Mayo Clinic Connect
Anyone have this non operable problem according to doctors and tests.its called aortic stenosis
Liked by Teresa, Volunteer Mentor, onthego3, Leonard
Cardiologist told us yesterday that this past week the TAVR procedure is approved for people with low risk. Someone in the thread said it is not done on bicuspid aortic valve. That is not true. It can be done.
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I had a TAVR because I was too high risk for open heart surgery. I was born with a bicuspid valve and had it replaced with a tissue valve which failed after 4 years and had a TAVR inside the prosthetic valve because I was too high risk for surgery.
It sounds like your husband has been monitored quite well. I hope that his heart cath will provide the doctors with some helpful information about the condition of his heart. Has he also had a CT scan of the heart? This is usually done prior to valve surgery.
I look forward to hearing from you about the results of his cath (if you feel comfortable posting about it).
I think it's best if I stay out of this loop. I'm not sure why this might be helpful. I understand and have empathy for all of you who have heart valve issues. Everyone is different and their heart valve are too. We feel best with what the team of cardiologists, surgeon and our NP is doing and their process. My husband is being entered in the Registry with the FDA. All is progressing. I really do wish you the best with your journey!
Hi! I discovered I have aortic stenosis when I had my 2d echo done way back in 2007. The opening of my aortic valve was 1.1cm2 then. I do not feel any of the symptoms. It appears that my aortic valve is bicuspid instead of tricuspid. I was advised by my doctor to have a valve replacement but until now have not had the suggested valve replacement. I followed the medication prescribed by my cardiologist. In 2011, I decided to have regular acupuncture performed by a Chinese Eastern Medicine doctor. I also took herbal tea which their clinic provided. I stopped taking the tea after 2 years. Three years ago, I began to feel shortness of breath when I climb the stairs and when I have long fast walk. I stop carrying heavy bags. I easily get colds and cough. When I have cough, sometimes it takes 3 to 4 weeks before it is gone. I have difficulty breathing when I cough. Recently, I had the 24 hour dopler test. The doctor was worried that in several instances, my heart stop for 6 seconds but I was asleep when it happened. He told me to consider valve replacement. I asked my cargio how long will I live if i do not have the valve replacement and the answer was 2 years, and during those 2 years, I may not be as stable as I am now.
Im praying for guidance if I should go for it. There is a non-invasive replacement now that will not involve open heart surgery and recovery period is shorter than the open heart surgery.
I am now 66 years old. Pls help me decide. Thanks.
If it were me I would go for it. Your young yet. My sister is 80 & had her aortic valve replaced 2 yrs ago. She's doing great. I had my tricuspid valve replaced 10 yrs. Ago and doing good also. We both had open heart surgery.
I read this post with great interest, having had 3 valve surgeries in the past 50+ years and doing very well. Then I realized the original post was from 2016. I do hope that @divmercy is doing well.
Ok, I have never had anything done in 63 years. I still have my tonsils! So, out of the blue I have been told I need to have my aorta replaced. I am not nervous right now. Am in great hands with my surgeon. He says I'm tall, thin and my heart is in great shape, except for the aorta thing. I am a teacher and really not liking being away from my students for a whole month. My dr. said he is going in from the side as my sternum is so big he doesn't need all that space and won't have to go thru my chest. So, everything is very positive. The surgery is scheduled for January 6. I'm sure my nerves will start working on me as the date gets closer. Any advice on staying positive will be greatly appreciated. Thank you sincerely.
My husband learned in late 2016 he had an enlarged heart valve. He was prescribed statin. In 2017 he had echo that showed bicuspid aortic valve, aortic stenosis and aortic aneurysm. He was told they would monitor each year for size and explained symptoms to let them know. In 2018 had echo the tech asked if he was light headed or dizzy as his heart rate was 40. He said no. The NP said watch and wait. After that I noticed he was fatigued, sometimes he would get lightheaded when standing, sat to rest when out, etc. He always told me he was good. In February 2019 we took him to ER as diabetes was high, fatigue, fell into chairs, etc. The doc found he had a silent stroke at some time. Neurologist did so much work up for her purposes and other doctors. Had event monitoring for 30 days. Had to call for finding after 1 1/2 months. Received message from cardiologist office RN that said fine. In may we called 911 cuz he fell and then passed out cold with eyes open. The ER said all was okay and PC and hospitalist didn't think he needed to be admitted. BUT, they kept him for three days to monitor. Found out after he was in telemetry. Went for follow up this week he is now hypotension and bradycardia. Has another event monitoring now for 30 days and was told he would have echo-tavr test. Not sure what is happening. Any thoughts?
I would find a cardiologist who treats you his/herself and doesn't pawn you off to the NP.
Hello @onthego3 and welcome to Mayo Connect. I’m sorry to hear of your aortic valve calcification. While I do not know the specifics of your condition, I’ve been under the impression that Aortic Stenosis is treatable with surgery, however, perhaps your situation has some exceptions. Have you sought a second opinion? I don’t know what part of the country you live in, but you might seek a large university medical center for a second opinion. Please share with us some of your symptoms and the history of your valve problem. We look forward to getting to know you better and once again welcome to this patient-oriented website!
It is very treatable im having tavr surgery im 2 weeks to get a nee valve
Yes its called tavr some people go home the next day..they dont open your chest it is done by catheter i am having it done in 2 weeks
Liked by yorlik
It has been a week: HOW ARE YOU DOING?
How are you? Did everything go well with the surgery?
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