to try to
ease the pain, and one of their several side effects is that I sleep all
the time.
Although I have a B.S. in telecommunications, I can’t find a job because I
always have to take a nap during the normal workday. Additionally, no
company wants to take a chance on me because I am too much of a liability.
If I fall on the job, they all think I will sue the company. Even though I
have offered to sign a waiver stating I would never sue any company that
interviewed me, I have still been rejected. Yes it’s really tough trying
to live on a fixed income. Sometimes I get so mad at the politicians who
always seem to find a “loop hole” so there is rarely a real COLA on my SSDI
check, but really that doesn’t help. I have finally realized that a bad
attitude doesn’t help the pain at all.
I have tried just about every “latest cure” for the arthritis, but nothing
has truly worked. My last attempt was to buy Dr. Ho’s pain therapy system
— but it barely helps. It’s a TENS unit that is pretty strong and has 7
modes or treatment options. The real problem though is that for it to
really work, I need to attach 16 TENS pads to my whole body, and then run
it all day long. Additionally, it does nothing for the constant migraines
I suffer from.
I too joined this site in hope that I might be able to find something that
will help me. So it was really nice to hear from you. I have tried and
tried to help my family (brother and sister-in-law and their grown
children) to understand why I rarely make any of the family get togethers,
but honestly, they have no clue. Although I wouldn’t wish this on my worst
enemy, it wasn’t until my brother hurt his knee and couldn’t walk without
limping, that he finally caught an idea of what it’s like to have constant
pain all the time. Fortunately, a shot of cortisone eliminated his knee
pain so of course, he told me to make sure I should see his doctor so I
could get cortisone shot in every area that causes the pain. I kept his
request to myself because I would need at least 30 or more shots of
cortisone if it were to help, and there is no guarantee that it would
help. Oh well…
Thanks so much for listening Sharonmay7! I really appreciate being able to
talk or chat with someone about this hell I live in. I think the hardest
point for me is that I watch my body falling apart while my mind is still
active. Unfortunately another side effect of the narcotics is that I can’t
seem to remember much of anything. My short term and long term memory is
fading, and if I don’t write most everything down and make notes for
myself, I forget what I am doing.
I hope you don’t mind, but I added your name to my prayer list, and truly,
I pray that things will improve for you. If you don’t mind, and please
know I am not a ‘stalker,’ what state are you located in? Thanks, I live
in Arizona — actually I live in Tucson, Arizona. Thank you again for
the good thoughts and your wish for better nights for me. I do hope to
hear back from you as well.
Thanks for your reply! I apologize for getting back to you so late — its
9:28 PM and my day (night) is just starting. I’ve been asleep almost all
day since 6:30 AM when I tried to start today. Yes the pain is really bad
today. I’ve had to resort to taking the prescribed narcotics to try to
ease the pain, and one of their several side effects is that I sleep all
the time.
Although I have a B.S. in telecommunications, I can’t find a job because I
always have to take a nap during the normal workday. Additionally, no
company wants to take a chance on me because I am too much of a liability.
If I fall on the job, they all think I will sue the company. Even though I
have offered to sign a waiver stating I would never sue any company that
interviewed me, I have still been rejected. Yes it’s really tough trying
to live on a fixed income. Sometimes I get so mad at the politicians who
always seem to find a “loop hole” so there is rarely a real COLA on my SSDI
check, but really that doesn’t help. I have finally realized that a bad
attitude doesn’t help the pain at all.
I have tried just about every “latest cure” for the arthritis, but nothing
has truly worked. My last attempt was to buy Dr. Ho’s pain therapy system
— but it barely helps. It’s a TENS unit that is pretty strong and has 7
modes or treatment options. The real problem though is that for it to
really work, I need to attach 16 TENS pads to my whole body, and then run
it all day long. Additionally, it does nothing for the constant migraines
I suffer from.
I too joined this site in hope that I might be able to find something that
will help me. So it was really nice to hear from you. I have tried and
tried to help my family (brother and sister-in-law and their grown
children) to understand why I rarely make any of the family get togethers,
but honestly, they have no clue. Although I wouldn’t wish this on my worst
enemy, it wasn’t until my brother hurt his knee and couldn’t walk without
limping, that he finally caught an idea of what it’s like to have constant
pain all the time. Fortunately, a shot of cortisone eliminated his knee
pain so of course, he told me to make sure I should see his doctor so I
could get cortisone shot in every area that causes the pain. I kept his
request to myself because I would need at least 30 or more shots of
cortisone if it were to help, and there is no guarantee that it would
help. Oh well…
Thanks so much for listening Sharonmay7! I really appreciate being able to
talk or chat with someone about this hell I live in. I think the hardest
point for me is that I watch my body falling apart while my mind is still
active. Unfortunately another side effect of the narcotics is that I can’t
seem to remember much of anything. My short term and long term memory is
fading, and if I don’t write most everything down and make notes for
myself, I forget what I am doing.
