1. < Autoimmune Diseases

Antisynthetase Syndrome: Anyone else?

Posted by nancykay1888 @nancykay1888, Feb 12, 2020

My husband was diagnosed with this autoimmune syndrome in 2017 after spending 4-1/2 months in the hospital (59 in ICU). Normally it affects women with one in 100,000 people. It has affected his pulmonary system, muscles, blood, skin and you never know when something will pop up. He has wonderful doctors who watch him very carefully. Has anyone else ever encountered this syndrome or heard of anyone with it?

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mommarsh | @mommarsh | Apr 11 12:53pm
In reply to @simchaemuna2 "I have been told I am in remission also. Been on and still on Cell Cept...." + (show)
@simchaemuna2

I have been told I am in remission also. Been on and still on Cell Cept.
I felt maybe 40% better at times. My mornings much better than evenings. Also I have flareups about every week or so. In fact it seems like we are experiencing the exact same symptoms. Thank you for sharing that, it helps me know how I feel probably is normal. I will be praying for you and I to learn ways help us be more comfortable. I am so grateful for this group. Knowing someone out there knows how I feel, right there is reassuring. I check in and pray for us all daily. Keep the faith all. 🤗❤️🙏🏾

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I had to stop Cellcept. I had to stop it because it caused anemia, I realized the difficult breathing and major weakness went away, so symptoms were from the drug, not the syndrome Now just on prednisone which I’m tapering off this week. Worried a little bit not to be on any meds, however glad to be free of them.
Wish you well.. keep me posted

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