Mayo Clinic Connect
Are there any discussions for chronic pain?
Liked by SpineAZ, bob815c
Hello ladyjane85. After reading the many posts of multiple surgeries & decades of pain, my situation sounds minor indeed but these posts are also quite frightening. What if my surgery doesn’t help also or only leads to more pain & less hope! Must stop over thinking & stay positive.
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two kitties Many people are healed with one surgery, and things do notdeteriorate further. So head up, after a brief recuperation and learningsome back exercises in PT I wish you many years of a happy existence.ladyjane85
@twokitties Hello twokitties my name is briansr..I saw your post and wish you all the luck on your surgery. Ive had 8 low back and cervical surgeries, all were a have to. The first two were lumbar L4-S1, I couldn’t walk. You might need some help when you get home. I am done, everyone I’ve had has caused the disc above or below to crumble. This has been a 33yr battle and they want to another one. I’m sure yours will go fine. I asked my dr what was wrong with me and he just said I was messed up. I will say a prayer for a speedy recoverj and no more leg pain. briansr
Hi two kittens, well I have been fighting with leg and hip pain for over a year. After 8 weeks of PT I have Spinal Stenosis, which has led to Degenerative Disc Disease. No operation suggested. Hope this helps. Shay.
Liked by Colleen Young, Connect Director
Thank you, and God bless all people in pain, physical and or mental, young
We all have our own pain. If anyone ever says they hurt worse than you, ask them, how do you know. Everyone seems to own their own pain, I’ll never know how you feel, and you’ll never know how I feel, tell them it’s not a contest. briansr
Liked by salena54
Yes,I know.We all have our own pain.
@ladyjane85 Keep a positive attitude and all will be well surgery helps most people. 19lin
It’s just my bad genes, after 8 surgeries I’m done had enough. And they want me to do another one, no way. I’ve had enough. briansr
Has anyone said this to you. I think everyone’s pain is different. There’sdifferent kinds of pain too. I don’t understand why people say such things.I get a type of panicy response when someone thinks I’m find and disregardsmy pain and expects me to do something. This does happen anymore but Istill remember how that felt. You sound like you are strong and handled thesituation when a person was not understanding of your pain.
I don’t think it was your genes.. I think it was 8 surgeries. Why so manyany do they want you to have another one?
@suebreen54 From briansr. I look fine, can walk and talk, so a lot of people and doctors think, there’s nothing wrong with him. While inside my body is screaming. If they only knew.
@suebreen54 They were all have to surgeries, then after one disc above or below went out, it’s like I’m crumbling. And that’s the way I feel. briansr
ladyjane85 I am sorry you have so much pain, I think all of us here suffer a lot and it seems they (the rulers) are trying to make it more. I have lost count of the surgeries I have had and I have decided to not have any more if at all possible. I am 68 and have had chronic pain since I was 20 so I think it is time to stop prolonging things and let God make the decisions for me. I hope things go well for you and that if you have this surgery it will be the one to make things better for you. I have talked to my doctor about things and he suggested a hospice? I need to explore that more with him. God Be With You. 19lin
Liked by salena54, success101
Thank you ladyjane85 for your good wishes. I like your positive attitude. So true that dressing up & looking nice can help you face the day in a better mood. I’ve also found that I cannot wear flat shoes; wedge heels feel better. Thanks to everyone for posting to Twokitties.
I live in the Adirondack mountains and I don’t have a community pool or physical therapy near I don’t drive. And my son and wife have four kids so it’s to much to go.
I think if you go to a pain clinic and sign their papers making an agreement to follow their rules. If your in sever chronic pain and you can’t function you will be given the appropriate pain relief narconic or not. Has anyone tried epidurals
I have had a neurostimulator for about 5 years now. It works wonders for me. The only drawback to it is that it only works for the area it has been placed for. If you have L-1 to L-5 pain and it is placed for those discs it will not work for your neck area unless you have another one implanted. Mine can be adjusted to work more on one side than the other if my pain is radiating more on one side. I can do that myself. I have also had the programmer adjust the area slightly with her device when I had hip surgery. But there are limits to what the adjustments are and they can’t make it go up or down a disc. I believe it has kept my med use at the same dose for the past 5 years instead of having to have it increased. It it a gentle massaging type vibration and can be programmed with several different types of massage feelings. I can turn between them if I need a stronger one on a day where the pain is worse. It has to be programmed by the nurse who was there during my implant or a rep from the company. I just see her once a year, she loads up my controls with the ones I want and I’m set. If I wish to change anything all I have to do is call her and meet her at my Pain Mgmt office. I only wish my body would stop falling apart disc wise because I could use another one for my neck now. As far as fatigue as others have talked about, gabapenten will cause fatigue in me but the medication does help me. My Vit D level was extremely low because I’m not outside a lot. Taking a dose of that my Dr has prescribed has started to help some. It’s not all perfect now but most days more than not, my pain is more manageable with the stimulator and my medication. I hope this helps some. Thank you for this site to talk and thank you for reading. ❤️
I have had several spinals, but they were very painful and I was unsure how helpful they were, I needed them mostly for sciatic pain and I could not get in fast enough when the sciatic pain was bad. 19lin
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I have had several blocks, epidurals and other nerve blocks. None of mine have hurt with the exception of the steroid flare pain a couple days post injection. And like someone else had posted I find that the relief depends on who did the injections and if the actual spot was hit dead on. They are not meant to last forever. I was told they are a temporary relief to a permanent problem. I’m sorry you don’t get to get in fast enough. Like you I have sciatic pain and it can be some of the worst pain I have ever felt. I go to a fantastic pain mgmt group that I can call and get a same day appt to be evaluated for an injection that day. They have a surgery center down stairs from their offices and I can go right down and get an injection if the Dr says I can. It’s been a life saver.