I hope you don’t mind, but I added your name to my prayer list, and truly,
I pray that things will improve for you. If you don’t mind, and please
know I am not a ‘stalker,’ what state are you located in? Thanks, I live
in Arizona — actually I live in Tucson, Arizona. Thank you again for
the good thoughts and your wish for better nights for me. I do hope to
hear back from you as well.
I live in PA, you would not like our winters up here!!! The cold winters are hard on pain!Thanks for your prayers!! I’m married and have 3 grown children and 3 grandchildren!! Hard to believe…but they are my light!! That’s what makes me smile! You are so right abounded people not being able understand!! Even if they try. They are the lucky ones. My husband, Doug tries to help when i have migraines. He himself has had migraines so he dose understand that part! But day after day I think he gets feeling lonely when I’m in bed, ten days in row!!! Well you stay nice and warm down there in the sunshine…. Hope tomorrow is a better day!! Take care…..sharon
@mariah – I thought the answer was the nerustimulator also – alas it is just something stronger than a TENS unit. Did me no good with my great pain, and yes, one cannot have an MRI. Mine was removed after more than a year with my neurosurgeon doing my 5th surgery. Good luck.
Thanks for your reply! I apologize for getting back to you so late — its
9:28 PM and my day (night) is just starting. I’ve been asleep almost all
day since 6:30 AM when I tried to start today. Yes the pain is really bad
today. I’ve had to resort to taking the prescribed narcotics to try to
ease the pain, and one of their several side effects is that I sleep all
the time.
Although I have a B.S. in telecommunications, I can’t find a job because I
always have to take a nap during the normal workday. Additionally, no
company wants to take a chance on me because I am too much of a liability.
If I fall on the job, they all think I will sue the company. Even though I
have offered to sign a waiver stating I would never sue any company that
interviewed me, I have still been rejected. Yes it’s really tough trying
to live on a fixed income. Sometimes I get so mad at the politicians who
always seem to find a “loop hole” so there is rarely a real COLA on my SSDI
check, but really that doesn’t help. I have finally realized that a bad
attitude doesn’t help the pain at all.
I have tried just about every “latest cure” for the arthritis, but nothing
has truly worked. My last attempt was to buy Dr. Ho’s pain therapy system
— but it barely helps. It’s a TENS unit that is pretty strong and has 7
modes or treatment options. The real problem though is that for it to
really work, I need to attach 16 TENS pads to my whole body, and then run
it all day long. Additionally, it does nothing for the constant migraines
I suffer from.
I too joined this site in hope that I might be able to find something that
will help me. So it was really nice to hear from you. I have tried and
tried to help my family (brother and sister-in-law and their grown
children) to understand why I rarely make any of the family get togethers,
but honestly, they have no clue. Although I wouldn’t wish this on my worst
enemy, it wasn’t until my brother hurt his knee and couldn’t walk without
limping, that he finally caught an idea of what it’s like to have constant
pain all the time. Fortunately, a shot of cortisone eliminated his knee
pain so of course, he told me to make sure I should see his doctor so I
could get cortisone shot in every area that causes the pain. I kept his
request to myself because I would need at least 30 or more shots of
cortisone if it were to help, and there is no guarantee that it would
help. Oh well…
Thanks so much for listening Sharonmay7! I really appreciate being able to
talk or chat with someone about this hell I live in. I think the hardest
point for me is that I watch my body falling apart while my mind is still
active. Unfortunately another side effect of the narcotics is that I can’t
seem to remember much of anything. My short term and long term memory is
fading, and if I don’t write most everything down and make notes for
myself, I forget what I am doing.
I hope you don’t mind, but I added your name to my prayer list, and truly,
I pray that things will improve for you. If you don’t mind, and please
know I am not a ‘stalker,’ what state are you located in? Thanks, I live
in Arizona — actually I live in Tucson, Arizona. Thank you again for
the good thoughts and your wish for better nights for me. I do hope to
hear back from you as well.
My doctor has prescribed Nuvigil for me. Lately the insurance has been a
problem but it works very well. I would fall asleep at stop lights.
Hope you get some relief.
