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Antisynthetase Syndrome: Anyone else?

Autoimmune Diseases | Last Active: Jul 19 6:32am | Replies (115)
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Profile picture for simchaemuna2 @simchaemuna2

Hi I too have this Very Rare condition. Sorry ya’ll but I am happy you all are here. I have ILD and taking infusions every six months Because I am small. I don’t have some of the options some of you have..I weigh 86 pounds. I do take Cell Cept 2 daily (morning and night. Please stay in touch, this is a lonely disease. Any questions you might need to talk about please ask. If nothing else I will keep us all in prayer

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Replies to "Hi I too have this Very Rare condition. Sorry ya’ll but I am happy you all..."
jahsmoov | @jahsmoov | Jul 15 12:36pm

@simchaemuna2 yup, same here. You run into any complications from the steroid usage prescribed ?

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rbear | @rbear | Jul 19 6:32am

@simchaemuna2 I’ve recently found a community support group through the Myositis Association. I have dermatomyositis caused by Antisynthatase (PL7 Myo marker). I just registered for their annual Myositis Convention in St Louis this fall. Something to consider!

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