This is a wonderful discussion. So many pain sufferers need to know how pain affects people differently. Managing pain is more of an art form than science, but the two go hand in hand.
The four biggest areas of pain management I always look at for myself are:
1) Brain receptors
2) Targeted pain on areas of the body
3) Stress relief
4) Diet and exercise
I mean when it comes to the “science” of pain, we could simply take medications that disrupt pain receptors in the brain limiting neurons from firing, but in my experience (i.e. opiates, and the like) also have a negative affect on the quality of life, giving pain patients what is known as “brain fog”, loss of memory, sleep disorder and so on.
On the flip side, attacking the areas of pain alone is sometimes not enough. So I’m constantly asking people, what’s their “perfect” mix of the two. Being unbalanced with either one can label you as an opiate user, abuser of the system, but not taking the right combination can play a huge role in the quality of life that you have and your mental state as a hole.
Then there’s the debate about over-the-counter vs. prescribed medications. Which ones do you chose when your pain meds don’t work? Is it appropriate to go out and add Tylenol, Aspirin and Aleve to the mix? When is it acceptable behavior or not? What affect will it have on your system, especially your stomach and the increase of acids.
Now one of my favorites and often overlooked is more natural ways to conquer pain, specifically meditation. Since pain is all but managed through the brain, then in my opinion meditation is the method underutilized to “clean up” the junk in the mind that’s coming in. Or another way to put it, when you meditate, it’s like “cleaning up” your computers hard-drive so that the computer itself goes much faster afterwards.
Daily medication doesn’t mean sitting in some spiritual room with candles and scented incense. No, for your it could mean having some quiet time with tea in the morning reflecting on your day, outlining your goals for the day (as the pain allows, or as others would call “the # of spoons), and allowing your mind to filter out the stuff that increases your stress in order to tackle the pain coming in.
Stress I find goes hand in hand with pain as well. Finding “me time” is so important to decrease pain on a daily basis. Less stress = more active, better sleep, and easier to manage pain. Do whatever you need to relax your mind and body on a daily basis (I understand hard to do while in pain, but daily rituals will help eventually).
Most people are shocked when they hear that i’m in chronic pain. I rarely show it to people around me. Sometimes it’s hard not to show it, which can be exhausting depending on the level of pain you have and what’s affected.
Over the last 20 years, I’ve survived multiple blood clots throughout my body. I’ve had massive open wounds for 10 years straight, my legs are constantly wrapped with bandages and compression bandages. Rarely does anyone see me with shorts so I don’t have to explain to them what it is and what they’re for. But over time, I’ve found that by hiding my pain only increases my stress and doesn’t allow my brain to release it, talk about it, or be ok with asking for help.
I hope this peaks more discussions on “daily tips” or “rituals” that you do which helps to decrease pain. I think it’s obvious here that we all have experience with meds and our own pain management, but I’m really interested to hear what else I can try from your own experiences!! 🙂
Martin R. Lemieux
I’m so glad you brought this up. I’ve noticed these posts seem to all share one thing, we are all in pain, tired of it and want better quality out of life.
Like other I have tried most of the same medical procedures, some with better results than others. I enjoyed reading your post and spouted a loud YES!!
I believe no matter what I take or put on my body if my frame of mind is negative than more times than not my results are negative. So I try some things several times to rule it out completely. I have a very specific morning routine.
1. I take my morning meds with a full glass of water and refill the glass a second time and try to drink that too. My glass is 16 oz so I try to start my body off with 32 oz of water to flush out the gunk my body has tried to get rid of while restoring at night.
2. I usually lay or sit back on my bed and wait for my meds to work. But while they are working so am I. I meditate and do positive affirmations. Even if all I can do is 20 minutes of broken time and only 1 positive out of the 3 I want to do. I still think this gets me in a more positive frame of mind and I can talk myself into handling more than I normally have in the past. Some days the pain is so bad in the mornings that I convince myself over and over that I can do this. Other days I just need to go back to bed and try again after my second dose of meds. The less stress I put on myself the better I am to myself. I really don’t need anyone to tell me how bad I am, because like most other chronic pain sufferers, I get depressed easily and I am my worst critic.
3. I do all I can in the day and do my very best. If it is a job, a project, or just housework I work until I need to rest and then work some more. At the end of the end I go over what I’ve done and I’m grateful to God for being able to do it. I try not to criticize myself on what I didn’t get done, or how much or how little I’ve done. I say a prayer to have the strength to start over the next day and I close the chapter on that day. I try not to revisit it unless I need to keep a pain log for my doctor.
Pain isn’t something that is the same for all of us. What I think is unbearable may be nothing to you or vise versa but it doesn’t make it any less painful to those who are feeling it. I listen to my doctor and I work hard with him to find a plan to work for me. But mostly I try and I say TRY to stay positive. Anger, bitterness and regret lead to depression for me and it only makes my pain worse. So if I follow my 3 steps each day to the best I can I help manage my pain the best way I can.
Martin if you have other way you cope or can share more that helps you I would love to hear them.
Thank you so very much for the excellent post for discussion.
Liked by mntnlaural, deev
Agree. The self talk is so necessaryI feel then,we are whole. I too,feelrelaxed after meditation.After that I have my cup of coffeewhen everything is quiet.Just starts me out better.
I also found that regardless of my attitude,i must do my leg exercisesIt, has to be a part of my morningroutine.
Liked by bekie
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