Aortic Stenosis & Valve Replacement

Posted by onthego3 @onthego3, Dec 14, 2016

Anyone have this non operable problem according to doctors and tests.its called aortic stenosis

I have a bicuspid aortic valve with stenosis and aortic aneurysm 3,9. Get an echo twice year. I’m having a hard time dealing with heat and humidity. . I’m dizzy a lot and can’t do stairs. Still they say it is not bad enough yet for surgery

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@happyheart13 With all you have they aren't doing surgery? Do you think you should get another cardiologist ? I think I would if it where me but if your comfortable 😉 with your Dr .

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They seem to go only by measurements unless you are passing out. I have another echo soon. I’ll see what it shows.

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@happyheart13 Best wishes to you I hope you keep us posted we care

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@carlyne

My stenosis. Is at a 5.5 hsaving trouble asking for 2 nd opinion, as to where do I turn?my primary?I get another echo in feb. then will need to make a decision, so what to do what to do?

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See a cardiac surgeon at a university hospital that does a lot of valve surgery

Liked by lioness

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@linepa

I have been getting Echo's every 2 years for 20 years for a mild Aortic sclerious.

This report I had done last week says heavily calcified Aortic leaflets.

Moderate Aortic stenosis: peak velocity 3.1 m/s
dimensionless index 0.5
calculated AVA=1.50 cm

Doppler perimeters were not sufficient to analyze regurg volume

Doppler was incomplete for Diastolic flow

some trival and trace things shown in other valves.

My dx before was sclerious not it is stenosis and never have I seen anything about leaflets. All I am thinking is surgery and so afraid
I am a 77 year old female. with bradicardia.

2 months ago I had fluttering in my stomach, have IBS and was very gassy but checked my pulse and it was 143 went to the E R was admitted over night and monitored, was in sinus rythum and home in 24 hours on meds.

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Can someone give me any feedback on my post.

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@linepa

I have been getting Echo's every 2 years for 20 years for a mild Aortic sclerious.

This report I had done last week says heavily calcified Aortic leaflets.

Moderate Aortic stenosis: peak velocity 3.1 m/s
dimensionless index 0.5
calculated AVA=1.50 cm

Doppler perimeters were not sufficient to analyze regurg volume

Doppler was incomplete for Diastolic flow

some trival and trace things shown in other valves.

My dx before was sclerious not it is stenosis and never have I seen anything about leaflets. All I am thinking is surgery and so afraid
I am a 77 year old female. with bradicardia.

2 months ago I had fluttering in my stomach, have IBS and was very gassy but checked my pulse and it was 143 went to the E R was admitted over night and monitored, was in sinus rythum and home in 24 hours on meds.

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Hi, ill try and help but i had just the opposite problem before my transplant. I had fast heart beat or tacocardia. But i will say when ever i had any test result i was always able to talk to my doctor and get questions answered. The only part i kinda recognize is calcium deposit in the aeorta. During my transplant the surgeon noted in his report that he found calcium deposits in my aeorta but found enough soft areas to clamp off during the transplant. I asked my regular cardiologist recently about it and he said don't worry about it that's pretty common as we get older btw im 60. I hope i helped. Good luck

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@danab

Hi, ill try and help but i had just the opposite problem before my transplant. I had fast heart beat or tacocardia. But i will say when ever i had any test result i was always able to talk to my doctor and get questions answered. The only part i kinda recognize is calcium deposit in the aeorta. During my transplant the surgeon noted in his report that he found calcium deposits in my aeorta but found enough soft areas to clamp off during the transplant. I asked my regular cardiologist recently about it and he said don't worry about it that's pretty common as we get older btw im 60. I hope i helped. Good luck

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I am seeing a new cardio, my other left the area. The new one has a excellent reputation in fact is my husbands cardio for 15 years. I did call the office about the Echo and the nurse I spoke with said if you received no call than don't worry, this needs to be watched for now. I see the cardio in Sept.
You had a heart transplant?
I have always had a low H/B also born with a murmur that I always had along with my 2 sisters

Thank you for being there. I guess everything stops working like it use when we age.

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@ch246cf10

Hi Elina,
Aortic Stenosis is a stiffening of the valve. Typically something that will happen to all Bicuspid Valves as the tissue gets all fatigued and wore out from having to function in a position of the Heart that really needs a Tricuspid Valve. I had the Stenosis as well and my Aortic Valve was Bicuspid. Two probably go hand in hand. Some folks make it their whole life just fine with a Bicuspid Valve, and some folks like me had theirs failing miserably at 52. You doing the right stuff just being here and speaking with folks who for the most part had these procedures performed on them.

