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Aortic Stenosis & Valve Replacement

Heart & Blood Health | Last Active: Sep 6, 2023 | Replies (142)

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@smueller13

I was diagnosed with hypermobility and sent for an echo to check for vascular EDS. It came back clean but they said it looked like I have a narrow aortic valve and possible AS. They are sending me for a chest CT. What are the chances that it was just a bad reading? How likely is it that the echo was right? My doctor told me not to worry so I’m just wondering how common it is that echos are innacurate.

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Replies to "I was diagnosed with hypermobility and sent for an echo to check for vascular EDS. It..."

Hi @smueller13,

I sincerely apologize for the delayed response - somehow I just saw your message.
You may also notice that I moved your post to this existing discussion as I thought it would be beneficial for you to be introduced to a few other members discussing aortic stenosis.
If you click on VIEW & REPLY in your email notification, you will see the whole discussion and can join in, meet, and participate with other members talking about their or their loved ones' experiences. I'm hoping @hopeful33250 @mimi68 @ronbee @kibwezi @nanadoris and others can share their insights about accuracy of echo readings too.

May I ask if you would be able to share a few details about the chest CT scan – only if you wish, of course?