Aortic Stenosis & Valve Replacement

Posted by onthego3 @onthego3, Dec 14, 2016

Anyone have this non operable problem according to doctors and tests.its called aortic stenosis

@elina1

Cardiologist told us yesterday that this past week the TAVR procedure is approved for people with low risk. Someone in the thread said it is not done on bicuspid aortic valve. That is not true. It can be done.

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I had a TAVR because I was too high risk for open heart surgery. I was born with a bicuspid valve and had it replaced with a tissue valve which failed after 4 years and had a TAVR inside the prosthetic valve because I was too high risk for surgery.

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@hopeful33250

Hello @elina1
It sounds like your husband has been monitored quite well. I hope that his heart cath will provide the doctors with some helpful information about the condition of his heart. Has he also had a CT scan of the heart? This is usually done prior to valve surgery.

I look forward to hearing from you about the results of his cath (if you feel comfortable posting about it).

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I think it's best if I stay out of this loop. I'm not sure why this might be helpful. I understand and have empathy for all of you who have heart valve issues. Everyone is different and their heart valve are too. We feel best with what the team of cardiologists, surgeon and our NP is doing and their process. My husband is being entered in the Registry with the FDA. All is progressing. I really do wish you the best with your journey!

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@divmercy

Hi! I discovered I have aortic stenosis when I had my 2d echo done way back in 2007. The opening of my aortic valve was 1.1cm2 then. I do not feel any of the symptoms. It appears that my aortic valve is bicuspid instead of tricuspid. I was advised by my doctor to have a valve replacement but until now have not had the suggested valve replacement. I followed the medication prescribed by my cardiologist. In 2011, I decided to have regular acupuncture performed by a Chinese Eastern Medicine doctor. I also took herbal tea which their clinic provided. I stopped taking the tea after 2 years. Three years ago, I began to feel shortness of breath when I climb the stairs and when I have long fast walk. I stop carrying heavy bags. I easily get colds and cough. When I have cough, sometimes it takes 3 to 4 weeks before it is gone. I have difficulty breathing when I cough. Recently, I had the 24 hour dopler test. The doctor was worried that in several instances, my heart stop for 6 seconds but I was asleep when it happened. He told me to consider valve replacement. I asked my cargio how long will I live if i do not have the valve replacement and the answer was 2 years, and during those 2 years, I may not be as stable as I am now.

Im praying for guidance if I should go for it. There is a non-invasive replacement now that will not involve open heart surgery and recovery period is shorter than the open heart surgery.

I am now 66 years old. Pls help me decide. Thanks.

Divmercy

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If it were me I would go for it. Your young yet. My sister is 80 & had her aortic valve replaced 2 yrs ago. She's doing great. I had my tricuspid valve replaced 10 yrs. Ago and doing good also. We both had open heart surgery.

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@2752

If it were me I would go for it. Your young yet. My sister is 80 & had her aortic valve replaced 2 yrs ago. She's doing great. I had my tricuspid valve replaced 10 yrs. Ago and doing good also. We both had open heart surgery.

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I read this post with great interest, having had 3 valve surgeries in the past 50+ years and doing very well. Then I realized the original post was from 2016. I do hope that @divmercy is doing well.

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