Chronic pain - Let's talk

Posted by leh09 @leh09, Mar 23, 2016

Are there any discussions for chronic pain?

Interested in more discussions like this? Go to the Chronic Pain group.

@briansr

This is briansr to Jvivian, this year brings me to my 33rd anniversary and
there’s no happy involved!. Spent all of the past 30+ hrs with no sleep,
120 mile round trip to Dr, then a 4 hour wait to not see my own Dr. He was
too busy hopping from surgery sweet to another so he could play. He’s an
anesthesiologist wanna be surgeon but he owns the hospital. Four hr wait,
2 minute visit with s different Dr, and my list of questions will have to
wait. Wasn’t like this 4 yrs ago so I will be looking for more personal and
pallatative care. NO MORE SURGERIES, NINE AND THERE AFTER ME AGAIN. I’M 60
YRS OLD AND WOULD LIKE TO ENJOY WHATS LEFT. And with all the problems plus
alot more, I just can’t take much more. This place is turning into a
factory, ESP. for Medicaid, which I don’t have. Today I got word of a pain
Dr I had 25 yrs ago and am going to look him up. Wish me luck!!! brian SR.

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Good luck briansr – I am a young looking 85, but the severe pain in
back for over 25 years is too much. Cannot tolerate meds. The 4th pain
management dr I saw a couple weeks ago said there was nothing more
they can do for me. Yes, have had too many surgeries and procedures
with nothing that worked…..@ladyjane85

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@briansr

This is briansr to Jvivian, this year brings me to my 33rd anniversary and
there’s no happy involved!. Spent all of the past 30+ hrs with no sleep,
120 mile round trip to Dr, then a 4 hour wait to not see my own Dr. He was
too busy hopping from surgery sweet to another so he could play. He’s an
anesthesiologist wanna be surgeon but he owns the hospital. Four hr wait,
2 minute visit with s different Dr, and my list of questions will have to
wait. Wasn’t like this 4 yrs ago so I will be looking for more personal and
pallatative care. NO MORE SURGERIES, NINE AND THERE AFTER ME AGAIN. I’M 60
YRS OLD AND WOULD LIKE TO ENJOY WHATS LEFT. And with all the problems plus
alot more, I just can’t take much more. This place is turning into a
factory, ESP. for Medicaid, which I don’t have. Today I got word of a pain
Dr I had 25 yrs ago and am going to look him up. Wish me luck!!! brian SR.

Jump to this post

I am 60 but most people think I look 45. DR’s say your still young, well my
mind is 25 but my body feels 95. And the one big problem, and I’m sure most
can attest to, there isn’t any possible way to tell anyone what you go
through 24/7 as is the same when someone tells you how they feel. I always
know that there is someone in a lot worse shape than I am, and there are
millions. I’ve been wanting to write a book for a long time. It’s something
that I need to get out into print, I just can’t seem to start. When I do,
AND I WILL, I won’t be able to write as fast as I think. But I’ve got to
get it out, I hope before I pass. briansr.

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Thank you, and God bless all people in pain, physical and or mental, young
and old!

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I have Chronic Migraines and just been diagnosed with Chronic Neck pain also. My recent Neuro has given me two boot shots in 6-months for migraines but not all that effective. I do have “preventive” rx’s but I’m still suffering from them. PLEASE, can anyone suggest anything else I can try? I have done accupuncture, hyperbaric chamber that helped at first then stopped working. Imitrex caused a heart attack and I also tried epidurals and that stopped working.

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Hi @diamond22, and welcome to Connect. I’m glad you’ve reached out through Connect for suggestions on relieving your neck pain. I moved your post to the Chronic Pain – Let’s Talk discussion as there are many members who are discussing this topic and experiencing similar pain symptoms.

I’m also tagging @leh09 who has also received epidurals for pain, and @seanbeck and @sharonmay7.

@diamond22, how are you currently managing the pain?

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@alysebrunella

Hi @diamond22, and welcome to Connect. I’m glad you’ve reached out through Connect for suggestions on relieving your neck pain. I moved your post to the Chronic Pain – Let’s Talk discussion as there are many members who are discussing this topic and experiencing similar pain symptoms.

I’m also tagging @leh09 who has also received epidurals for pain, and @seanbeck and @sharonmay7.

