Chronic pain - Let's talk

Posted by leh09 @leh09, Mar 23, 2016

Are there any discussions for chronic pain?

Interested in more discussions like this? Go to the Chronic Pain Support Group.

Hello Sharonmay7,<br />
<br />
Thanks for your reply! I apologize for getting back to you so late -- its<br />
9:28 PM and my day (night) is just starting. I've been asleep almost all<br />
day since 6:30 AM when I tried to start today. Yes the pain is really bad<br />
today. I've had to resort to taking the prescribed narcotics to try to<br />
ease the pain, and one of their several side effects is that I sleep all<br />
the time.<br />
<br />
<br />
<br />
Although I have a B.S. in telecommunications, I can't find a job because I<br />
always have to take a nap during the normal workday. Additionally, no<br />
company wants to take a chance on me because I am too much of a liability.<br />
If I fall on the job, they all think I will sue the company. Even though I<br />
have offered to sign a waiver stating I would never sue any company that<br />
interviewed me, I have still been rejected. Yes it’s really tough trying<br />
to live on a fixed income. Sometimes I get so mad at the politicians who<br />
always seem to find a "loop hole" so there is rarely a real COLA on my SSDI<br />
check, but really that doesn't help. I have finally realized that a bad<br />
attitude doesn't help the pain at all.<br />
<br />
<br />
<br />
I have tried just about every "latest cure" for the arthritis, but nothing<br />
has truly worked. My last attempt was to buy Dr. Ho's pain therapy system<br />
-- but it barely helps. It’s a TENS unit that is pretty strong and has 7<br />
modes or treatment options. The real problem though is that for it to<br />
really work, I need to attach 16 TENS pads to my whole body, and then run<br />
it all day long. Additionally, it does nothing for the constant migraines<br />
I suffer from.<br />
<br />
<br />
<br />
I too joined this site in hope that I might be able to find something that<br />
will help me. So it was really nice to hear from you. I have tried and<br />
tried to help my family (brother and sister-in-law and their grown<br />
children) to understand why I rarely make any of the family get togethers,<br />
but honestly, they have no clue. Although I wouldn't wish this on my worst<br />
enemy, it wasn't until my brother hurt his knee and couldn't walk without<br />
limping, that he finally caught an idea of what it’s like to have constant<br />
pain all the time. Fortunately, a shot of cortisone eliminated his knee<br />
pain so of course, he told me to make sure I should see his doctor so I<br />
could get cortisone shot in every area that causes the pain. I kept his<br />
request to myself because I would need at least 30 or more shots of<br />
cortisone if it were to help, and there is no guarantee that it would<br />
help. Oh well...<br />
<br />
<br />
<br />
Thanks so much for listening Sharonmay7! I really appreciate being able to<br />
talk or chat with someone about this hell I live in. I think the hardest<br />
point for me is that I watch my body falling apart while my mind is still<br />
active. Unfortunately another side effect of the narcotics is that I can't<br />
seem to remember much of anything. My short term and long term memory is<br />
fading, and if I don't write most everything down and make notes for<br />
myself, I forget what I am doing.<br />
<br />
<br />
<br />
I hope you don't mind, but I added your name to my prayer list, and truly,<br />
I pray that things will improve for you. If you don't mind, and please<br />
know I am not a 'stalker,' what state are you located in? Thanks, I live<br />
in Arizona -- actually I live in Tucson, Arizona. Thank you again for<br />
the good thoughts and your wish for better nights for me. I do hope to<br />
hear back from you as well.<br />
<br />
Best Wishes,<br />
<br />
Bob815c<br />