Thanks for your reply! I apologize for getting back to you so late — its
9:28 PM and my day (night) is just starting. I’ve been asleep almost all
day since 6:30 AM when I tried to start today. Yes the pain is really bad
today. I’ve had to resort to taking the prescribed narcotics to try to
ease the pain, and one of their several side effects is that I sleep all
the time.
Although I have a B.S. in telecommunications, I can’t find a job because I
always have to take a nap during the normal workday. Additionally, no
company wants to take a chance on me because I am too much of a liability.
If I fall on the job, they all think I will sue the company. Even though I
have offered to sign a waiver stating I would never sue any company that
interviewed me, I have still been rejected. Yes it’s really tough trying
to live on a fixed income. Sometimes I get so mad at the politicians who
always seem to find a “loop hole” so there is rarely a real COLA on my SSDI
check, but really that doesn’t help. I have finally realized that a bad
attitude doesn’t help the pain at all.
I have tried just about every “latest cure” for the arthritis, but nothing
has truly worked. My last attempt was to buy Dr. Ho’s pain therapy system
— but it barely helps. It’s a TENS unit that is pretty strong and has 7
modes or treatment options. The real problem though is that for it to
really work, I need to attach 16 TENS pads to my whole body, and then run
it all day long. Additionally, it does nothing for the constant migraines
I suffer from.
I too joined this site in hope that I might be able to find something that
will help me. So it was really nice to hear from you. I have tried and
tried to help my family (brother and sister-in-law and their grown
children) to understand why I rarely make any of the family get togethers,
but honestly, they have no clue. Although I wouldn’t wish this on my worst
enemy, it wasn’t until my brother hurt his knee and couldn’t walk without
limping, that he finally caught an idea of what it’s like to have constant
pain all the time. Fortunately, a shot of cortisone eliminated his knee
pain so of course, he told me to make sure I should see his doctor so I
could get cortisone shot in every area that causes the pain. I kept his
request to myself because I would need at least 30 or more shots of
cortisone if it were to help, and there is no guarantee that it would
help. Oh well…
Thanks so much for listening Sharonmay7! I really appreciate being able to
talk or chat with someone about this hell I live in. I think the hardest
point for me is that I watch my body falling apart while my mind is still
active. Unfortunately another side effect of the narcotics is that I can’t
seem to remember much of anything. My short term and long term memory is
fading, and if I don’t write most everything down and make notes for
myself, I forget what I am doing.
I hope you don’t mind, but I added your name to my prayer list, and truly,
I pray that things will improve for you. If you don’t mind, and please
know I am not a ‘stalker,’ what state are you located in? Thanks, I live
in Arizona — actually I live in Tucson, Arizona. Thank you again for
the good thoughts and your wish for better nights for me. I do hope to
hear back from you as well.
HI I miss most family get togethers. It depends if I had a epidural
lately. My sister is coming to town and will be staying with my so who has
4 children. I’ll try to come over one night to watch a family movie.last
4th of July they all came here and made a camp fire and lite different
sperkler products. .Then they went to the fireworks. I make it to
thanksgiving, Christmas, Easter, you know. Once I get to my sons I don’t
do a lot. I’m there a few hours and they live close. However on a daily
basis everyone has to come to my house. I live alone with my cat and dog. I
don’t feel well enough to have my grandchildren over that much and they
are the best thing to make me happy. It’s important that we are in this
together. It’s never just you. I have gotten better mentally but there are
always those downs. Knowing I can talk here is great. I thought you might
like to know someone else who doesn’t go do a lot. It was a problem
when I was married. Turns out I married the wrong person. I hope this
let’s talk is helpful to you.
Your so right! You are never alone as long as you reach out. But when I don’t feel well, sometimes I just want to be left alone in a dark, quite, room. But that is cause I get migraines! But it is hard to enjoy company when your in pain of any kind!! As I’m sure u know what I mean! Thank god I have a great man to love me through it. Sometimes I feel bad for him! It seems like he is always taking care of me! It helps to have someone who at least tries to understand how i feel, When I’m in bad pain.
When u feel lonely you can almost always find someone who is up! Just pop into this site and send off a few words!! I will be checking for you. Hope today is better then your yesterday!! Yours. Sharonmay7
Your so right! You are never alone as long as you reach out. But when I don’t feel well, sometimes I just want to be left alone in a dark, quite, room. But that is cause I get migraines! But it is hard to enjoy company when your in pain of any kind!! As I’m sure u know what I mean! Thank god I have a great man to love me through it. Sometimes I feel bad for him! It seems like he is always taking care of me! It helps to have someone who at least tries to understand how i feel, When I’m in bad pain.
