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Antisynthetase Syndrome: Anyone else?

Autoimmune Diseases | Last Active: Jul 19 6:32am | Replies (115)

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Profile picture for jahsmoov @jahsmoov

I’m 26, was diagnosed in 2022 after being life flighted to hospital. They diagnosed I had ILD, Polymyositis as well. Was sedated, intubated, on echmo and ventilator. Had a great team of doctors and Rheumatologist at Mass General in Boston. Left the hospital after 2.5 months for about a month of Rehab. Currently still taking a Rituxmab infusion every 3 months as well as Tacrolimus for main medications. Was just diagnosed with Avascular Necrosis of my left hip due to the heavy dosage of steroids while in the hospital. Anyone else run into necrosis due to steroid usage?

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Replies to "I’m 26, was diagnosed in 2022 after being life flighted to hospital. They diagnosed I had..."

@jahsmoov I’ve recently found a community support group through the Myositis Association. I have dermatomyositis caused by Antisynthatase (PL7 Myo marker) I just registered for Myo Con in St Louis this fall. They also run local chapter support groups. Something to consider!