REPLY
@bob815c

Hello Sharonmay7,<br />
<br />
Thanks for your reply! I apologize for getting back to you so late -- its<br />
9:28 PM and my day (night) is just starting. I've been asleep almost all<br />
day since 6:30 AM when I tried to start today. Yes the pain is really bad<br />
today. I've had to resort to taking the prescribed narcotics to try to<br />
ease the pain, and one of their several side effects is that I sleep all<br />
the time.<br />
<br />
<br />
<br />
Although I have a B.S. in telecommunications, I can't find a job because I<br />
always have to take a nap during the normal workday. Additionally, no<br />
company wants to take a chance on me because I am too much of a liability.<br />
If I fall on the job, they all think I will sue the company. Even though I<br />
have offered to sign a waiver stating I would never sue any company that<br />
interviewed me, I have still been rejected. Yes it’s really tough trying<br />
to live on a fixed income. Sometimes I get so mad at the politicians who<br />
always seem to find a "loop hole" so there is rarely a real COLA on my SSDI<br />
check, but really that doesn't help. I have finally realized that a bad<br />
attitude doesn't help the pain at all.<br />
<br />
<br />
<br />
I have tried just about every "latest cure" for the arthritis, but nothing<br />
has truly worked. My last attempt was to buy Dr. Ho's pain therapy system<br />
-- but it barely helps. It’s a TENS unit that is pretty strong and has 7<br />
modes or treatment options. The real problem though is that for it to<br />
really work, I need to attach 16 TENS pads to my whole body, and then run<br />
it all day long. Additionally, it does nothing for the constant migraines<br />
I suffer from.<br />
<br />
<br />
<br />
I too joined this site in hope that I might be able to find something that<br />
will help me. So it was really nice to hear from you. I have tried and<br />
tried to help my family (brother and sister-in-law and their grown<br />
children) to understand why I rarely make any of the family get togethers,<br />
but honestly, they have no clue. Although I wouldn't wish this on my worst<br />
enemy, it wasn't until my brother hurt his knee and couldn't walk without<br />
limping, that he finally caught an idea of what it’s like to have constant<br />
pain all the time. Fortunately, a shot of cortisone eliminated his knee<br />
pain so of course, he told me to make sure I should see his doctor so I<br />
could get cortisone shot in every area that causes the pain. I kept his<br />
request to myself because I would need at least 30 or more shots of<br />
cortisone if it were to help, and there is no guarantee that it would<br />
help. Oh well...<br />
<br />
<br />
<br />
Thanks so much for listening Sharonmay7! I really appreciate being able to<br />
talk or chat with someone about this hell I live in. I think the hardest<br />
point for me is that I watch my body falling apart while my mind is still<br />
active. Unfortunately another side effect of the narcotics is that I can't<br />
seem to remember much of anything. My short term and long term memory is<br />
fading, and if I don't write most everything down and make notes for<br />
myself, I forget what I am doing.<br />
<br />
<br />
<br />
I hope you don't mind, but I added your name to my prayer list, and truly,<br />
I pray that things will improve for you. If you don't mind, and please<br />
know I am not a 'stalker,' what state are you located in? Thanks, I live<br />
in Arizona -- actually I live in Tucson, Arizona. Thank you again for<br />
the good thoughts and your wish for better nights for me. I do hope to<br />
hear back from you as well.<br />
<br />
Best Wishes,<br />
<br />
Bob815c<br />

Jump to this post

Bob815c,<br />
<br />
I live in PA, you would not like our winters up here!!! The cold winters are hard on pain!Thanks for your prayers!! I'm married and have 3 grown children and 3 grandchildren!! Hard to believe...but they are my light!! That's what makes me smile! You are so right abounded people not being able understand!! Even if they try. They are the lucky ones. My husband, Doug tries to help when i have migraines. He himself has had migraines so he dose understand that part! But day after day I think he gets feeling lonely when I'm in bed, ten days in row!!! Well you stay nice and warm down there in the sunshine.... Hope tomorrow is a better day!! Take care.....sharon <br />

REPLY

@mariah - I thought the answer was the nerustimulator also - alas it is just something stronger than a TENS unit. Did me no good with my great pain, and yes, one cannot have an MRI. Mine was removed after more than a year with my neurosurgeon doing my 5th surgery. Good luck.

