Mayo Clinic Connect
Are there any discussions for chronic pain?
Liked by SpineAZ, bob815c
And the ingredient in brownies is pot which is illegal but I don’t knowwhat state your in. Your pain Dr is in charge of that.
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People not understanding what pain does to you and the hopelesness feeling you have about it is a major frustration. I do try to keep a positive attitude each day because I enjoy staying as active as I can and my mind still has not realized that the body can’t do everything that my mind wants it to. My pain doctor is probably doing everything he knows to do. I have a pain pump with Hydromorphone and Fentanyl pumping the drugs into my body 24 hours a day. I can take a up to 4 Hydrocodone in addition a day. I just had my old Spinal Cord Stimulator replace with the newest on the market. I was told that many people that did not get any relief from the old style would get relief from the new one. I was also old that the average patient would get relief by the time they had gone thru 4 or 5 programs on the stimulator. Well with my luck, I have gone thru approximately 18 programs and still can not tell any difference. Each program has 8 stages before you move to the next ptogram, that is 144 stages that I have gone through and still nothing.
I have a major gripe about my Pain doctor, when I see him, I get as high a 4 to 6 minutes time before with him before he leaves. I know that he is busy and he maybe frustrated at not being able to get me any relief (but I doubt it) but I am the one that brings up new meds or procedures to try. If he thinks I will benefit from it he will agree to try it. Considering trying to find another doctor but since he implanted the Pain Pump and both stimulators it will be difficult to find a doctor who wants to take control of my care.
I have considered going to either the Mayo Clinic or there is supposed to be a Hospital that specializes in Neuropathy. I am ready to try anything. If someone can prove to me that eating cow manure will stop the pain, you had better keep a watch on your cows. I really appreciate this Forum in that I do see different treatments or meds mentioned timt to time.
Liked by Colleen Young, Connect Director, salena54
Hi Lady Jane I’m sorry to hear how much pain your in.I have learned thatnobody understands or can feel how bad are pain is. I used to think if onlymy Dr could feel my pain then he would know. So after being in severechronic pain for years I learned you have to express how much pain your in.If you are like me that’s hard to do. You have to do it. You have tocommunicate the real level of your worst pain. I know that edrenalin andbeing out with people can distract us from our pain. That makes it hard tofeel and say what pain level you are at. They always say what is your painright now, but you have to think about when you get home and when your inpain. That is the number I would tell otherwise your not going to getenough good appropriate pain relief. I know your not getting 0ain reliefbecause your in pain all the time. You can’t act nice. You have to bestrong and tell the truth about your real pain so you don’t have to be inpain all the time. You have the right to get appropriate good pain relief.You shouldn’t be in pain all the time. Tell your Dr tell everyone involvedin your care. God bless
@suebreen54 I am starting with my 4th pain mngmnt dr. All have saidthere is nothing more they can do for me after 5 surgeries ( 2 withrod and screws), spinal needle procedures of all kinds that did nothelp at all. And over 45 meds that I react badly to or do not work.Every time one goes to these drs one must list your pain level – Ilist 8 to 9 with some 10 pain. This month I have had 2 periods of 10pain with crying. They know the intensity, but what to do. A visityesterday – go get another lumbar x-ray to see if there is room to putin a needle for nerve pain relief. How to tell him I have had so manyx-rays. So I had x-ray dept call him with why the Feb one isn’t one hecan look at, but could not get him on phone. I left msg with nurse.Why can’t they realize you are having too many x-rays; every 4 monthsalso abdomen and kidney xrays. Yes, they know my pain – I spend mostof my time on the bed with burning pain across my derriere from theback sending the periformus nerve signals. I am what they call inlooks 15 years younger, but am 86 now. What to live for. I smile forpeople, so they never see the usual 9 pain. But so many have their owntroubles, and drs grow blase (with the e having a french accent mark) @ladyjane85
Liked by briansr
@ladyjane85-God bless you. I get to feeling bad and then I see there is always someone worse off than me. I have a Pain Pump implanted and also a Spinal Cord Stimulator implanted and while I am not getting very good results from either, many people do get relief with the stimulator. Nervo has the latest one out and you never even know it is on, unlike the older style where you felt the vibrations in your body and had to turn it way down or off to lay down.
I would suggest you ask your doctor about the stimulator. It is not a bad surgery, you will have the stimulator implanted on one side of your back, under the skin, an incision of about 5 to 6 “ but not deep and one incision over your spine to implant the leads. It will be an incision of about 4”. In a couple of days you will be back to normal except for lifting. I have heard of a lot of people getting real pain relief. I just happen to be one of the ones that it does not help yet (still optimistic) and neither does the pump filled Hydromorphone and Fentanyl.
Liked by salena54
I take 200 mg Tramadol and 900 MG of gabapentin throughout the day. for pinched nerves and arthritis pain. I also take a full aspirin every morning and stil, I cannot walk more than 2 blocks without severe back pain. I am soooo tired. Anybody else who is just fatigued from constant pain?