@diamond22, how are you currently managing the pain?

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As mentioned, my Neuro gave me the 2nd dose of Botox this month and I’m on
preventive medicines. I even used the Cefaly but that stopped working
too. Right now, nothing is working.

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Hi everyone,

The discussion around chronic pain in this thread and other threads has grown to such a point that we, the community moderators, thought that it was time to open a new group dedicated to this topic.

Welcome to the new Chronic Pain group. Feel free to browse the topics or start a new one here https://connect.mayoclinic.org/group/pain/.

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@alysebrunella

Hi @diamond22, and welcome to Connect. I’m glad you’ve reached out through Connect for suggestions on relieving your neck pain. I moved your post to the Chronic Pain – Let’s Talk discussion as there are many members who are discussing this topic and experiencing similar pain symptoms.

I’m also tagging @leh09 who has also received epidurals for pain, and @seanbeck and @sharonmay7.

@diamond22, how are you currently managing the pain?

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I have had every epidural but they do not work either on my 25+ yrs of
pain. The body isn’t fooled anymore , I guess, but I respond badly to
all pain meds. The implanted stimulator gave me more problems….

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When I made my first post to the Let’s Talk, Chronic Pain, I knew there was a need but never imagined we would get our very own thread. I have suffered chronic pain for “only” 5 years but it feels like a lifetime already. The struggles that this group faces is unique that it has no measurable indicator. Pain is subjective. What is a 7 to me might be a 5 for someone else or vice a versa. It’s difficult for others to understand because we look so normal on the outside. For some of us there is a defining injury; a missing limb, bulging or ruptured discs, or a known pain producing illness. There are others of us that have no definable reason for our pain and yet we are in agony. We have been told that we need psychological counseling or that we must have a low pain tolerance (my personal favorite). I’m so happy that we now have a place that we can come together to listen to each other’s stories without fear of judgement. Let’s keep this discussion alive and going for us and for those that will inevitably walk the same painful path.

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@alysebrunella

Hi @diamond22, and welcome to Connect. I’m glad you’ve reached out through Connect for suggestions on relieving your neck pain. I moved your post to the Chronic Pain – Let’s Talk discussion as there are many members who are discussing this topic and experiencing similar pain symptoms.

I’m also tagging @leh09 who has also received epidurals for pain, and @seanbeck and @sharonmay7.

@diamond22, how are you currently managing the pain?

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Are u talking about noted for migranes?? Sharonmay7

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Yes l am; chronic migraines.

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@briansr

This is briansr to Jvivian, this year brings me to my 33rd anniversary and
there’s no happy involved!. Spent all of the past 30+ hrs with no sleep,
120 mile round trip to Dr, then a 4 hour wait to not see my own Dr. He was
too busy hopping from surgery sweet to another so he could play. He’s an
anesthesiologist wanna be surgeon but he owns the hospital. Four hr wait,
2 minute visit with s different Dr, and my list of questions will have to
wait. Wasn’t like this 4 yrs ago so I will be looking for more personal and
pallatative care. NO MORE SURGERIES, NINE AND THERE AFTER ME AGAIN. I’M 60
YRS OLD AND WOULD LIKE TO ENJOY WHATS LEFT. And with all the problems plus
alot more, I just can’t take much more. This place is turning into a
factory, ESP. for Medicaid, which I don’t have. Today I got word of a pain
Dr I had 25 yrs ago and am going to look him up. Wish me luck!!! brian SR.

Jump to this post

Briansr, I don’t know where u live but I hope u can find a doctor closer to you. Sounds like you are not being taken seriously. I hope that’s not the case. I’ve even been to John Hopkins in Baltimore with my son over 50 times and never had to wait that long!!!!! And I was waiting on some very famous doctors!!!! Waiting on hard chairs after a very long drive I don’t think I would off made it very far!! That is hard to do when u r in pain and shouldn’t happen that way!! A good doctor wants to take his time so he doesn’t miss anything. We all deserve that much. we are paying money to c them. Sorry for complaining so much but I hate to here people waiting so long and then still didn’t get to ask what u need to know!!! I think mostly people do not under stand pain!! So we get pushed to the side. Well maybe u can find a better dr. Good luck and just look around ask friends and even your insurance company they we’ll send u a list of doctors in your area that uses you insurance cards. Sharonmay7

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