REPLY
@bob815c

Hello Sharonmay7,<br />
<br />
Thanks for your reply! I apologize for getting back to you so late -- its<br />
9:28 PM and my day (night) is just starting. I've been asleep almost all<br />
day since 6:30 AM when I tried to start today. Yes the pain is really bad<br />
today. I've had to resort to taking the prescribed narcotics to try to<br />
ease the pain, and one of their several side effects is that I sleep all<br />
the time.<br />
<br />
<br />
<br />
Although I have a B.S. in telecommunications, I can't find a job because I<br />
always have to take a nap during the normal workday. Additionally, no<br />
company wants to take a chance on me because I am too much of a liability.<br />
If I fall on the job, they all think I will sue the company. Even though I<br />
have offered to sign a waiver stating I would never sue any company that<br />
interviewed me, I have still been rejected. Yes it’s really tough trying<br />
to live on a fixed income. Sometimes I get so mad at the politicians who<br />
always seem to find a "loop hole" so there is rarely a real COLA on my SSDI<br />
check, but really that doesn't help. I have finally realized that a bad<br />
attitude doesn't help the pain at all.<br />
<br />
<br />
<br />
I have tried just about every "latest cure" for the arthritis, but nothing<br />
has truly worked. My last attempt was to buy Dr. Ho's pain therapy system<br />
-- but it barely helps. It’s a TENS unit that is pretty strong and has 7<br />
modes or treatment options. The real problem though is that for it to<br />
really work, I need to attach 16 TENS pads to my whole body, and then run<br />
it all day long. Additionally, it does nothing for the constant migraines<br />
I suffer from.<br />
<br />
<br />
<br />
I too joined this site in hope that I might be able to find something that<br />
will help me. So it was really nice to hear from you. I have tried and<br />
tried to help my family (brother and sister-in-law and their grown<br />
children) to understand why I rarely make any of the family get togethers,<br />
but honestly, they have no clue. Although I wouldn't wish this on my worst<br />
enemy, it wasn't until my brother hurt his knee and couldn't walk without<br />
limping, that he finally caught an idea of what it’s like to have constant<br />
pain all the time. Fortunately, a shot of cortisone eliminated his knee<br />
pain so of course, he told me to make sure I should see his doctor so I<br />
could get cortisone shot in every area that causes the pain. I kept his<br />
request to myself because I would need at least 30 or more shots of<br />
cortisone if it were to help, and there is no guarantee that it would<br />
help. Oh well...<br />
<br />
<br />
<br />
Thanks so much for listening Sharonmay7! I really appreciate being able to<br />
talk or chat with someone about this hell I live in. I think the hardest<br />
point for me is that I watch my body falling apart while my mind is still<br />
active. Unfortunately another side effect of the narcotics is that I can't<br />
seem to remember much of anything. My short term and long term memory is<br />
fading, and if I don't write most everything down and make notes for<br />
myself, I forget what I am doing.<br />
<br />
<br />
<br />
I hope you don't mind, but I added your name to my prayer list, and truly,<br />
I pray that things will improve for you. If you don't mind, and please<br />
know I am not a 'stalker,' what state are you located in? Thanks, I live<br />
in Arizona -- actually I live in Tucson, Arizona. Thank you again for<br />
the good thoughts and your wish for better nights for me. I do hope to<br />
hear back from you as well.<br />
<br />
Best Wishes,<br />
<br />
Bob815c<br />

Jump to this post

My doctor has prescribed Nuvigil for me. Lately the insurance has been a<br />
problem but it works very well. I would fall asleep at stop lights.<br />
Hope you get some relief.<br />
<br />
<br />
<br />
<br />
<br />
<br />
<br />

