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Anyone have this non operable problem according to doctors and tests.its called aortic stenosis
Hello Elina1 and Betty,
TAVR is not used for Bicuspid Valve replacement. It is designed to replace a standard Tricuspid Valve only. I went thru the Aortic Valve replacement surgery on early 2018, and they would not do a TAVR on the Bicuspid Valve. My requesting a TAVR wan't going to happen. A tissue valve is probably what they will want to use. You should discuss the Replacement Valve options very carefully with the surgeon. For folks older than 70 they usually do a Tissue Valve. I was 52 so they opted for a Man Made Valve. If a Man Made Valve is what they will use, ask for the On-X Aortic valve. Has the lowest blood thinner approval by the US Government. Less meds.
For me Valve Replacement Surgery was a breeze compared to the 2 prior Bi-pass and Aneurysm Surgeries. Those were many weeks in the hospital. Cut openen from the side. Don't join that club. I understand there is an age difference, but his body will tolerate it very well. His recovery will just be longer than someone younger. Tell him to keep his chin up! An you keep his spirits up and yours too!! Keep us all informed on the outcome.
All the best!
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In all honesty, I thought the bicuspid was separate from aortic stenosis. I don't know what will happen. I find I have to drag information from the cardiology and primary care. They say watch and good, then have to re-explain what has happened and is happening. Thanks for the information.
Aortic Stenosis is a stiffening of the valve. Typically something that will happen to all Bicuspid Valves as the tissue gets all fatigued and wore out from having to function in a position of the Heart that really needs a Tricuspid Valve. I had the Stenosis as well and my Aortic Valve was Bicuspid. Two probably go hand in hand. Some folks make it their whole life just fine with a Bicuspid Valve, and some folks like me had theirs failing miserably at 52. You doing the right stuff just being here and speaking with folks who for the most part had these procedures performed on them.
Thank you for your tenderness in your comments. My husband turned 65 last October and there has been much happening since then. I remember when we first met with the cardiologist in 2017, he had said when the timing was right it would be open heart surgery. I am afraid he will not be healthy enough. He has dropped to 125 lbs. While he is a small man now, he was very fit, muscular, and worked hard, heavy work till that time. I know everything will go according to plan. We don't know that plan yet. I am sorry you have been through all this and more.I am grateful for taking the time to be there helping to understand. Elina, Colorado
Tavr is a less evasive procedure , repairing the valve by going through the groin. I did not qualify for that procedure and had open heat surgery and had the valve replaced with the cow part. The Tavr will provide for a speedier recovery. Hoping the best for your Hubby.
Thank you! We will keep trying to figure this out with help from his cardiologist, you and Bruce's
I hope for a friend to come into our life. You are very sweet.
Hello @elina1, welcome to Connect. You may notice I combined your discussion with another discussion titled, "Aortic stenosis & valve replacement." I did this so the other members on Connect already discussing aortic issues would see your message and have a chance to share their thoughts with your post, and so you could read through some of the messages already posted as well. If you are replying by email, you can click on VIEW & REPLY to see where your message is now located and so you can read through previous messages.
@elina1, while we wait for other members to join, would you mind sharing what the current event monitoring is looking for? Has your current provider shared with you what they may be looking for?
Hi, thank you for connecting me with the correct group. Had a good comment from Bruce. My husband is okay now but had a slight scare this morning. Since he has the monitor on, the monitor nurse is watching symptoms we reported. I think right now we don't need connections. He is good. Thank you again.
I have a bicuspid aortic valve with stenosis and aortic aneurysm 3,9. Get an echo twice year. I’m having a hard time dealing with heat and humidity. . I’m dizzy a lot and can’t do stairs. Still they say it is not bad enough yet for surgery
@happyheart13 With all you have they aren't doing surgery? Do you think you should get another cardiologist ? I think I would if it where me but if your comfortable 😉 with your Dr .
They seem to go only by measurements unless you are passing out. I have another echo soon. I’ll see what it shows.
@happyheart13 Best wishes to you I hope you keep us posted we care
My stenosis. Is at a 5.5 hsaving trouble asking for 2 nd opinion, as to where do I turn?my primary?I get another echo in feb. then will need to make a decision, so what to do what to do?
See a cardiac surgeon at a university hospital that does a lot of valve surgery
Update for my husband. He is having a heart cath in the morning so they can look closer at the aortic stenosis and will do a right/left of the other arteries. The doctor said this is the step before the tvar. My husband also will see a cardiologist EP cuz they said there are rhythm signs and symptoms during the latest monitor.
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