All the best!

Bruce
Texas

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Update for my husband. He is having a heart cath in the morning so they can look closer at the aortic stenosis and will do a right/left of the other arteries. The doctor said this is the step before the tvar. My husband also will see a cardiologist EP cuz they said there are rhythm signs and symptoms during the latest monitor.

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@elina1

Update for my husband. He is having a heart cath in the morning so they can look closer at the aortic stenosis and will do a right/left of the other arteries. The doctor said this is the step before the tvar. My husband also will see a cardiologist EP cuz they said there are rhythm signs and symptoms during the latest monitor.

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Hello @elina1
It sounds like your husband has been monitored quite well. I hope that his heart cath will provide the doctors with some helpful information about the condition of his heart. Has he also had a CT scan of the heart? This is usually done prior to valve surgery.

I look forward to hearing from you about the results of his cath (if you feel comfortable posting about it).

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@hopeful33250

Hello @elina1
It sounds like your husband has been monitored quite well. I hope that his heart cath will provide the doctors with some helpful information about the condition of his heart. Has he also had a CT scan of the heart? This is usually done prior to valve surgery.

I look forward to hearing from you about the results of his cath (if you feel comfortable posting about it).

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Yes, I think his cardiologist and neurologist have been very helpful. Mike is anxious for the heart cath and I am too. He is nervous of waking up a vegetable. His words. While we are told positive things, he questions how it can be fixed. I don't remember a CT of the heart, but he had a partial echo with bubble study.

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I have been getting Echo's every 2 years for 20 years for a mild Aortic sclerious.

This report I had done last week says heavily calcified Aortic leaflets.

Moderate Aortic stenosis: peak velocity 3.1 m/s
dimensionless index 0.5
calculated AVA=1.50 cm

Doppler perimeters were not sufficient to analyze regurg volume

Doppler was incomplete for Diastolic flow

some trival and trace things shown in other valves.

My dx before was sclerious not it is stenosis and never have I seen anything about leaflets. All I am thinking is surgery and so afraid
I am a 77 year old female. with bradicardia.

2 months ago I had fluttering in my stomach, have IBS and was very gassy but checked my pulse and it was 143 went to the E R was admitted over night and monitored, was in sinus rythum and home in 24 hours on meds.

REPLY
@hopeful33250

Hello @elina1
It sounds like your husband has been monitored quite well. I hope that his heart cath will provide the doctors with some helpful information about the condition of his heart. Has he also had a CT scan of the heart? This is usually done prior to valve surgery.

I look forward to hearing from you about the results of his cath (if you feel comfortable posting about it).

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Cardiologist told us yesterday that this past week the TAVR procedure is approved for people with low risk. Someone in the thread said it is not done on bicuspid aortic valve. That is not true. It can be done.

Liked by yorlik

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@happyheart13

They seem to go only by measurements unless you are passing out. I have another echo soon. I’ll see what it shows.

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In some people’s cases, passing out isn’t enough for them to act. Cardiac arrest is not enough for them to do anything about BAV. If you’re on medi-caid, this country is happy to watch you die, while they call you an anxiety patient. I have gotten multiple second and third opinions, but they can’t force your doctors to do proper testing, and the can’t force your doctor to diagnose it’s cardiac arrest, if they want to call cardiac arrest, near syncope. As they’ve done with me for almost a decade as I woke up and died repeatedly. We have the worst medical system in the industrialized world because insurance companies get to tell doctors how and when to treat patients.

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@linepa

I have been getting Echo's every 2 years for 20 years for a mild Aortic sclerious.

This report I had done last week says heavily calcified Aortic leaflets.

Moderate Aortic stenosis: peak velocity 3.1 m/s
dimensionless index 0.5
calculated AVA=1.50 cm

Doppler perimeters were not sufficient to analyze regurg volume

Doppler was incomplete for Diastolic flow

some trival and trace things shown in other valves.

My dx before was sclerious not it is stenosis and never have I seen anything about leaflets. All I am thinking is surgery and so afraid
I am a 77 year old female. with bradicardia.

2 months ago I had fluttering in my stomach, have IBS and was very gassy but checked my pulse and it was 143 went to the E R was admitted over night and monitored, was in sinus rythum and home in 24 hours on meds.

Jump to this post

What exactly do you want to know? I am 67 and have had an aortic valve replacement and then a TAVR in the replacement.

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