REPLY
@bob815c

Hello Sharonmay7,<br />
<br />
Thanks for your reply! I apologize for getting back to you so late -- its<br />
9:28 PM and my day (night) is just starting. I've been asleep almost all<br />
day since 6:30 AM when I tried to start today. Yes the pain is really bad<br />
today. I've had to resort to taking the prescribed narcotics to try to<br />
ease the pain, and one of their several side effects is that I sleep all<br />
the time.<br />
<br />
<br />
<br />
Although I have a B.S. in telecommunications, I can't find a job because I<br />
always have to take a nap during the normal workday. Additionally, no<br />
company wants to take a chance on me because I am too much of a liability.<br />
If I fall on the job, they all think I will sue the company. Even though I<br />
have offered to sign a waiver stating I would never sue any company that<br />
interviewed me, I have still been rejected. Yes it’s really tough trying<br />
to live on a fixed income. Sometimes I get so mad at the politicians who<br />
always seem to find a "loop hole" so there is rarely a real COLA on my SSDI<br />
check, but really that doesn't help. I have finally realized that a bad<br />
attitude doesn't help the pain at all.<br />
<br />
<br />
<br />
I have tried just about every "latest cure" for the arthritis, but nothing<br />
has truly worked. My last attempt was to buy Dr. Ho's pain therapy system<br />
-- but it barely helps. It’s a TENS unit that is pretty strong and has 7<br />
modes or treatment options. The real problem though is that for it to<br />
really work, I need to attach 16 TENS pads to my whole body, and then run<br />
it all day long. Additionally, it does nothing for the constant migraines<br />
I suffer from.<br />
<br />
<br />
<br />
I too joined this site in hope that I might be able to find something that<br />
will help me. So it was really nice to hear from you. I have tried and<br />
tried to help my family (brother and sister-in-law and their grown<br />
children) to understand why I rarely make any of the family get togethers,<br />
but honestly, they have no clue. Although I wouldn't wish this on my worst<br />
enemy, it wasn't until my brother hurt his knee and couldn't walk without<br />
limping, that he finally caught an idea of what it’s like to have constant<br />
pain all the time. Fortunately, a shot of cortisone eliminated his knee<br />
pain so of course, he told me to make sure I should see his doctor so I<br />
could get cortisone shot in every area that causes the pain. I kept his<br />
request to myself because I would need at least 30 or more shots of<br />
cortisone if it were to help, and there is no guarantee that it would<br />
help. Oh well...<br />
<br />
<br />
<br />
Thanks so much for listening Sharonmay7! I really appreciate being able to<br />
talk or chat with someone about this hell I live in. I think the hardest<br />
point for me is that I watch my body falling apart while my mind is still<br />
active. Unfortunately another side effect of the narcotics is that I can't<br />
seem to remember much of anything. My short term and long term memory is<br />
fading, and if I don't write most everything down and make notes for<br />
myself, I forget what I am doing.<br />
<br />
<br />
<br />
I hope you don't mind, but I added your name to my prayer list, and truly,<br />
I pray that things will improve for you. If you don't mind, and please<br />
know I am not a 'stalker,' what state are you located in? Thanks, I live<br />
in Arizona -- actually I live in Tucson, Arizona. Thank you again for<br />
the good thoughts and your wish for better nights for me. I do hope to<br />
hear back from you as well.<br />
<br />
Best Wishes,<br />
<br />
Bob815c<br />

Jump to this post

HI I miss most family get togethers. It depends if I had a epidural<br />
lately. My sister is coming to town and will be staying with my so who has<br />
4 children. I'll try to come over one night to watch a family movie.last<br />
4th of July they all came here and made a camp fire and lite different<br />
sperkler products. .Then they went to the fireworks. I make it to<br />
thanksgiving, Christmas, Easter, you know. Once I get to my sons I don't<br />
do a lot. I'm there a few hours and they live close. However on a daily<br />
basis everyone has to come to my house. I live alone with my cat and dog. I<br />
don't feel well enough to have my grandchildren over that much and they<br />
are the best thing to make me happy. It's important that we are in this<br />
together. It's never just you. I have gotten better mentally but there are<br />
always those downs. Knowing I can talk here is great. I thought you might<br />
like to know someone else who doesn't go do a lot. It was a problem<br />
when I was married. Turns out I married the wrong person. I hope this<br />
let's talk is helpful to you.<br />