When u feel lonely you can almost always find someone who is up! Just pop into this site and send off a few words!! I will be checking for you. Hope today is better then your yesterday!! Yours. Sharonmay7
You are very fortunate to have a wonderful man in your life. My husband
of 23 years couldn’t do it. He became abusive, I should say more abusive.
When I wasn’t disabled I ignored it. When I was I depended on him. I
couldn’t work and he wasn’t having any of it. It turns out to be for the
best of course, wish I had left him from the beginning.
I’m having my epidural may 5th so I’m hoping I can do more this summer.
It’s really nice to hear about good men. As good as talking to people who
experience pain because other people don’t understand pain the way we do.
Your so right! You are never alone as long as you reach out. But when I don’t feel well, sometimes I just want to be left alone in a dark, quite, room. But that is cause I get migraines! But it is hard to enjoy company when your in pain of any kind!! As I’m sure u know what I mean! Thank god I have a great man to love me through it. Sometimes I feel bad for him! It seems like he is always taking care of me! It helps to have someone who at least tries to understand how i feel, When I’m in bad pain.
When u feel lonely you can almost always find someone who is up! Just pop into this site and send off a few words!! I will be checking for you. Hope today is better then your yesterday!! Yours. Sharonmay7
Suebreen55, Yes they don’t come around very often kind a like a unicorn!!! He’s not a angel but better then most. He loves to cook!!!!! And likes to do the grocery shopping! You don’t find them around to much for sure!!!at least he tries!!! I got lucky the second time. Maybe u will too. Now days I don’t go out much. But I’m doing a lot better then I was last year. So I am very great full for that!!! Now if I could get him and my son not to hate each other I would b in great shape!!!! My so lives up stairs. And has some medical and mental problems. They don’t often get along. Just like pain is hard to understand mental illness is another one many do not understand ….. Well I hope ur feeling well to day. Sharonmay7
I’ve been diagnosed with pulmonary fibrosis with extreme pain due to my psoriatic arthritis. Methotrexate has calcified my lymph nodes and I feel hopeless. My pain is not under control due to the fact that it’s against hospital policy to administer any pain relief in my life. Nobody cares. I hate the thought of my remaining years suffering. HELP ME PLEASE or HELP ME DIE!!!!!!!!!!!!!
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Hello Sharonmay7,
Thanks for your reply! I apologize for getting back to you so late — its
9:28 PM and my day (night) is just starting. I’ve been asleep almost all
day since 6:30 AM when I tried to start today. Yes the pain is really bad
today. I’ve had to resort to taking the prescribed narcotics to try to
ease the pain, and one of their several side effects is that I sleep all
the time.
Although I have a B.S. in telecommunications, I can’t find a job because I
always have to take a nap during the normal workday. Additionally, no
company wants to take a chance on me because I am too much of a liability.
If I fall on the job, they all think I will sue the company. Even though I
have offered to sign a waiver stating I would never sue any company that
interviewed me, I have still been rejected. Yes it’s really tough trying
to live on a fixed income. Sometimes I get so mad at the politicians who
always seem to find a “loop hole” so there is rarely a real COLA on my SSDI
check, but really that doesn’t help. I have finally realized that a bad
attitude doesn’t help the pain at all.
I have tried just about every “latest cure” for the arthritis, but nothing
has truly worked. My last attempt was to buy Dr. Ho’s pain therapy system
— but it barely helps. It’s a TENS unit that is pretty strong and has 7
modes or treatment options. The real problem though is that for it to
really work, I need to attach 16 TENS pads to my whole body, and then run
it all day long. Additionally, it does nothing for the constant migraines
I suffer from.
I too joined this site in hope that I might be able to find something that
will help me. So it was really nice to hear from you. I have tried and
tried to help my family (brother and sister-in-law and their grown
children) to understand why I rarely make any of the family get togethers,
but honestly, they have no clue. Although I wouldn’t wish this on my worst
enemy, it wasn’t until my brother hurt his knee and couldn’t walk without
limping, that he finally caught an idea of what it’s like to have constant
pain all the time. Fortunately, a shot of cortisone eliminated his knee
pain so of course, he told me to make sure I should see his doctor so I
could get cortisone shot in every area that causes the pain. I kept his
request to myself because I would need at least 30 or more shots of
cortisone if it were to help, and there is no guarantee that it would
help. Oh well…
Thanks so much for listening Sharonmay7! I really appreciate being able to
talk or chat with someone about this hell I live in. I think the hardest
point for me is that I watch my body falling apart while my mind is still
active. Unfortunately another side effect of the narcotics is that I can’t
seem to remember much of anything. My short term and long term memory is
fading, and if I don’t write most everything down and make notes for
myself, I forget what I am doing.