Constant pain effects us all differently and with the legislature pushing to stop opioids plus the higher cost for medication it becomes a major battle from day to day. I just read of a couple in the South where they could not afford pain medicine for his wife so he killed her then notified family and called the police. They are in their 70’s or more. If I was on his jury I could not find him guilty. In the past she had said she wanted to die the article said. Very sad and needless, all for greed. 19lin
Liked by maryannmarie
Welcome back @suebreen54. We haven’t heard from you in a while? How are you?
I also want to tag @briansr @19lin @sharonmay7 and @leh09. Would love to get an update from you all.
dbentley – I had the pain stimulator put in about 3 years ago, onethat St Judes uses, true it rumbled my body badly, did no good, andwould continue to rumble even after shut off. Had it taken out lastyear. True there may be a newer model, but I am reluctant to have a6th surgery with 38 staples again. Nothing seems to work for me. hankyou – you have an updated one that seems to work better, but one canonly withstand so many surgeries…..
Yes that sounds bad all thoughts surgeries. I think because I have adegenerative disease surgery has never been a option for me.So what do you do for your pain? Do you see a specifically a pain Dr.? Ido , and his NP specializes in pain also.I think the important think is you have pain relief. You have the right tolive without debilitating pain. You should have pain relief. Why did theygive you all those surgeries? Are you taking pain medication? There isnothing wrong with taking the right pain medication for your pain. Nomatter what the medication. Under a pain Drs care you will be fine theywon’t let anything bad happen.So how is your pain?
I have gotten myself involved in a few organizations through Facebook and Ilike to just use twitter because I read a lot and its fun. The things I’mdoing are for the endangered animals and some for the environment. I dowriting and petition signing and sharing on Facebook. Animal abuse issomething I’ve always worked against but with Facebook there are horriblethings on there. I like political science so I’m always talking andstudying that. The other new thing I’m doing is I live on St Regis River inthe Adirondacks. Iv got several apps from Cornell for bird identification,I have a Hugh nest in my try and they have a nest watch and bird feederwatch and mostly I do it from bed or my kitchen window or front Frenchdoors. There are bald eagles I see all the time and blue heron. I’m writingwithout my glasses I hope its not to bad. I am on a new drug that’s helpingme its for migraine and I had a epidural 2 weeks ago so I’m OK. Travelingis hard for me still . I’m trying to wright this with my cat crossing meone way then the next .well that’s it. I’m doing good. Oh I forgot I’mdoing meditation apps for pain or to relax and for sleep and I think theyare really helping me. Thanks for listening
Hi. I’m Michelle and I’ve recently had a lumbar spine surgery, which really went very well for my back and took away all the pain. But about three weeks after the surgery I developed nerve pain in the top of my foot and in my big toe . I just begun to take gabapentin but my system doesn’t seem to enjoy it. I feel spacey but I can tell it lowers the pain except at night. Just today I tried wrapping A lidocaine patch around the top of my foot and kind of over my big toe. It is really made a difference today, then again I am not sure if it’s the gabapentin small dose, or the patch I put on. I have had this chronic pain now for approximately two months perhaps a little longer.
Hello Michelle. You mentioned having lumbar surgery. I am about to have surgery, laminectomy, for severe sciatica pain in my legs that I have had for over two years. I have tried everything else so surgery is the next step. I will be 72 this year and am otherwise in good health. I am hopeful that it will help but the closer I get to the date – June 6th – the more I am thinking too much! What was your surgery for exactly.
@twokitties Hello twokitties my name is briansr..I saw your post and wish you all the luck on your surgery. Ive had 8 low back and cervical surgeries, all were a have to. The first two were lumbar L4-S1, I couldn’t walk. You might need some help when you get home. I am done, everyone I’ve had has caused the disc above or below to crumble. This has been a 33yr battle and they want to another one. I’m sure yours will go fine. I asked my dr what was wrong with me and he just said I was messed up. I will say a prayer for a speedy recoverj and no more leg pain. briansr
I tried the simulator but only as a test. Hurt like hell but when I wentback the dr moved the wires around and itFelt good, he mapped where they were and then removed them. I already havea pain pump and did not want another machine in my body, but it felt great.Maybe you should find another dr to test it first for one or two days andmatch it to your pain, then say no or yes. But give it another try becauseit might help a lot briansr.Good luck!!!
Liked by Colleen Young, Connect Director
I would like to hear more fromtwokitties. Concerning her upcomingsurgery on her legs.I seem to be suffering from the same conditions. Seeing chiorpractornow,not sure.have it so bad in hips and downlegs. Had PT also,cannot take onemile walk anymore. I too am 72.Love to hear from anyone.Success
HI @leh09, I’ve been through a great deal of chronic pain most of my life. What would you like to talk about?
Martin R. Lemieux
I’m sorry 2 hear you’ve been coping with chronic pain a long time. I haven’t had it that long.But,about 20 yrs..I do find it hard 2 cope with so much all the time.Or just about.Take care.
to @briansr from ladyjan85 Had the trial on neurostimulator and thenthe implant for over one year. Did nothing better than a TENSunit which is only supposed to make your brain forget the pain and listento the rumble. Huh. If a lot of pain, up to 9 and 10 level does no good.Since this reqired 38 staples to remove, and I had the best neurosurgeon Icertainly would not try it again. They admit it MAY reduce as much as 50%of some pain….
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