REPLY

Your so right! You are never alone as long as you reach out. But when I don't feel well, sometimes I just want to be left alone in a dark, quite, room. But that is cause I get migraines! But it is hard to enjoy company when your in pain of any kind!! As I'm sure u know what I mean! Thank god I have a great man to love me through it. Sometimes I feel bad for him! It seems like he is always taking care of me! It helps to have someone who at least tries to understand how i feel, When I'm in bad pain. <br />
When u feel lonely you can almost always find someone who is up! Just pop into this site and send off a few words!! I will be checking for you. Hope today is better then your yesterday!! Yours. Sharonmay7

REPLY
@sharonmay7

Your so right! You are never alone as long as you reach out. But when I don't feel well, sometimes I just want to be left alone in a dark, quite, room. But that is cause I get migraines! But it is hard to enjoy company when your in pain of any kind!! As I'm sure u know what I mean! Thank god I have a great man to love me through it. Sometimes I feel bad for him! It seems like he is always taking care of me! It helps to have someone who at least tries to understand how i feel, When I'm in bad pain. <br />
When u feel lonely you can almost always find someone who is up! Just pop into this site and send off a few words!! I will be checking for you. Hope today is better then your yesterday!! Yours. Sharonmay7

Jump to this post

You are very fortunate to have a wonderful man in your life. My husband<br />
of 23 years couldn't do it. He became abusive, I should say more abusive.<br />
When I wasn't disabled I ignored it. When I was I depended on him. I<br />
couldn't work and he wasn't having any of it. It turns out to be for the<br />
best of course, wish I had left him from the beginning.<br />
<br />
I'm having my epidural may 5th so I'm hoping I can do more this summer.<br />
<br />
It's really nice to hear about good men. As good as talking to people who<br />
experience pain because other people don't understand pain the way we do.<br />

REPLY
@sharonmay7

Your so right! You are never alone as long as you reach out. But when I don't feel well, sometimes I just want to be left alone in a dark, quite, room. But that is cause I get migraines! But it is hard to enjoy company when your in pain of any kind!! As I'm sure u know what I mean! Thank god I have a great man to love me through it. Sometimes I feel bad for him! It seems like he is always taking care of me! It helps to have someone who at least tries to understand how i feel, When I'm in bad pain. <br />
When u feel lonely you can almost always find someone who is up! Just pop into this site and send off a few words!! I will be checking for you. Hope today is better then your yesterday!! Yours. Sharonmay7

Jump to this post

Suebreen55, Yes they don't come around very often kind a like a unicorn!!! He's not a angel but better then most. He loves to cook!!!!! And likes to do the grocery shopping! You don't find them around to much for sure!!!at least he tries!!! I got lucky the second time. Maybe u will too. Now days I don't go out much. But I'm doing a lot better then I was last year. So I am very great full for that!!! Now if I could get him and my son not to hate each other I would b in great shape!!!! My so lives up stairs. And has some medical and mental problems. They don't often get along. Just like pain is hard to understand mental illness is another one many do not understand ..... Well I hope ur feeling well to day. Sharonmay7 <br />
<br />

REPLY

I've been diagnosed with pulmonary fibrosis with extreme pain due to my psoriatic arthritis. Methotrexate has calcified my lymph nodes and I feel hopeless. My pain is not under control due to the fact that it's against hospital policy to administer any pain relief in my life. Nobody cares. I hate the thought of my remaining years suffering. HELP ME PLEASE or HELP ME DIE!!!!!!!!!!!!!

REPLY

Anyone out there ? I'm losing hope...

REPLY
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