I hope you don’t mind, but I added your name to my prayer list, and truly,
I pray that things will improve for you. If you don’t mind, and please
know I am not a ‘stalker,’ what state are you located in? Thanks, I live
in Arizona — actually I live in Tucson, Arizona. Thank you again for
the good thoughts and your wish for better nights for me. I do hope to
hear back from you as well.
Best Wishes,
Bob815c
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1 ReactionBob815c,
I live in PA, you would not like our winters up here!!! The cold winters are hard on pain!Thanks for your prayers!! I’m married and have 3 grown children and 3 grandchildren!! Hard to believe…but they are my light!! That’s what makes me smile! You are so right abounded people not being able understand!! Even if they try. They are the lucky ones. My husband, Doug tries to help when i have migraines. He himself has had migraines so he dose understand that part! But day after day I think he gets feeling lonely when I’m in bed, ten days in row!!! Well you stay nice and warm down there in the sunshine…. Hope tomorrow is a better day!! Take care…..sharon
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Helpful -
Hug
1 Reaction@mariah – I thought the answer was the nerustimulator also – alas it is just something stronger than a TENS unit. Did me no good with my great pain, and yes, one cannot have an MRI. Mine was removed after more than a year with my neurosurgeon doing my 5th surgery. Good luck.
My doctor has prescribed Nuvigil for me. Lately the insurance has been a
problem but it works very well. I would fall asleep at stop lights.
Hope you get some relief.
HI I miss most family get togethers. It depends if I had a epidural
lately. My sister is coming to town and will be staying with my so who has
4 children. I’ll try to come over one night to watch a family movie.last
4th of July they all came here and made a camp fire and lite different
sperkler products. .Then they went to the fireworks. I make it to
thanksgiving, Christmas, Easter, you know. Once I get to my sons I don’t
do a lot. I’m there a few hours and they live close. However on a daily
basis everyone has to come to my house. I live alone with my cat and dog. I
don’t feel well enough to have my grandchildren over that much and they
are the best thing to make me happy. It’s important that we are in this
together. It’s never just you. I have gotten better mentally but there are
always those downs. Knowing I can talk here is great. I thought you might
like to know someone else who doesn’t go do a lot. It was a problem
when I was married. Turns out I married the wrong person. I hope this
let’s talk is helpful to you.
Your so right! You are never alone as long as you reach out. But when I don’t feel well, sometimes I just want to be left alone in a dark, quite, room. But that is cause I get migraines! But it is hard to enjoy company when your in pain of any kind!! As I’m sure u know what I mean! Thank god I have a great man to love me through it. Sometimes I feel bad for him! It seems like he is always taking care of me! It helps to have someone who at least tries to understand how i feel, When I’m in bad pain.
When u feel lonely you can almost always find someone who is up! Just pop into this site and send off a few words!! I will be checking for you. Hope today is better then your yesterday!! Yours. Sharonmay7
You are very fortunate to have a wonderful man in your life. My husband
of 23 years couldn’t do it. He became abusive, I should say more abusive.
When I wasn’t disabled I ignored it. When I was I depended on him. I
couldn’t work and he wasn’t having any of it. It turns out to be for the
best of course, wish I had left him from the beginning.
I’m having my epidural may 5th so I’m hoping I can do more this summer.
It’s really nice to hear about good men. As good as talking to people who
experience pain because other people don’t understand pain the way we do.
Suebreen55, Yes they don’t come around very often kind a like a unicorn!!! He’s not a angel but better then most. He loves to cook!!!!! And likes to do the grocery shopping! You don’t find them around to much for sure!!!at least he tries!!! I got lucky the second time. Maybe u will too. Now days I don’t go out much. But I’m doing a lot better then I was last year. So I am very great full for that!!! Now if I could get him and my son not to hate each other I would b in great shape!!!! My so lives up stairs. And has some medical and mental problems. They don’t often get along. Just like pain is hard to understand mental illness is another one many do not understand ….. Well I hope ur feeling well to day. Sharonmay7
I’ve been diagnosed with pulmonary fibrosis with extreme pain due to my psoriatic arthritis. Methotrexate has calcified my lymph nodes and I feel hopeless. My pain is not under control due to the fact that it’s against hospital policy to administer any pain relief in my life. Nobody cares. I hate the thought of my remaining years suffering. HELP ME PLEASE or HELP ME DIE!!!!!!!!!!!!!
Anyone out there ? I’m losing hope…